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Dads small cell cancer

User
Posted 12 Jun 2015 at 19:37
Paula

now it is time to just be there for your Dad whenever you can ..work permitting and remember you and your Mum also have to have some time for yourselves and other people in your lives. Everyone who cares will understand that your Dad is your top priority in your life right now.

Make sure you take full advantage of any help yyou can get from Macmillan, the hospice or Dad's GP

thinking of you

xx

Mo

User
Posted 13 Jun 2015 at 14:03

Hi Paula,

Mo is right, short staffed or not it would be a pretty uncompassionate workplace that didn't realise your Dad is top priority so if you have to ask for time, don't feel inhibited. Work is always there, whereas your precious time with Dad may be short. Look after yourself too as much as you can,

 

Sending love, Fiona.

User
Posted 13 Jun 2015 at 15:51

I think it must be pretty uncompasssionate place Fiona as somebody there told Paula earlier on that her parents were elderly and were going to die anyway so deal with it!!
Thinking of you Paula and all your family. Enjoy the time you have left as much as you can under the circumstances.

I know work is important to you in the wider scheme of things but you already have a lot on your plate what with your mum and your husband.
If you aren't careful you might not have to ask for time off for your dad, you'll have run yourself into the ground anyway and will need that time.

Best Wishes
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 13 Jun 2015 at 20:14

thank you yes lots of people have quit due to the big workload and harsh management and complaints have been lodged.They know my circumstances but no one asks after my lovely dad and i have kept them informed.they kept texting last weekend when they were short but we were helping dad get his last heavy jobs completed.I guess no one knows how hard the cancer journey is until they ve watched loved ones go through it.
Dont get me wrong work can be a welcome distraction but getting home at midnight is tiring when im 48 ha ha.The comments have been dreadful tbh.you always get the rude one or two the others are polite enough but young so no idea how im feeling
love to all Paula xxx

User
Posted 13 Jun 2015 at 21:29

I can only echo what others have said Paula (lovelly pic by the way ) work will allways be there and I understand that we sometimes need to find a balance between our family and earning, some of us have to carry on working to earn a living whiles't going through the hardest of times. I would love to stop breeding dogs and just concentrate on Trevor but I have 2 young children to support so life is a juggling act. I just dash to where I am needed most and I am sure that you are doing the same. The sad facts are somtimes we are not able to be where we want to be but that will never stop your heart being in the right place at the right time.

Thinking of you.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 25 Jun 2015 at 10:29

I hope all the Dads on here were able to enjoy fathers day last week end.My sis actually decided to visit after a few yrs of limited contact which made Dad very happy.I had covered for someone at work during the week and stayed late on the promise i could leave first.I had dropped dads card and prezzie off but as it will be his last i thought i could get away about 9ish.Unfortunately the other woman did a hissy fit and said we all had to stay until 1030 or i was emotionally blackmailing people !!! errm so i clocked up 23 hrs overtime for nothing but money,
Anyway Dad seems happy enough and bought paint to do a bedroom wall (i hope my brother is actually doing it).Mum told me he only has months left and end of life has been discussed with hospice nurse.
We are hoping to fit in a big family party but with 5 kids and 13 g kids we may not all be able to be off at the same time.I would phone in sick tbh just to be there.

Love to all and thank you again for all the hand holding on this journey with all its highs and lows Paula xxx

User
Posted 26 Jun 2015 at 19:04
Paula

Your colleague is an unpleasant person, let's hope nothing like this happens to her!

Lovely to hear your sister came to see your dad, life is too short for all of us to hold grudges.

Enjoy every minute

Love Allison xxx

User
Posted 26 Jun 2015 at 23:01

 

Hi Paula,

Every Fathers day in our situations are precious aren't they I am so glad that you managed to spend time with your Dad on such a special day and that your Sis was able to put aside differences and be there for your Dad. I can understand your frustration at having clocked up extra hours at work to be disappointed at the last minute but I am sure that your Dad was happy to see you at any hour. What is the saying quality time over quantity as Allison says lets hope that your Boss never has to be in your situation.

Sometimes when we are trying to cope with such a difficult situation in one part of our lives and keep all of the balls up in the air with our functioning lives it can seem almost unbearable but you are doing such a brilliant job have faith in yourself .

That big family party sounds fab can I have an invite ? I am sure Dad will love having everyone around him.

BFN

Julie X

 

NEVER LAUGH AT A LIVE DRAGON
User
Posted 27 Jun 2015 at 08:51

Hi ladies i was seeing dad with my sister on the sat then she backed out.Dad was very disappointed having got dressed up so by the time i decided to go he had gone out to take photos of sunsets.so i left his card and prezzie.
On fathers day i was extemely busy and a bit fed up of having to work 13 hrs but looked forward to hopefully getting away to see him as he goes to bed early now.I was cross my boss didnt stick to the agreement and let this woman (who has phoned in ill lots and i ve covered) tell me i had to stay to the very end !!
.Some people who dont have very ill relatives havent got a clue what it is like tbh. Anyway any big things in the future i will decide myself not to work and i did still stay later than people this week as i am considerate of others and should thank my lovely Dad for that. The party will be paper plates and everyone bring food as Dad is too tired to do it all obviously.Dad hugged and kissed my sis when he saw her which made me happy.
I agree Alison life is way to short to hold grudges
Take care and i hope you are all enjoying the sun
love Paula xxx

User
Posted 02 Jul 2015 at 12:54

dads been unwell and sleeping alot i collected some antibiotics for him as he appears to have an infection again.i spoke to the hospice nurse who reassured me that this is just a blip and nothing more.It is quite hard not to fear the worst when someone who is usually so full of life is so listless.I hope everyone is loving the cooler day we are having today xxx

User
Posted 02 Jul 2015 at 14:16

Paula love, don't give up yet.
Dad is unwell obviously if he needs antibiotics and for someone in his situation coping with the current temperatures must be an added nightmare and enough to make even a healthy person listless.

The hospice nurse will be used to what happens at end of life and they are usually very good at judging these things so think positively.

As for work, what goes round, comes round. Not a naturally vindictive operson I can get very resentful of the kind of thing you are putting up with.
I had in my working life, only the helpful and kindest of colleagues who were there when I needed them so I do feel for you.

All the best, try and keep that chin up like you have all along. Dad is/will always be, proud of you
Take care

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 02 Jul 2015 at 22:30
Just checking in Paula, sorry dad is not great. Great advice from Sandra on the hospice nurses, they won't lie to you and do know their stuff. Cooler weather may help dad too, can't be easy when you are feeling unwell too.

Hugs

Allison xxxx

User
Posted 03 Jul 2015 at 00:25

Paula, I just wanted to say I am thinking about you - be brave & strong.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 03 Jul 2015 at 01:24
Paula

No more i can add other than to let you know I am thinking of you

Best wishes

Xx

Mo

User
Posted 03 Jul 2015 at 06:11

hi paula

we are all here for you lass and thinking of you

nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 03 Jul 2015 at 07:25

Aww thank you all.I am pleased the hospice nurse thinks maybe he was referred too soon.i know UTI s are common as we get older and it is hard not to think he maybe in the last bit when he seems so down and exhausted,and as we all know aggressive cancer can spread quickly his last chemo was March.
I have applied for another job which i am sure i will get as the lack of understanding from my colleagues is dreadful only one person asked how Dad was when i was half an hr late getting his antibiotics and one of the reasons i stayed was due to Mum and Dad being ill thinking a change of job would be too much.
Such lovely people on here who understand how hard it is to watch people we love dearly deal with all the stuff a terminal cancer diagnosis throws at them.
Mum is amazing as ever which makes me wonder how she does it in the house all the time with Dad as case of having too i guess
Love and thanks to you all
Paula xxx

User
Posted 03 Jul 2015 at 07:54

Paula, if anyone ever deserved to get a new job it is you - good luck :-)

You have probably said so in the past but have you tried waving the employment legislation at your current employer? As a carer for someone with a terminal illness, you are protected by law http://m.acas.org.uk/index.aspx?articleid=1362. Okay, you may have to exaggerate a little on why you are the carer rather than your mum but maybe not?

Carers UK is a great organisation - have you thought of contacting them?

Edited by member 03 Jul 2015 at 08:00  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 05 Jul 2015 at 07:02

Thank you Lynn ive read the articles.Some people who have left reported my colleagues for their behaviour.I will remind them at our meeting too about comments.People should be more understanding ive gone in later 3 times and made up the hrs not bad bearing in mind how ill they both been the last few yrs.Better go im on a 9 am -11pm lets hope i get the job ive applied for ha ha.Mum is dads carer but she has a disabled badge due to her major op the other yr i think she cant drive now either so they do sometimes get a bit stuck good job they have 5 adult children.
Dads getting over his infection he just has little ooomph to do much bless him
love to all and many thanks xxx

User
Posted 05 Jul 2015 at 07:20

good luck with the job interview

nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 11 Jul 2015 at 15:23

I havent heard from the other job yet which is a shame as my boss keeps rotaring me for 40 hr weeks on shft pattern and my contract is 19 due to change to 30.Also someone said something quite abusive which is all i need at the moment,
Dad has been much better and has antibiotics in case he needs them now rather than have to venture out while ill or ask anyone.His birthday is in 2 weeks though i dont think he wants a fuss not knowing how he will feel.With such a large family im sure he will get visits from us all one by one plus grandkids.
i hope you are all enjoying the sun while it is shining too Paula xxx

 
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