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User
Posted 21 Jun 2016 at 19:06
Chris

I am so sorry to read this after all you have been through. Is there any chance of the psa rising because of infection.?

Several folks asked after you this weekend. I hope we can all get together soon.

Xxx

Mo

User
Posted 21 Jun 2016 at 19:10

Hi Chris,

Sorry to read of this apparent rise or is it a "spike". Could it be just that? A "spike"? Hopefully!

Missed seeing you both at MOTS.

Maybe we can rectify this sooner rather than?

atb to you both.

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 21 Jun 2016 at 20:30
I am sorry to hear of the PSA rise and I can understand you feeling gutted.

I am very grateful for the support you have given to the forum and to me and the positive attitude you demonstrate despite great difficulties.

Sending you and your wife my best wishes.

User
Posted 21 Jun 2016 at 20:36
Chris,

Really sorry to have read this news. As ever, wishing you all the best. Stay strong. You're such a help to so many of us here, our turn to help you.

John

User
Posted 21 Jun 2016 at 21:24

Fingers crossed it's either infection or all that messing about with catheters and dilators? Hoping things settle down for you.

Rosy

User
Posted 21 Jun 2016 at 21:49
Hi Chris,

So sorry to hear of the PSA rise, let's hope it's just something unconnected with cancer that caused the rise.

I fully understand the way you must be feeling just now.

Have faith.

Steve

User
Posted 22 Jun 2016 at 05:46

Thinking of you Chris and wishing you good news (ie as in infection!)

We can't control the winds - but we can adjust our sails
User
Posted 22 Jun 2016 at 08:02
Ah Chris

That's really tough to hear after everything you've been through. I'm not sure if this helps but the urologist said not to test for PSA at the hospital on Monday as it would be raised due to the RT and the ongoing infection. Therefore it wouldn't be an accurate result. I'm hoping this is what's caused your rise. As others have said, you are such a kind man, always there with a helpful word. I hope we can be there for you as I know this is hard to bear.

Lots of love

Devonmaid xxx

User
Posted 22 Jun 2016 at 08:15

sorry to read of the PSA result Chris hopefully a blip due to your other problems, all the best mate Andy

User
Posted 22 Jun 2016 at 16:52

Chris,

Sorry to read this.

Can only repeat what others have said and hope this is a temporary blip.

KRO...

User
Posted 22 Jun 2016 at 18:12

Thanks to all of you for your messages and support.

From the pattern of results I was expecting a rise but it still comes as a shock when it actually happens. Right from the time of a less than favourable histology report and a 30 percent chance a bio chemical return I have always hoped to beat the odds.

The options yesterday were a more aggressive approach to the stricture and risk major incontinence and a further op for an AUS, or a major operation for reconstruction of the urethra or leave it alone for a while to see how it goes. The concern of the incontinence was it affecting future possible RT.

Next PSA is in three months, as the consultant said I have still to reach the 0.2 threshold. Am I right that doubling times are irrelevant at such low readings?

This disease does involve a lot of waiting for the next step, so no real plan in place but I might make some changes to the diet.

Thoughts on points raised by some of you.

Recent urine tests have shown slight infection when dipped at GPs but always come back clear from lab tests.

I think the only spike I had was one “dip” from a series of steadily increasing readings.

My Urology nurse also said the rise could be from all the messing about but when pushed said it was only a guess.

I had my PSA test before the scan to make sure there was no influence on the outcome.

Will be good to meet up again and will try to make Mots next year and maybe Euston this year.

Some stats from the stricture, over the last few weeks, the flow has varied between 0.8mls/sec and 14mls/sec. I had to have a full bladder for the kidney scan and drank the recommended 500mls before the scan, post scan the flow was 1.7mls/sec. Three am the next morning the flow was 14mls/sec. The hospital flow on arrival yesterday again after drinking 500 mls of water was back down at 1.7mls/sec with a max flow of 4 mls/sec. The consultant also said constipation can cause retention.

I am still fortunate to be in a better place than many on here, and as I often say still here to moan about it. Once again thanks for the support.

Tanks Chris

User
Posted 22 Jun 2016 at 18:27

I think more people will meet up next year , whether it be MOTS or anywhere else. I'd love to meet some of the people I've 'met' on here , I truly would. It's an elite if slightly sad band of men and partners.
Chris , I think doubling time is always important , probably more so than the reading itself. Lyn probably knows better !! My post surgery psa was 1.5 and doubling time was 6.5 weeks which was a bit grim tbh. But you are still totally on a potentially curative path. I'm sure you could try to stamp your feet and get RT early. Yes , the norm is 0.2 but my friend was offered it recently after only two rises , and he is still only psa 0.9. So ASK
I'm so sorry you have had so many post-op complications mate. I've winced in sympathy for you over and over. There don't seem to be many winners here , truth be told , but there are understanding friends always. You can still beat this !
Chris

If life gives you lemons , then make lemonade

User
Posted 22 Aug 2016 at 10:25
Hi

Just in the theatre waiting area before my ninth urethral procedure. Taking bets on the source of the problem.

1 I dragged the bladder lining into the urethra,

2 another clip

3 a kidney stone,

4 scar tissue,

5 an arm off the robot

6 A bit of Lego.

I will update you later.

😁. Thanks Chris

User
Posted 22 Aug 2016 at 11:28

Hi Chris,

 

Wishing you the very best of outcomes today, after this ninth procedure.

You have been through so may procedures that it makes me wince just reading about them.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

You're a very brave guy!

Hoping to hear very good news from you in the next week or so.

 

All the best,

 

George

User
Posted 22 Aug 2016 at 11:41

Lego is my bet. It gets everywhere. All the best Chris. You're a brave guy

If life gives you lemons , then make lemonade

User
Posted 22 Aug 2016 at 11:47

Hope it went well Chris and they got the little Lego man out in one piece!!

******

We can't control the winds - but we can adjust our sails
User
Posted 22 Aug 2016 at 17:18

hope its good news today Chris, take care Andy

User
Posted 22 Aug 2016 at 17:46
Thanks for your replies, and the winner was another clip migration.

Thanks Chris

User
Posted 22 Aug 2016 at 18:43

Good to hear that it was nothing more problematic or sinister Chris.

atb

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 22 Aug 2016 at 18:54
Ouch Chris, you have our sympathy. Hope it settles down again quickly.

Lots of love Devonmaid

 
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