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Dads small cell cancer

User
Posted 18 Apr 2015 at 17:55

I was so sorry to hear your latest news Cookiegirl.

I hope you all find some comfort in the help he receives from the home care team.

He has lived his life as he wanted to, doing more in his "extra" time than many would have achieved.

God bless you all
Best Wishes
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 18 Apr 2015 at 18:11

Hi Paula,

Just to say I am also thinking of you. You have been a wonderful support to your Dad, keep us updated, remember, we are all here for you,

 

Fiona. x

User
Posted 18 Apr 2015 at 19:58
Hi Paula

I'm so sorry to hear this latest news. You dad must be some heck of a guy, he has really done so well given the type of cancer he has. I salute him and you, what a daughter you are, so supportive and loving, I know he will have appreciated everything you have done, I guess I can only say to try your best to enjoy your time together, go out, have laughs and meals and reminiss about good family times. It's what we did with my dad and what my girls do with their own dad, and maybe what we should all do, illness or no illness.

We will be thinking of you Paula.

Lots of love

Allison xxx

User
Posted 18 Apr 2015 at 20:15

Hi Paula,

I just also wanted to say how sorry I am to hear this news, you have been so strong and supportive to both your Mum and Dad all the way through the worst . I know that you will some  how find the strength for this next chapter. One thing I would say is although your Dad has the small cell type and yes it is very aggressive  Trevor also has spine and ribs affected and we are know  2years down the road from DX , so sometimes there is more time than we first imagine. 

Thinking of you,

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 18 Apr 2015 at 20:43

thank you all so much,Dad said he didnt ask for a prognosis then told my sister he wouldnt see the end of this yr,She is younger and adopted and cant accept he wont be here.I understand that he wont but as such a strong get on with it person i find it surreal to think of him not being around,
He has done so much for us as a family and Mum with her cancer battles the least we can do is whatever they need in the coming weeks,Dad told me he feels exhausted and has lost his appettite.He also told me he feels lucky compared to the younger people in the chemo unit at least he has no one to worry about.He knows we will look after Mum.
I am sorry to hear this Julie about Trevor and i know Mum has had almost 8 yrs on a year to live prognosis..my sis hopes this will be our Dad..love to all on this journey xxx

User
Posted 18 Apr 2015 at 21:03
Hi Paula

sorry to hear your latest news my heart goes out to you and Mum and. Dad.

You have been there for your parents they sound lovely people.

I know how hard this time is for you when you are so close our daughter was the best tonic for her Dad she never treated him any diffrent they both had a wicked sence of humour.

Send Mun and Dad my best wishes I am sure your strengh and love will help you through this as a family.

Will be thinking of you all

Carol x

User
Posted 19 Apr 2015 at 08:56

It is so sad when you reach this stage with a loved one. Make sure you look after yourself as you will need all your strength in the coming weeks. Thoughts with you, your family and your dad.

Paul

Stay Calm And Carry On.
User
Posted 19 Apr 2015 at 10:29
Hi Paula,

So sorry to hear your latest news. Thinking of you all at this difficult time.

Steve x

User
Posted 19 Apr 2015 at 13:07

Hello cookiegirl, I have read your posts especially your last ones with sadness for you and your family. I hope what time you all have together is precious for you all and comfortable for your dad. I remember when my mum was dying many years ago she said she would be alright as long as I was alright . It was hard to stay strong for her but I tried as best I could. It seems you are a kind and devoted daughter and your dad will be tenderly cared for. Georgina

User
Posted 19 Apr 2015 at 17:25

thank you all so much that nearly made me cry just in from a busy day at work and its quite hard to keep my feelings in all day when everyone is worrying about trivia (they are all early 20 s).
To be honest we ve had several more "last xmas or last birthdays" with Mum and now with Dad but this has still hit us quite hard i think the fact is we are never prepared to lose our parents and definately not to see them ill or defeated.
Dads Mum was an active 93 yr old.I just hope the next bit isnt too awful but we will all pull together as there are 5 of us and 13 grandkids thats what happens when you foster and adopt babies lol they have helped alot of youngsters that can be their legacy xx
sorry about your Mum georgina i always see them when im positive with cake or flowers bet they think im hard as nails :)

User
Posted 19 Apr 2015 at 19:46
Hi Paula

I am so sorry to hear of the news about your dad.

From reading your posts it is obvious that you are a wonderful daughter to your dad. He must be so proud of you.

I also have a daughter so I know from experience the special bond that develops between daughters and dads.

Thinking of you at this difficult time.

User
Posted 19 Apr 2015 at 22:32

Paula, sad news that you have been half-expecting and I imagine this will have hit your mum hard ... after all the years she has battled, she probably never considered that she could ever be having to face the prospect of being without her soul mate.

It may be that although a decision has been made that further treatment is not in dad's best interests, he is strong and will be able to have months with you still - maybe the summer warmth will lift him. I know that my father-in-law reached a stage when he got tired and made a decision to let go - but he had some jobs to do first and spent the summer creating happy memories for his family. Sometimes the strength of a soul and spirit cannot be explained by science - look at Old Al's old threads for hope xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 20 Apr 2015 at 05:33

yes Lyn we said the same about mum,A strange turn of events where she has luckily had longer than expected now this.She seems to be acting normally...calmly all dressed up looking lovely whenever i see her so ive no idea how she really feels.I hope Dad gets a few more sunny months and i know small cell is a nasty disease but Dad has given it a run for its money so far.Dad sleeps quite a bit its like someone just took his batteries out and he is no longer in duracell bunny mode going here there and everywhere.
Mum must be worried what will happen when her cancer returns as Dad took her to all appointments and made picnic hampers for her when she was admitted,,baked ham fresh bread and fruit he really looks after her.
Dads remaining hope is to spend time at home in their lovely garden photographing the birds as he is a keen photographer xxx

User
Posted 15 May 2015 at 16:29

Dad has had good and bad days.Bad was reaction to radiotherapy bad tum and tiredness and alcohol makes him feel awful now.good in that he has gone out a bit to events and seems in good spirits in himself.Mum got the ok at her oncologist check so that is a relief and they have met with the hospice at home nurses so when they are needed they have already gone through some things.To look at him you wouldnt know how bad he was and his pain is controlled by paracetamol i believe.
He told one family member he asked for a prognosis and was told 1 yr that was about march.i thought small cell was more aggressive so i hope he does get that long.
I did wonder has anyone ever been signed off work as their relative got worse?Mostly work takes the worry away i think but there must be a point when time spent with them is more precious than forcing yourself into work and some peoples comments are unbelievable and callous.
Love to all on here and your loved ones hope you get to enjoy some summer sun xxx

User
Posted 16 May 2015 at 09:32

Cookiegirl

Everyone has their own way of dealing with issues. The most important here regarding work is your own mental health, to which much more emphasis needs to be given Whether you work more or not is down to what your employer decides as much as you, but a mentally overstressed empolyee is not much good in the work place. Talk now about the situation with your manager(s), so that you have a mutual understanding of your positions.

Paul

Stay Calm And Carry On.
User
Posted 16 May 2015 at 12:52
Cookie girl

There is no standard leave allowance for this type of situation, but please see the Macmillan link below:

http://www.macmillan.org.uk/information-and-support/organising/work-and-cancer/if-youre-a-carer/your-rights-as-a-carer.html

I recently attended a staff management course and was advised as long as we followed the "must" regulations the "should or could" recommendations were open to interpretation by individual line managers i.e. home working, hours adjusting or flexible working if possible.

Sixfoottwo is right, you need to have a discussion early on with your manager by doing this ahead of time you may be able to bank some days to use at a later date. If you don't get the answer that you would like to hear perhaps you could contact a union rep for advice?

My GP did sign me off for 4 weeks with "domestic stress" when my husband had a heart attack but you may need to watch your employer's sick leave policy. My organisation has an 8 day trigger which requires a formal interview with the line manager, again it is down to the line manager to either "support" the absence or to use it to count towards future disciplinary proceedings (excessive sick absence). Unfortunately now even if you have a medical certificate, if your line manager can cite a business case for needing someone to do your job, you could possibly find your sick absence working against you. I would advise not mentioning to your manager (speaking as one) that you are considering going down the signed off route as you would then be "planning" to be absent in advance of the event.

Maureen

Edited by member 16 May 2015 at 14:09  | Reason: Not specified

"You're braver than you believe, stronger than you seem and smarter than you think." A A Milne
User
Posted 16 May 2015 at 14:29

Hi Paula,

That is some good advice from Maureen on the work situation I know how hard it is to have to put on a brave face at work when all you really want to do is be at home with those you love. Some employers are very understanding and helpful and some are not I am afraid I hope that yours are the former.

Good news on your Mum, thinking of you.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 16 May 2015 at 15:24

Thanks for the replies.I did mention Dads situation in feb and was told to be more positive!! Then he got worse as we all know and one day i was 2 hrs late for shift..i had informed work and was asked if i needed anything.I said reducing back to my contract 19 hrs.since then i get 36 usually last week 43 due to staff illness.To be honest sometimes the physical nature of work takes my mind off home i m trying to strike a balance of not getting too overwhelmed by Dad my teens and husband who is recovered from a heart attack but still gets depressed/anger issues.
One colleague hs said your parents are old and will die anyway deal with it(which i do).I have an excellent track record for work only 2 !/2 weeks off in a decade.I will try to keep on keeping on until such time as it is too difficult and hope that it is no time soon
Love to all and thanks for the advice xxxx

User
Posted 16 May 2015 at 15:52
I'm sorry to hear that your employer is no where near as supportive as they could be but unfortunately unless they break an employment law there is nothing you can do.

At my management course I was told the official line for dealing with someone who came to me and said they had a terminal illness would be to advise them that they may be dismissed due to excessive sick leave!!! 3/4 of the course were horrified and we said that we would arrange something to keep the person employed on full pay (we also have a death in service lump sum payment), unfortunately the other 1/4 said they would adhere to the dismissal process to ensure business continuity. - that made for a very strained afternoon indeed!

Would it be worth you approaching your HR department directly to clarify company policy?

Maureen

"You're braver than you believe, stronger than you seem and smarter than you think." A A Milne
User
Posted 24 May 2015 at 12:20

dad has been doing ok going out a few times now he has spent a whole day vomiting and in great pain from his hips.We know as a family hospital isnt a great place to be over banks hols as mum was barely seen when admitted before as many staff are off!!dad has a hospice nurse who can hopefully help out with these symptoms.

I am very cross with my husband who went on a drinking binge while i was working all day now ive phoned in work as ive had no sleep what with him and poor Dad (no way his fault).The kids are keeping my spirits up while we wait to see if dad needs admitting to hospital.

He had a scan this week results in 10 days. Love to all on this awful rollercoaster and on a positive note dad has had alot longer than expected so for that i am eternally grateful for advances in chemo and treatments available x

 
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