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Diagnosed 2005 T4 Dire Prognosis, but still here.....

User
Posted 24 May 2014 at 17:47

This conversation is a continuation of the archived thread 'T4 PCa in 2005: Dire Prognosis, but still here...'

which you can find here: [First Page] [Last Page]

 

Well, I hope those links worked!http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

User
Posted 24 Mar 2017 at 11:50

Dear Friends,

 

Today is an anniversary date I never dared hope I'd see, let alone be posting on here about it! 

Another milestone: 12 years and still counting.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

 

I'm so grateful I've had all these years to meet so many new friends and enjoy so many new experiences.

THANK YOU ALL

My urologist was obviously a first class muppet, saying I had just 2 or 3 years left back in 2005. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

 

That first PSA test was done on March 24th of that year, just three days before my 54th birthday. And here I am, 66 in a few days time, and knowing that whatever present I get this year will be a thousand times better than that terrifying, unfogettable one then.

Mind you, it did look pretty scary at the time - a PSA of 182, T4 tumour with spread to seminal vesicles and pelvic wall & floor. However, once I'd met my optimistic oncologist, everything changed for the better.

He said I was young enough and fit enough to have the tiger cells blasted by 37 sessions of RT

Since my RT & HT back then, I've been incredibly lucky that Intermittent HT has worked well for me.

And even more lucky that PCa still hasn't spread to bones or lymph nodes

Apparently, when I'm off treatment, and my PSA slowly rises from 1.0 to 20+ it's because I have 'micro mets'.

Those damn cancer cells never leave, but at least Zoladex can be used to hammer them down again.

 

I finished my latest round of HT with a Zoladex injection in October last year, and am hoping like crazy that I get a decent 'hormone holiday'. Two years would do me fine, as I know the length of those breaks shorten over the years. My first one in 2007 lasted 44 months. Man, I enjoyed that one. :P


What can I say but 'JUST BLOODY GLAD TO BE HERE!!http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

 

And I'm really looking forward to seeing as many of you as possible at The Mill On The Soar on Sat 1st July, the 10th anniversary of 'The Party At The Mill'

You don't know just how much those get-togethers have meant to me.

I know I've said this before, but we've made friendships that I wished had began 50 years ago.

Out of despair came so much happiness. Who'd have thought it? 

But, I can never forget the great friends who've now passed, from our old 'legends' through to our recent losses.

Every one of those men (and their partners) did so much to help us all.

They're now partying in the sky, and we'll meet again for sure.

That has to be true - Vera Lynn said so!http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

 

 

Very best wishes,

 

 

George

 

Edited by member 24 Mar 2017 at 15:38  | Reason: Not specified

User
Posted 24 Mar 2016 at 13:59

Dear Friends,

 

24th MARCH - It's here again - and today I find myself looking back on 11years survival on the roller coaster that is PCa.

I cannot believe I'm still here (and still being a pain in the ass).http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif

Not a lot has changed since March 24th 2015. In fact I thought it was looking like a good year without losses until my oldest friend Rob passed on, just 62, and more recently Prof. Jane Plant at the age of 71.

Both had such a great influence on my life and on the fight against cancer, and I'm sure many of you feel the loss of these two remarkable people deeply too.

 

In 2005, my 54th birthday present was that grim diagnosis and prognosis, just 3 days before.

And here I am, 65 on Sunday. Unbloodybelievable!!) http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif

Thank God that in my head I'm still 19yrs old and remain 'as daft as a brush' as Sir Bobby Robson once famously said about a certain brilliant but very silly footballer.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif

Intermittent HT has continued to be the most effective way (for me) of keeping the tiger cells quiet, and I've now been back on Zoladex since August last year. PSA had risen to 21.9 then and once back on HT it started to fall and is currently 0.410

I hope to be able to take another break from HT in about 6 months time. Hopefully that break will last for a year or so. However, I have noticed that the days of very long 'hormone holidays' are over.

Never mind, even a full year off the injections gives you a real boost in energy and mood.

I know that many of you are still fighting a far harder battle than mine, and my thoughts and prayers are with you.

PCa is still the cruel, sneaky and deadly enemy it's always been.

We must keep an eagle eye on it at all times.

 

Good luck and best wishes to you all,

 

George

 

(And yes, I'm STILL a poor, long suffering Sunderland supporter!)http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif

 

 

User
Posted 25 Mar 2017 at 14:16

Thank you all for your kind messages.

I hope I'll still be around for many more years of the battle, then I can look forward to more of your greetings.
They really cheer me up!

Two personal replies needed here:

1) Clare (Claret), Yes I am still on the Jane Plant programme. In 12 years I've had absolutely no dairy produce or red meat.
Looking at your husband's story, I can only say 'Great decision to go for Active Surveillance for a while'.

That's my own personal view, and I know it wouldn't do for everybody, however low the PSA at diagnosis.
I just think that urologists hurry too many guys into surgery before all options are considered.


2) Stu in Italy: Hey back at ya, me old marrer!' I hope your'e still loving life in Lunigiana.
It has to have the edge (just a little) on Geordieland! ; )

Like me you were diagosed in 2005, and although you had an RP, you've been on a roller coaster ride at times.
It's unbelievable that you've only just had an oncologist appointment. It just shows how well you've coped over almost 12 years.

May I wish you all the luck in the world in any forthcoming treatment. I feel that you'll do really well.
Mind you, I agree with Lyn about the boob op (rather you than me), please take it easy and rest up.

Now, just a footnote to my 12yrs on the PCa battlefield:

The last two years have been annoying to say the least. In fact in the last17 months, I've had only one month where I was totally clear of illness (infections, throat, chest etc). Absolutely none of the illnesses were PCa related, thank God.

But it's obvious that my immune system is totally compromised after so much treatment.

Even trying to boost it with Echinaea, big doses of Vit C and other supplements didn't work
Although I got through pneumonia OK between December and early February, within weeks I was hit again by infections needing more antibiotis and steroids.

Frankly, I was beating myself up about it, gettying totally pi$$ed off with feeling like a wuss, but now I've realised it's a small price to pay when I'm seeing PCa under control.

Now that spring is here, and very soon the sun will be blazing hot over Tyneside (yeah, right!), I intend to astound my cynical self by becoming as fit as a fiddle again. Being off HT will help a lot too.


See you at The Mill on 1st July, and if you haven't yet booked, please email me on:

georgehardy51@msn.com


Stay well my friends,

And once again, THANK YOU ALL,


George


User
Posted 23 Mar 2015 at 18:22

Tuesday 24th March 2015

 

Well, what do you know? I'm still here, 10 years after being told I was on my way out.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

My luck is holding, RT was effectively delivered, the first round of hormone therapy worked well, and intermittent HT has worked equally well for the last 7 years.

I'm about to return to treatment after a 15 month break as PSA is rising quickly again.

Results of a CT scan I'm having on April 1st (International Urologists' Day)http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif will decide whether I'm able to try Zoladex yet again.

 

My mantra remains the same: No dairy produce, no red meat, and I have daily veg juices, green tea, and a mountain of supplements.

And I stay very pro-active in the fight against those 'tiger cells', as they were called. Monthly PSA tests and double checking that any referrals for scans or whatever made by doctors has actually reached the department involved.

 

Too many errors still occur between you leaving a consulting room and waiting for a hospital letter to arrive.

If I don't hear anything in 14 days, I ring up the secretaries involved.

 

 

You'll probably have noticed that I've posted this on 23rd March. That's because I would probably forget to do it on 24th.

My memory and concentration is appalling. For instance, I even posted on B2PCa today with the topic heading 'St George's Day'.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

I'm never sure what month it is, never mind what day.

 

But hey, it's a small price to pay for my unexpected, continued survival.

And as I sit here thanking God I have survived such a bad prognosis, I don't rejoice. I just feel incredibly lucky to be still around.

I have now lost 40 good PCa friends in the last 8 years, and most of you will have lost many too, but to anyone 'newish' on here, I would say, look around the members of these forums. When you click on their profiles, you'll be uplifted and inspired to see how many long term survivors are amongst us now.

 

Hoping I'm here in March 2016 for another update (I'd better be...I've already booked the B2PCa 2016 annual 'do').http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

 

Looking forward to meeting hordes of you at this year's crazy weekend in June.

 

 

Stay well my friends,

 

 

George

Edited by member 23 Mar 2015 at 20:11  | Reason: Not specified

User
Posted 23 Mar 2015 at 22:47
Hi George

Congratulations on reaching 10years, long may it continue.

Lesley

User
Posted 25 Mar 2015 at 13:09

Thanks for your comments, guys (and ladies),

Stu? Your results over the years have been amazing! And yes, I miss my daily contact and banter with Terry Herbert, (who founded YANANOW).

He is a great loss to us all. I'll never forget the help he gave me, you, and so many others around the world. He left a great legacy, and arranged well in advance to ensure the site remains running well.

Looking forward to meeting you, 'Mr River Tweed' this year.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif Chris (Exbus) and Shirley will look after you. They are longtime friends of everyone here, and a lovely couple.

 

Lyn, did anyone ever tell you that you've a really cruel streak? And I don't just mean your penchant for severing limbs off defenceless creatures (MartenStoves had a lucky escape after his comment about your Harley!).http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

 

No, I mean your habit of mentioning  Newcastle United whenever we chat. It brings on a nervous tic. Five minutes chatting (or smoking) with you, and I'm a twitching wreck!http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

PS. Before Allister shouts at me, I'm smoking very few 'rollies' now, opting instead for my electronic vaper cig, which is in a lanyard hanging around my neck 16 hours a day. It suits me much better than a tie.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

 

User
Posted 24 Mar 2017 at 16:57
Congratulations, George.

Well deserved.

You help so many people by bringing them together, twice a year and I'm sure that without you I expect many of us would never meet.

Thank you.

Steve

User
Posted 24 May 2014 at 21:12
Well you are here so something worked,
User
Posted 24 May 2014 at 22:10

Hi George, pleased you found your way on here ...gradually more and more people are finding their way around the new forum. I am sure that we will all get used to it eventually

xx

Mo

User
Posted 23 Mar 2015 at 18:44
Lovin the fact that you are the man George and you are so right about the strength it gives newbies like me that there are so many of you who defy the odds. Maybe they need to change the odds for the better?

Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 23 Mar 2015 at 19:01

Just goes to show how being pro-active can help alongside treatments. Well done George.

User
Posted 23 Mar 2015 at 19:25

An encouraging read, a feel good story.  Well done indeed George.

dave

Edited by member 23 Mar 2015 at 19:26  | Reason: Not specified

User
Posted 23 Mar 2015 at 19:36

Well done George...without a doubt you shall be there in 2016

Bri

Edited by member 24 Mar 2015 at 07:38  | Reason: Not specified

User
Posted 23 Mar 2015 at 21:26

Hi George,
As a newbie here It is so reassuring to read your story, so thanks for posting. Congratulaions on your decade and your positive attitude towards all this....
With all best wishes,
Miss x

User
Posted 23 Mar 2015 at 22:38
Thanks for continuing to be an inspiration and hope for people newly diagnosed with advanced pca. Good for you ,10 years on . Congratulations. Cheers. Georgina
User
Posted 23 Mar 2015 at 22:55
George

my lovely Geordie friend and poor unfortunate Sunderland supporter!

I rejoice for you and anyone else who can defy all the odds as you have.

You have been there for me from day 1 of Mick's battle and every day since he lost it, just as you are for everyone else. You are without doubt a bolody good man.

xx

Mo

User
Posted 23 Mar 2015 at 23:21

Thank you, George, for your truly uplifting sentiments!

Best wishes,

Jacey

User
Posted 24 Mar 2015 at 06:27

Hi, George,

I've just recognised the link: the amazing review of the Jane Plant book on Amazon was written by someone who, from what I've read on your post on here, must be you! (I've just bought it, by the way, just from your review.) My lovely husband was given the results of the biopsy yesterday (Gleason 4+3; fast-tracking to scans etc) and I am still utterly devastated. Can't show him, of course, but have been on here weeping and not knowing where to turn through the early hours of today, and in my rambling around the internet, found the book recommended by someone else on here, read your review and felt a glimmer of hope. To find the reviewer feels like a lost woman finding footprints and a road sign. Just to let you know. Thank you.

User
Posted 24 Mar 2015 at 08:06

Fantastic, George, long may you continue. As you say....B2PCa !!!!!

 

Fiona x

User
Posted 24 Mar 2015 at 08:57

George, you are such an inspiration to so many, for Newbies to see your post it must give them such HOPE . "CONGRATULATIONS"

Now you can concentrate on the next 10 years.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 24 Mar 2015 at 09:46

George,

Well done, no forget that, VERY well done on achieving the 10 year milestone.

As regards concentration: 3 mile bus trip to get some special spuds then left them at the bus stop but I did bring other stuff back likes cakes etc. :) - as you say its a small price to pay

Keep doing well

Ray

User
Posted 24 Mar 2015 at 09:54

George,

you are a good man and an inspiration to all.

I do hope that you know that already.

 

Best of luck with the scan results, hopefully you can continue on with the zolly jabs for a few more years yet...

 

All the best, as always

 

Kevin 

 

User
Posted 24 Mar 2015 at 10:19

George

 

You are THE man http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif

 

I couldn't have got through those bleak early days without you and the others , most of whom have now sadly left us. You are a true gentlemen and deserve much more recognition for all the tireless work you have put in over those years. PCUK should have a special medal for folk like you http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif

 

I hope to make 10+ myself but it's getting harder http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif.

 

To Insanity & Beyond!

Nil desperandum

Allister

User
Posted 24 Mar 2015 at 12:44

Great news George.

Looking forward to a few beers with you at MOS.

Si

Don't deny the diagnosis; try to defy the verdict
User
Posted 24 Mar 2015 at 18:51

George,

You are an inspiration Sir!  Keep ducking and diving!

flexi

User
Posted 24 Mar 2015 at 19:20

I salute you George even if you do support the wrong football team!!  You have given many hope -long may it continue. El. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

User
Posted 24 Mar 2015 at 21:50
Hi George,

Pleased to see you posting and doing so well. I rarely post these days, but read an awful lot. I'm a year behind you, but then only T3b so more fortunate, I guess. In fact I consider myself very lucky, since my treatment in 2006 RP/RT my PSA has never reached 1 (one). Thanks for all your help along the way, I used to worry a lot in the early days, but both you and Terry gave me much appreciated reassure. Now I just get on with my life, in the process of building a new house, which helps to take my mind off health matters.

Keep battling on.

Cheers

Stu

User
Posted 24 Mar 2015 at 22:25
Thank you for sharing your PCa journey George - this is much appreciated.

Thank you also for the positive attitude you demonstrate.

I agree with your comments regarding a sense of humour - I have found this has helped, particularly in potentially embarrassing situations. I have read some your jokes on the B2PCa site - hilarious!

Sending best wishes.

User
Posted 24 Mar 2015 at 23:22

Well done George, a 10 year milestone. A great posting and what warm appreciation to you from others, richly deserved, I say.

Good to hear how J P is doing, I tend to follow Prof R T, the Pomi-T bloke, but we share your enthusiasm nevertheless as I'm only 9 and a half years since DX.

Allister, keep fighting!


All the very best to you all.


Chris.

PS, George, I like your "The left part of the brain doesn't know what's right and the right side doesn't know what's left" doing St George a month early indeed.

User
Posted 25 Mar 2015 at 00:42

Yes - 10 years is amazing, fantastic, wonderful but just imagine how much happier those years would have been if you were a Newcastle supporter.

Love you loads xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 25 Mar 2015 at 16:04
Well done George, you're a hero to all of us, and deserve to be.

Really looking forward to meeting you in person in June.

Steve.

User
Posted 25 Mar 2015 at 23:40

Congratulations George on your first 10 years and here's to the next 10.
Very best wishes for the future.

Barry
User
Posted 26 Mar 2015 at 20:05
Hi George, you are an inspiration with your determination and for a newly diagnosed member of this exclusive club it is remarkable how much positiveness and courage there is within it.

I know my level of diagnosis is better than lots of others with higher grades, mine is type2 with Gleason score of 3+4, but I think that at whatever level it is better to fight it and have a positive mental attitude. I am ex fire service and have always dealt with life's problems as they occur without worrying about what could be going to happen, it is better to see the enemy and destroy it rather than let worrying destroy you.

Humour is by far and away a great way to cope with stress I have always said that if I lost a leg I would just learn how to hop, the main thing is to stay positive but also from seeing the amount of compassion and knowledge in the short time that I have been a member I can draw strength and guidance for myself and my wife and maybe somewhere along the line my experiences may be helpful to other folk in the same situation.

Thanks for positiveness ..

User
Posted 26 Mar 2015 at 21:10

Thanks Barry. and Good Luck with your current leg problem.
Really looking forward to seeing you and Barbara again in June, so get well fast!
...........................................................................................................................................

Chris, your reply is packed with positivity, and I wish you well with every step of your journey.
I think you'll stroll it, (not hop it!).

Stress really is an ally of cancer, so we have to knock that on the head and laugh at it.
Easier said than done, I know because I suffered bad depression which struck out of the blue about five years ago.

Being very stubborn, I was determined to get through it without help, but finally I saw sense and saw the doctor.
Within a month or so I was fine again and I refuse to stress about anything these days.

Stay positive, and stay crazy (it helps!).

Good Luck,


George

User
Posted 24 Mar 2016 at 14:52
We are so very glad to have you here George, your story is a fantastic example of how intermittent HT can be very effective. Well done and keep up the good work!

Love Devonmaid xx

User
Posted 24 Mar 2016 at 15:00

Unbloodybelievable indeed George - and I love you to bits despite your awful taste in football teams xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 24 Mar 2016 at 16:55
Way to go George

next challenge is keeping that daft football team of yours in the premiership

see you at the Mill

xxx

Mo

User
Posted 24 Mar 2016 at 17:10

Excellent news George and if the special http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif birthday is this Sunday Happy Birthday and Happy Easter.  http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

If it was last then belated birthday wishes !!

Edited by member 24 Mar 2016 at 17:11  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 24 Mar 2017 at 12:39

Great news and an inspiration to us all
Long may it continue
Best wishes
Debby

User
Posted 24 Mar 2017 at 12:46

Well done George...as always your post will give so much hope to others

Take care

Bri

User
Posted 24 Mar 2017 at 13:34
Encouraging message.

It's so nice to read your positivity and good mood.

You seem to be a great guy, you deserve things going that good.

Congrats on being so and being doing so well.

The best to you,

Lola

User
Posted 24 Mar 2017 at 15:22

So happy for you and such an inspiration to others,😀

Viv
X

The only time you should look back is to see how far you have come
User
Posted 24 Mar 2017 at 15:22

So happy for you and such an inspiration to others,😀

Viv
X

The only time you should look back is to see how far you have come
User
Posted 24 Mar 2017 at 16:31
An inspirational post, well done and thank you
User
Posted 24 Mar 2017 at 16:44

I am just bloody glad you are still here too, George xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 24 Mar 2017 at 17:29

Many congrats.. amazing... I read from your profile you had a complete diet change after diagnosis.. did you keep it up.

My husbands PSA was 3.56 ( twice )in Nov 2016 leading up to his diagnosis... This week (pre FLA test) was 2.90

He cut out dairy etc on 1st January 2017 ( also started low dose aspirin with Vitamin D3 per the ADDaspirin trial)

Nochange in plan - 3 consults agree he has a large 3+3 tumour and will need treatment in the next 5 years ..so Monday he is having it treated. 2.90 however would not have had him sent to the urologist...

With a 27 year old son and a family history ( FIL died in June 2016 of PCa) I am super interested in your success story.

Thank you for sharing

User
Posted 24 Mar 2017 at 17:50

An inspiration!  Whatever you're doing, keep doing it!

Flexi

User
Posted 24 Mar 2017 at 19:41

Hia Marra,

Just thought I'd let you know that I'm still around, and bloody glad to be here as well. I had my first meeting today with an Oncolgist, having only consulted Urologists for the past 11 years. Unlike you I haven't yet reached a hormone holiday status, so pressing on with the HT. Last PSA of 2.97 sent them all into a spin, cosequently the meeting with the Onco, even my GP sent me for a PET scan. I've at long last been offered the removal of my man boobs, which will be next week.

All the best and long may you celebrate the 24th March.

Stu

Edited by member 24 Mar 2017 at 19:52  | Reason: Not specified

User
Posted 24 Mar 2017 at 20:32

Hi George,

Very glad the regime you are following is working well for you.

Barry
User
Posted 24 Mar 2017 at 20:32

Stuc that's great news but a horrible operation I think ... take good care and don't overdo it when you get back home.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 24 Mar 2017 at 23:04

Lovely cheering (and moving) post. Thanks George.

User
Posted 25 Mar 2017 at 10:49
WOW George what an achievement, I love to hear stories like yours, you give us all hope and long may you continue to do so.

Thank you

Roy

Edited by member 25 Mar 2017 at 10:50  | Reason: Not specified

User
Posted 25 Mar 2017 at 16:34

It will be worth it Stuc, I am sure x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 25 Mar 2017 at 19:17

Hi George,

Glad you are doing well.

For the first time this year I have managed to brace myself, strip to the waist, and catch a few rays of sunshine, boosting my Vit D, I am sure you hardy northerners have beat me to it in scorching Gateshead?

It can't be long before we smell the first Barbeque of summer, I am sure that sunshine will help the hormone holiday?

:)

Dave

User
Posted 25 Mar 2017 at 22:42
What a fabulous post George,

It is so positive for others newly diagnosed you are such a an inspiration 12 years on and looking and feeling GOOD.🤓

I will raise a glass to your Birthday and the next 12 years .

Keep going my Geordie friend.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 27 Mar 2017 at 15:37

Thank you George - really informative.

In the USA for a minimally invasive FLA. Will be following your lead on diet afterwards 100% ( ice cream last night seemed OK as a last meal before getting a prostate clean up today!)

You are inspirational!

Thank you for sharing

Clare

Show Most Thanked Posts
User
Posted 24 May 2014 at 21:12
Well you are here so something worked,
User
Posted 24 May 2014 at 22:10

Hi George, pleased you found your way on here ...gradually more and more people are finding their way around the new forum. I am sure that we will all get used to it eventually

xx

Mo

User
Posted 25 May 2014 at 15:04

Thanks Mo and Allison,

Putting in Links for this story was easy enough, but the most important thing was placing the post in the new section.
Luckily, that was easy too,because there is actually a topic named 'Personal Stories' on the NEW menu.

However, there is no real place to transfer old 'Treatment' posts, as 'Getting Rid Of Prostate Cancer' isn't an appropriate topic title, is it?

And Mo, I still can't understand why my post to you got lost on here yesterday.
I've done quite a few posts and that's the first time that has happened.
Glad you got my email anyway.

See you all sooooon!


George

.
.

.
.
.
.
.
.
.

Edited by member 25 May 2014 at 15:05  | Reason: Not specified

User
Posted 23 Mar 2015 at 18:22

Tuesday 24th March 2015

 

Well, what do you know? I'm still here, 10 years after being told I was on my way out.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

My luck is holding, RT was effectively delivered, the first round of hormone therapy worked well, and intermittent HT has worked equally well for the last 7 years.

I'm about to return to treatment after a 15 month break as PSA is rising quickly again.

Results of a CT scan I'm having on April 1st (International Urologists' Day)http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif will decide whether I'm able to try Zoladex yet again.

 

My mantra remains the same: No dairy produce, no red meat, and I have daily veg juices, green tea, and a mountain of supplements.

And I stay very pro-active in the fight against those 'tiger cells', as they were called. Monthly PSA tests and double checking that any referrals for scans or whatever made by doctors has actually reached the department involved.

 

Too many errors still occur between you leaving a consulting room and waiting for a hospital letter to arrive.

If I don't hear anything in 14 days, I ring up the secretaries involved.

 

 

You'll probably have noticed that I've posted this on 23rd March. That's because I would probably forget to do it on 24th.

My memory and concentration is appalling. For instance, I even posted on B2PCa today with the topic heading 'St George's Day'.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

I'm never sure what month it is, never mind what day.

 

But hey, it's a small price to pay for my unexpected, continued survival.

And as I sit here thanking God I have survived such a bad prognosis, I don't rejoice. I just feel incredibly lucky to be still around.

I have now lost 40 good PCa friends in the last 8 years, and most of you will have lost many too, but to anyone 'newish' on here, I would say, look around the members of these forums. When you click on their profiles, you'll be uplifted and inspired to see how many long term survivors are amongst us now.

 

Hoping I'm here in March 2016 for another update (I'd better be...I've already booked the B2PCa 2016 annual 'do').http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

 

Looking forward to meeting hordes of you at this year's crazy weekend in June.

 

 

Stay well my friends,

 

 

George

Edited by member 23 Mar 2015 at 20:11  | Reason: Not specified

User
Posted 23 Mar 2015 at 18:44
Lovin the fact that you are the man George and you are so right about the strength it gives newbies like me that there are so many of you who defy the odds. Maybe they need to change the odds for the better?

Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 23 Mar 2015 at 18:52

Hello George.

Welcome back! I'm five and a half years post DX and although the future's uncertain, I'm certainly intending on being around for a while.

Well done on your decade!!

Bazza

User
Posted 23 Mar 2015 at 19:01

Just goes to show how being pro-active can help alongside treatments. Well done George.

User
Posted 23 Mar 2015 at 19:25

An encouraging read, a feel good story.  Well done indeed George.

dave

Edited by member 23 Mar 2015 at 19:26  | Reason: Not specified

User
Posted 23 Mar 2015 at 19:36

Well done George...without a doubt you shall be there in 2016

Bri

Edited by member 24 Mar 2015 at 07:38  | Reason: Not specified

User
Posted 23 Mar 2015 at 21:26

Hi George,
As a newbie here It is so reassuring to read your story, so thanks for posting. Congratulaions on your decade and your positive attitude towards all this....
With all best wishes,
Miss x

User
Posted 23 Mar 2015 at 22:38
Thanks for continuing to be an inspiration and hope for people newly diagnosed with advanced pca. Good for you ,10 years on . Congratulations. Cheers. Georgina
User
Posted 23 Mar 2015 at 22:47
Hi George

Congratulations on reaching 10years, long may it continue.

Lesley

User
Posted 23 Mar 2015 at 22:55
George

my lovely Geordie friend and poor unfortunate Sunderland supporter!

I rejoice for you and anyone else who can defy all the odds as you have.

You have been there for me from day 1 of Mick's battle and every day since he lost it, just as you are for everyone else. You are without doubt a bolody good man.

xx

Mo

User
Posted 23 Mar 2015 at 23:21

Thank you, George, for your truly uplifting sentiments!

Best wishes,

Jacey

User
Posted 24 Mar 2015 at 06:27

Hi, George,

I've just recognised the link: the amazing review of the Jane Plant book on Amazon was written by someone who, from what I've read on your post on here, must be you! (I've just bought it, by the way, just from your review.) My lovely husband was given the results of the biopsy yesterday (Gleason 4+3; fast-tracking to scans etc) and I am still utterly devastated. Can't show him, of course, but have been on here weeping and not knowing where to turn through the early hours of today, and in my rambling around the internet, found the book recommended by someone else on here, read your review and felt a glimmer of hope. To find the reviewer feels like a lost woman finding footprints and a road sign. Just to let you know. Thank you.

User
Posted 24 Mar 2015 at 08:06

Fantastic, George, long may you continue. As you say....B2PCa !!!!!

 

Fiona x

User
Posted 24 Mar 2015 at 08:57

George, you are such an inspiration to so many, for Newbies to see your post it must give them such HOPE . "CONGRATULATIONS"

Now you can concentrate on the next 10 years.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 24 Mar 2015 at 09:46

George,

Well done, no forget that, VERY well done on achieving the 10 year milestone.

As regards concentration: 3 mile bus trip to get some special spuds then left them at the bus stop but I did bring other stuff back likes cakes etc. :) - as you say its a small price to pay

Keep doing well

Ray

User
Posted 24 Mar 2015 at 09:54

George,

you are a good man and an inspiration to all.

I do hope that you know that already.

 

Best of luck with the scan results, hopefully you can continue on with the zolly jabs for a few more years yet...

 

All the best, as always

 

Kevin 

 

 
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