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Diagnosed 2005 T4 Dire Prognosis, but still here.....

User
Posted 24 Mar 2015 at 10:19

George

 

You are THE man http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif

 

I couldn't have got through those bleak early days without you and the others , most of whom have now sadly left us. You are a true gentlemen and deserve much more recognition for all the tireless work you have put in over those years. PCUK should have a special medal for folk like you http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif

 

I hope to make 10+ myself but it's getting harder http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif.

 

To Insanity & Beyond!

Nil desperandum

Allister

User
Posted 24 Mar 2015 at 12:28

Dear All,

 

Thank you for your kind, encouraging words.

As always amongst this great group of friends, I saw in your posts determination, hope and priceless humour too!http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif

Where would we be if we couldn't sometimes laugh at the situations we find ourselves in?

Steph, your post really touched me. I am so glad you found a ray of light while you frantically searched the web for info after your husband's diagnosis.

Every one of us here has been where you are now. The memory of those dark, scary early days never leaves us.

In 2005 I was doing the same as you. Within days I found the work of Prof Jane Plant, and it was like a 'eureka moment'.

Then the very first PCa website I found was YANANOW. It opened my eyes and filled me with hope when I saw guys with T4 tumours still around after a lot of years. I hadn't thought it possible after the sheer pessimism of my (ex) urologist.

I joined these forums later that year and so began 10 years of the greatest camaraderie I have ever experienced.

The good people here go out of their way to help you. It's been my pleasure to have gotten to know and meet so many of them of the years.

The depth of experience and knowledge amongst them is profound, and we have some real 'stars' here who have continued to defy much greater odds than I was up against. They 'blow me away' with their courage and wisdom.

 

Steph, I am so glad you mentioned Jane Plant. Yes, I wrote a review a while back and you've reminded me I must write another.

Those of us who have tried to keep to her recommendations have chatted about our feelings on the diet.

We agree that while it isn't a cure, it does seem to keep the cancer under the cosh for longer periods than we ever expected.

 

 

Jane's cancer returned a couple of years ago, and she spoke of it at our June B2pCa 'do. She is once again doing very well.

Here's the latest news on her.

On Sunday 1st February Jane was  70 years old, 28 years after she was first diagnosed with breast cancer and 23 years after she was told she had 2 months to live 'if we are lucky'. On Wednesday 28th January she was told by her consultant oncologist she remains all clear with a tumour marker like that of a normal woman.

 

Good luck to everyone,

Keep on fighting, and most of all,

Keep your sense of humour, even in the hardest days.

 

 

 

George

 

 

User
Posted 24 Mar 2015 at 12:44

Great news George.

Looking forward to a few beers with you at MOS.

Si

Don't deny the diagnosis; try to defy the verdict
User
Posted 24 Mar 2015 at 18:51

George,

You are an inspiration Sir!  Keep ducking and diving!

flexi

User
Posted 24 Mar 2015 at 19:20

I salute you George even if you do support the wrong football team!!  You have given many hope -long may it continue. El. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

User
Posted 24 Mar 2015 at 21:50
Hi George,

Pleased to see you posting and doing so well. I rarely post these days, but read an awful lot. I'm a year behind you, but then only T3b so more fortunate, I guess. In fact I consider myself very lucky, since my treatment in 2006 RP/RT my PSA has never reached 1 (one). Thanks for all your help along the way, I used to worry a lot in the early days, but both you and Terry gave me much appreciated reassure. Now I just get on with my life, in the process of building a new house, which helps to take my mind off health matters.

Keep battling on.

Cheers

Stu

User
Posted 24 Mar 2015 at 22:25
Thank you for sharing your PCa journey George - this is much appreciated.

Thank you also for the positive attitude you demonstrate.

I agree with your comments regarding a sense of humour - I have found this has helped, particularly in potentially embarrassing situations. I have read some your jokes on the B2PCa site - hilarious!

Sending best wishes.

User
Posted 24 Mar 2015 at 23:22

Well done George, a 10 year milestone. A great posting and what warm appreciation to you from others, richly deserved, I say.

Good to hear how J P is doing, I tend to follow Prof R T, the Pomi-T bloke, but we share your enthusiasm nevertheless as I'm only 9 and a half years since DX.

Allister, keep fighting!


All the very best to you all.


Chris.

PS, George, I like your "The left part of the brain doesn't know what's right and the right side doesn't know what's left" doing St George a month early indeed.

User
Posted 25 Mar 2015 at 00:42

Yes - 10 years is amazing, fantastic, wonderful but just imagine how much happier those years would have been if you were a Newcastle supporter.

Love you loads xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 25 Mar 2015 at 13:09

Thanks for your comments, guys (and ladies),

Stu? Your results over the years have been amazing! And yes, I miss my daily contact and banter with Terry Herbert, (who founded YANANOW).

He is a great loss to us all. I'll never forget the help he gave me, you, and so many others around the world. He left a great legacy, and arranged well in advance to ensure the site remains running well.

Looking forward to meeting you, 'Mr River Tweed' this year.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif Chris (Exbus) and Shirley will look after you. They are longtime friends of everyone here, and a lovely couple.

 

Lyn, did anyone ever tell you that you've a really cruel streak? And I don't just mean your penchant for severing limbs off defenceless creatures (MartenStoves had a lucky escape after his comment about your Harley!).http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

 

No, I mean your habit of mentioning  Newcastle United whenever we chat. It brings on a nervous tic. Five minutes chatting (or smoking) with you, and I'm a twitching wreck!http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

PS. Before Allister shouts at me, I'm smoking very few 'rollies' now, opting instead for my electronic vaper cig, which is in a lanyard hanging around my neck 16 hours a day. It suits me much better than a tie.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

 

User
Posted 25 Mar 2015 at 16:04
Well done George, you're a hero to all of us, and deserve to be.

Really looking forward to meeting you in person in June.

Steve.

User
Posted 25 Mar 2015 at 17:04

Now that's what I've been waiting to hear Stevehttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

 

You're sounding a lot better, and you'll enjoy the June 'do', specially taking photos.

Some (I can guarantee)http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif could be sold to newspapers, such is the outlandish behaviour of the sane people there.

The complete nutters, on the other hand, behave impeccably!http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

 

 

Looking forward to meeting you soon.

 

Stay strong.

 

User
Posted 25 Mar 2015 at 23:40

Congratulations George on your first 10 years and here's to the next 10.
Very best wishes for the future.

Barry
User
Posted 26 Mar 2015 at 20:05
Hi George, you are an inspiration with your determination and for a newly diagnosed member of this exclusive club it is remarkable how much positiveness and courage there is within it.

I know my level of diagnosis is better than lots of others with higher grades, mine is type2 with Gleason score of 3+4, but I think that at whatever level it is better to fight it and have a positive mental attitude. I am ex fire service and have always dealt with life's problems as they occur without worrying about what could be going to happen, it is better to see the enemy and destroy it rather than let worrying destroy you.

Humour is by far and away a great way to cope with stress I have always said that if I lost a leg I would just learn how to hop, the main thing is to stay positive but also from seeing the amount of compassion and knowledge in the short time that I have been a member I can draw strength and guidance for myself and my wife and maybe somewhere along the line my experiences may be helpful to other folk in the same situation.

Thanks for positiveness ..

User
Posted 26 Mar 2015 at 21:10

Thanks Barry. and Good Luck with your current leg problem.
Really looking forward to seeing you and Barbara again in June, so get well fast!
...........................................................................................................................................

Chris, your reply is packed with positivity, and I wish you well with every step of your journey.
I think you'll stroll it, (not hop it!).

Stress really is an ally of cancer, so we have to knock that on the head and laugh at it.
Easier said than done, I know because I suffered bad depression which struck out of the blue about five years ago.

Being very stubborn, I was determined to get through it without help, but finally I saw sense and saw the doctor.
Within a month or so I was fine again and I refuse to stress about anything these days.

Stay positive, and stay crazy (it helps!).

Good Luck,


George

User
Posted 24 Mar 2016 at 13:59

Dear Friends,

 

24th MARCH - It's here again - and today I find myself looking back on 11years survival on the roller coaster that is PCa.

I cannot believe I'm still here (and still being a pain in the ass).http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif

Not a lot has changed since March 24th 2015. In fact I thought it was looking like a good year without losses until my oldest friend Rob passed on, just 62, and more recently Prof. Jane Plant at the age of 71.

Both had such a great influence on my life and on the fight against cancer, and I'm sure many of you feel the loss of these two remarkable people deeply too.

 

In 2005, my 54th birthday present was that grim diagnosis and prognosis, just 3 days before.

And here I am, 65 on Sunday. Unbloodybelievable!!) http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif

Thank God that in my head I'm still 19yrs old and remain 'as daft as a brush' as Sir Bobby Robson once famously said about a certain brilliant but very silly footballer.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif

Intermittent HT has continued to be the most effective way (for me) of keeping the tiger cells quiet, and I've now been back on Zoladex since August last year. PSA had risen to 21.9 then and once back on HT it started to fall and is currently 0.410

I hope to be able to take another break from HT in about 6 months time. Hopefully that break will last for a year or so. However, I have noticed that the days of very long 'hormone holidays' are over.

Never mind, even a full year off the injections gives you a real boost in energy and mood.

I know that many of you are still fighting a far harder battle than mine, and my thoughts and prayers are with you.

PCa is still the cruel, sneaky and deadly enemy it's always been.

We must keep an eagle eye on it at all times.

 

Good luck and best wishes to you all,

 

George

 

(And yes, I'm STILL a poor, long suffering Sunderland supporter!)http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif

 

 

User
Posted 24 Mar 2016 at 14:52
We are so very glad to have you here George, your story is a fantastic example of how intermittent HT can be very effective. Well done and keep up the good work!

Love Devonmaid xx

User
Posted 24 Mar 2016 at 15:00

Unbloodybelievable indeed George - and I love you to bits despite your awful taste in football teams xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 24 Mar 2016 at 16:55
Way to go George

next challenge is keeping that daft football team of yours in the premiership

see you at the Mill

xxx

Mo

User
Posted 24 Mar 2016 at 17:10

Excellent news George and if the special http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif birthday is this Sunday Happy Birthday and Happy Easter.  http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

If it was last then belated birthday wishes !!

Edited by member 24 Mar 2016 at 17:11  | Reason: Not specified

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