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Diagnosed 2005 T4 Dire Prognosis, but still here.....

User
Posted 24 Mar 2017 at 17:50

An inspiration!  Whatever you're doing, keep doing it!

Flexi

User
Posted 24 Mar 2017 at 19:41

Hia Marra,

Just thought I'd let you know that I'm still around, and bloody glad to be here as well. I had my first meeting today with an Oncolgist, having only consulted Urologists for the past 11 years. Unlike you I haven't yet reached a hormone holiday status, so pressing on with the HT. Last PSA of 2.97 sent them all into a spin, cosequently the meeting with the Onco, even my GP sent me for a PET scan. I've at long last been offered the removal of my man boobs, which will be next week.

All the best and long may you celebrate the 24th March.

Stu

Edited by member 24 Mar 2017 at 19:52  | Reason: Not specified

User
Posted 24 Mar 2017 at 20:32

Hi George,

Very glad the regime you are following is working well for you.

Barry
User
Posted 24 Mar 2017 at 20:32

Stuc that's great news but a horrible operation I think ... take good care and don't overdo it when you get back home.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 24 Mar 2017 at 23:04

Lovely cheering (and moving) post. Thanks George.

User
Posted 25 Mar 2017 at 10:49
WOW George what an achievement, I love to hear stories like yours, you give us all hope and long may you continue to do so.

Thank you

Roy

Edited by member 25 Mar 2017 at 10:50  | Reason: Not specified

User
Posted 25 Mar 2017 at 14:16

Thank you all for your kind messages.

I hope I'll still be around for many more years of the battle, then I can look forward to more of your greetings.
They really cheer me up!

Two personal replies needed here:

1) Clare (Claret), Yes I am still on the Jane Plant programme. In 12 years I've had absolutely no dairy produce or red meat.
Looking at your husband's story, I can only say 'Great decision to go for Active Surveillance for a while'.

That's my own personal view, and I know it wouldn't do for everybody, however low the PSA at diagnosis.
I just think that urologists hurry too many guys into surgery before all options are considered.


2) Stu in Italy: Hey back at ya, me old marrer!' I hope your'e still loving life in Lunigiana.
It has to have the edge (just a little) on Geordieland! ; )

Like me you were diagosed in 2005, and although you had an RP, you've been on a roller coaster ride at times.
It's unbelievable that you've only just had an oncologist appointment. It just shows how well you've coped over almost 12 years.

May I wish you all the luck in the world in any forthcoming treatment. I feel that you'll do really well.
Mind you, I agree with Lyn about the boob op (rather you than me), please take it easy and rest up.

Now, just a footnote to my 12yrs on the PCa battlefield:

The last two years have been annoying to say the least. In fact in the last17 months, I've had only one month where I was totally clear of illness (infections, throat, chest etc). Absolutely none of the illnesses were PCa related, thank God.

But it's obvious that my immune system is totally compromised after so much treatment.

Even trying to boost it with Echinaea, big doses of Vit C and other supplements didn't work
Although I got through pneumonia OK between December and early February, within weeks I was hit again by infections needing more antibiotis and steroids.

Frankly, I was beating myself up about it, gettying totally pi$$ed off with feeling like a wuss, but now I've realised it's a small price to pay when I'm seeing PCa under control.

Now that spring is here, and very soon the sun will be blazing hot over Tyneside (yeah, right!), I intend to astound my cynical self by becoming as fit as a fiddle again. Being off HT will help a lot too.


See you at The Mill on 1st July, and if you haven't yet booked, please email me on:

georgehardy51@msn.com


Stay well my friends,

And once again, THANK YOU ALL,


George


User
Posted 25 Mar 2017 at 15:49

Hi George,

I'm still loving it here in Italy, even Brexit won't drive me away. If I have to I'll become an Italian citizen. Just because it's my first visit to an Onclogist doesn't mean that I haven't been through the trend mill with my Urologists over the past years. Getting a bit fed up with all these injections and pills. The Oncolgist gives me the willies, not much confidence in the guy.

Lyn, I guess I don't know what I'm letting myself in for, but it's a bit embarrassing lying by the swimming pool and I have boobs bigger than most of the ladies lying around the pool. I understand it can be quite painful, in for a penny in for a pound. But I'm actually looking forward to the op.

Stu

User
Posted 25 Mar 2017 at 16:34

It will be worth it Stuc, I am sure x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 25 Mar 2017 at 19:17

Hi George,

Glad you are doing well.

For the first time this year I have managed to brace myself, strip to the waist, and catch a few rays of sunshine, boosting my Vit D, I am sure you hardy northerners have beat me to it in scorching Gateshead?

It can't be long before we smell the first Barbeque of summer, I am sure that sunshine will help the hormone holiday?

:)

Dave

User
Posted 25 Mar 2017 at 22:42
What a fabulous post George,

It is so positive for others newly diagnosed you are such a an inspiration 12 years on and looking and feeling GOOD.🤓

I will raise a glass to your Birthday and the next 12 years .

Keep going my Geordie friend.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 27 Mar 2017 at 15:37

Thank you George - really informative.

In the USA for a minimally invasive FLA. Will be following your lead on diet afterwards 100% ( ice cream last night seemed OK as a last meal before getting a prostate clean up today!)

You are inspirational!

Thank you for sharing

Clare

User
Posted 27 Mar 2017 at 16:35

Yes George, as both Lynne and Steve say, without you our GET TOGETHERS wouldn't happen, so you've got to keep up the JP for another 10 years at least!

Looking forward to Mill on Saur, it would be good if some of the "Newbies" could join us too!


Email George to book! Now. (I've still got a few of my HUGS I can give out)

Chris.

User
Posted 27 Mar 2017 at 18:51
George you were one of the first who reached out to me when I was first diagnosed. Your heart and efforts are always in the right place, if anyone deserves to beat this then you do. Take care, Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

 
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