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User
Posted 22 Aug 2016 at 20:40
Hi Chris you really have been through it. So glad to hear though nothing nasty. Jx
User
Posted 22 Aug 2016 at 21:16
Chris

I had visions of you coming back to say it was a Pokemon and half the medical team were out trying to catch it.

Seriously though, thank goodness it was nothing more sinister, you have been through so much already I think you are amazing for managing to retain your lovely sense of hunour.

Best wishes to you and Dawn as always

xx

Mo

User
Posted 22 Aug 2016 at 22:34

Pleased to hear that it was 'only' a clip - have you asked how many more of the b*****s there might be floating around????

Hope you are on the mend soon

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Aug 2016 at 23:04

Hope it's sorted the problem now. But where's the lego man??

User
Posted 23 Aug 2016 at 00:51
Hi Chris,

Glad you got things sorted. Lets hope for a quieter time now, you've been through enough.

All the Best,

Steve

User
Posted 23 Aug 2016 at 06:01

Blxxxy hell I thought the research suggested there was a chance of one migrated clip. Is this the 2nd or 3rd. You have been so unlucky with this Chris but good to see you retain your sense of humour.
I hope you turn that corner soon.

Bri

User
Posted 23 Aug 2016 at 11:22
Thank you all for your kind messages.

Back home now with another catheter for 10 days, surgeon is taking no chances this time.

To answer the questions, this is Clip number three and despite asking how many clips were used, I never seem to get a totally straight answer but he did say he used two either side of the urethra so at least four.

A few of us who had surgery at the same time did have clip migrations, but the trauma of the way the catheter was removed and the type of catheter seem to be a contributing factor to the migration. Since changing the type of catheter used there have not been any other migrations.

The neck has been stretched to size 20, glad I was under general anaesthetic. After six weeks of frequent night visits to the loo I should get at least ten nights of undisturbed sleep.

Rosy, the lego bit goes back to an earlier post were I said a piece of plastic had been found in the bladder, Lyn enquired if it was a bit of Lego.

Just need to get the flowers or chocolates.

Apart from taking 8 hours (6pm _2am) to get my own medication written up by a doctor and 4 requests for a clean gown to replace my wet gown the care from the staff and care were first class. A night on a noisy ward in a bed with a waterproof mattress with a couple of waterproof bed guards on a warm August night is not top of my lifetime best experiences.

Consultant is still being optimistic that the PSA could remain low or even decrease,we will know in a few weeks.

Thanks Chris

User
Posted 23 Aug 2016 at 17:32
Blimey!

3 clips is it now?

I reckon that you have single handedly re-written the statistics on clip migration!

Glad this episode is over mate... and hope there are no more!

Keep Right On....

KRO...

User
Posted 23 Aug 2016 at 19:37

Need another Newark to celebrate

it's only clip migration

TF

:-)

dave

Edited by member 23 Aug 2016 at 19:38  | Reason: Not specified

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 23 Aug 2016 at 23:12



Rosy, the lego bit goes back to an earlier post were I said a piece of plastic had been found in the bladder, Lyn enquired if it was a bit of Lego.

I did get that - sorry - just my sense of humour!

Hope you enjoy some good sleep.

 

User
Posted 24 Aug 2016 at 06:45
Thanks again for the messages. For the first time in about six weeks I managed to stop in bed all night, absolute bliss. I did wake a couple of times bit just turned over and went too sleep. The catheter is no problem,draining well, a bit of gel yesterday sorted the discomfort at the tip if the penis. Managing a catheter after a dilatation is of course alot easier than after a RARP.

Hopefully the last one, but in the future if I ask for a cystoscopy because I think something is blocking my urethra, I will be listened too.

Thanks Chris

User
Posted 24 Aug 2016 at 08:36
Chris

I really hope this gets you back on the right track again, so many blips,clips, flips and trips back to the hospital you must feel dizzy with it all.

It is frustrating when medics do not seem to listen to a possible problem, the knowledge of which was gained from a prior personal experience. I hope to goodness that you do not need to try and convince them again at all.

A good night's sleep is a wonderful tonic so I hope they can continue post catheter.

my very best wishes (those go for a reduction in PSA too.)

xx

Mo

User
Posted 24 Aug 2016 at 16:35

Hi Chris,

I'm glad you're over that ninth procedure, and have had a decent sleep at last.

But, honestly,  THREE clips migrating?http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

 

I was reading your post, and just shaking my head.

 

As you said:

 

"In future if I ask for a cystoscopy because I think something is blocking my urethra, I  hope I will be listened to."

 

Why do so many consultants/surgeons take no damn notice?

It's the patient that suffers not them. I wonder how they'd like to cope with the agonies you've been through over such a long period?

 

It can only get better now Chris.

 

 

All the best,

 

George

User
Posted 25 Aug 2016 at 06:25
Hi Chris really glad that at long last you have managed to get a good night's sleep. Just make sure that with all this new energy you don't over do it. Take care jx
User
Posted 25 Aug 2016 at 06:39
J

The good night's sleep was short lived my daughter took someone to the airport in the early hours and it sounded like she had brought the proverbial herd of elephants back with her.

Thanks Chris

User
Posted 25 Aug 2016 at 07:00

I think she might know my son?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 25 Aug 2016 at 08:34

Your inbox is full - tried to PM you. Re the elephants Mo and Julie have both previously given advice on dealing with them but I think yours is a different variety!

Edited by member 25 Aug 2016 at 08:34  | Reason: Not specified

User
Posted 25 Aug 2016 at 18:23
Hi Chris not sure if you got my reply to pm as in box full. No problem, take care jx
User
Posted 25 Aug 2016 at 19:28

Hope things settle down for you now, Chris. I've been very lucky compared with what you've endured.

Paul

Stay Calm And Carry On.
User
Posted 27 Sep 2016 at 16:59
Hi

Just back from seeing the consultant, yesterday's PSA was 0.13 exactly the same as the one three months ago, so next test and appointment in another three months.It does feel a bit like being in limbo but I will take a static reading over a rise every time.

My own flow test is measured at 6mls/sec but today's hospital test was 4mls/ sec. A scan showed an empty bladder and two minutes later I passed about another 100ml of urine ? Going to continue with self dilatation and react as required, another dilatation is the next step and then the following step would be an AUS and I would get a trip to London for the surgery.

Hopefully with most of the clips gone things may start to settle down.

Thanks Chris

 
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