That was not in the plan.

User

Posted 27 Sep 2016 at 18:17

good news on the PSA Chris ,hopefuly everything will settle down for you shortly , take care Andy

User

Posted 27 Sep 2016 at 18:54

Good result on the PSA Chris, nice to read this.

atb

dave

Do all you can to help yourself, then make the best of your time. :-)

User

Posted 27 Sep 2016 at 19:27

Great news about the PSA Chris. I very much hope the other problem will get sorted for you soon as it can't be pleasant for you.

Kevan

User

Posted 27 Sep 2016 at 20:27

Great news about the PSA results, Chris. Long may they continue to be good

Take care,

Steve

User

Posted 27 Sep 2016 at 21:19

Delighted to read about the PSA Chris.

On the subject of bladder emptying we had the district nurse out the other day and she said that she thinks John is still retaining. He's still got both catheters in but they are blocking constantly with something called kidney sludge (yuck). Nothing is straightforward with our nether regions!

Love

Devonmaid

User

Posted 27 Sep 2016 at 21:30

Chris, great PSA result. Just hoping you can get some resolution of ongoing urinary issues. Tony PW has such a good and informative thread on his AUS journey.

Looking forward to seeing you and D soon.

Best wishes as always

User

Posted 27 Sep 2016 at 22:07

Great news on the PSA Chris.

User

Posted 28 Sep 2016 at 07:54

Good news on the PSA Chris.

KRO..

User

Posted 28 Sep 2016 at 12:47

Hi Chris hope all settles down soon, good news on psa. Jx

User

Posted 28 Sep 2016 at 12:53

Top news Chris!

User

Posted 28 Sep 2016 at 22:15

Fantastic news Chris, well done so happy to read your news.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 29 Sep 2016 at 22:31

Thanks for all the messages of support, they really are welcome.

I have followed Tony's posts on the AUS with interest but hoping not to go down that path if I can avoid it. There has been alot happening in the bladder the last couple of days so just hoping it's going to settle down again.

Thanks again Chris

User

Posted 10 Oct 2016 at 16:16

Hi Chris

Not spoke for a wee while but glad to see that your PSA is holding and not rising, take it as good news.

Just reading a bit about clip migration, I too had that and had the operation a couple of months ago where they found two clips in the bladder region which was giving me quite a bit of discomfort which lasted about 3 months prior to the op, such as pain and the need to pee regular and I had trouble trying to hold it back due ton the pain.

Like you I tried to tell certain individuals what my problem was but I was put on overactive bladder tablets but the problems persisted for three months before I finally got the operation to remove the clips. I can understand your frustration with trying to communicate with some people, as sometimes you feel that they are not listening.

Now I self dilate every second day which has now become routine. Starting RT on the 18th Oct so hopefully it doesn't affect the continence side of things as this has settled down pretty well.

Take care.

User

Posted 10 Oct 2016 at 19:03

Sanders

I think they need to rewrite the stats on clip migrations. I only got one at a time, two in one go is being a bit greedy. I am going backwards at the moment one minute I cannot hold 50 ml of urine the next minute in retention and holding 300 ml.out of the blue I had one visit to the loo with really good flow 10mls/secand then back too 1-2 for the last couple of weeks. I did make a phone call but certain people still will not listen.

I now ISD twice a day with an IQ14 very easy and comfortable. I have collected quite a few catheters and am using up my lowfric 12 to release the retention.

Good job the PSA is steady I would have no chance of keeping a full bladder for RT.

All the best for your RT.

Thanks Chris

User

Posted 10 Oct 2016 at 22:52

Hi Chris

You don't need me to tell you but keep pestering the people that matter, I took it into my own hands when I thought people weren't listening.I know these people are busy dealing with others but sometimes you have to be selfish.

Really feel for you having to self dilate twice a day, I was everyday but now it's every second day which ain't too bad but for you it must be a nightmare.

Take care mate and I hope you get it sorted sooner rather than later.

Cheers

Sandy

User

Posted 25 Oct 2016 at 16:33

Just out of theatre after urethral procedure number ten, no clips this time which is a little disappointing as it means the scar tissue is building again. Just seen consultant all went okay got a four inch drainpipe as a catheter ( okay a size 22) wait and see what happens, catheter out in a week.

Thanks Chris

Edited by member 25 Oct 2016 at 16:58 | Reason: Not specified

User

Posted 25 Oct 2016 at 18:52

Hi Chris

You must have a season ticket for the theatre in your hospital.

I didn't know they did size 22, thought it only went up.to size 20

I use a size 16 for ISD and that seems big.

How do you know that the scar tissue is returning did they tell you.

Take care

Sandy

User

Posted 25 Oct 2016 at 19:11

Definitely a 22,I would send you a picture but it might be classed as indecent, they see the scar tissue when they get the camera in, this time he has done an incision into the scar tissue and it sprang open. Catheter for another week. Pre op he frightened me to death taking about permanent super pubic catheter,AUS and being wet for six months and even removal of the bladder.

Thanks Chris

User

Posted 25 Oct 2016 at 19:12

Hi Chris

My turn to wish you luck. Hope all works out with your latest procedure.

Brian.

User

Posted 25 Oct 2016 at 20:01

Really feel for you Chris everything crossed for you .Andy

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