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That was not in the plan.

User
Posted 23 May 2016 at 08:27

Reading all this made me squirm. You have had an awful ordeal, hope solutions are found quickly.

Paul

Stay Calm And Carry On.
User
Posted 23 May 2016 at 08:54
Just at Hospitial, they are going to attempt a catheter insertion via guide wire and flexi. Here's hoping.

Thanks Chris

User
Posted 23 May 2016 at 09:09

Good luck CC

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 23 May 2016 at 11:15
Good luck mate. Hope all goes well

You have made my eyes water

Don't deny the diagnosis; try to defy the verdict
User
Posted 23 May 2016 at 12:24
Back home again with bag and catheter,they tried the catheter via guide wire and flexi but again it failed. They then went for the full dilatation without any pain killers and only a bit of instilagel for anaesthetic. Half hour later they finally got the catheter in. From a layman's point of view the inside of the urethra looks a mess. Another dilatation on the cards in three weeks and my pelvic area feels like it has been hit with a sledgehammer.

On a lighter note the guy doing the procedure is also my ED consultant and is a great guy and quite a laugh. he was very reassuring and kept telling me he was not in any pain.

CJ not sure why the catheter does not just push through. Google cook or cooks S curve dilatators, they use the camera to get a thin wire into the bladder the pass the dilators over the wire starting and a no 8 pull that one out then more upto a 10 then work up to a no 20. There has got to be a better way.

Thanks Chris

User
Posted 23 May 2016 at 12:34
Originally Posted by: Online Community Member

Hi Chris, what a terrible experience I would not wish that on my worst enemy. I feel for you and yes it made me squirm as well, I do hope things go better for you as you are having it really rough at the moment. Why could they not do a spinal anasthetic for you in the hospital if that is way to get the job done?

Regards Chris/Woody

Life seems different upside down, take another viewpoint

PB

As we are all aware the NHS is not yet a 7 day a week service so not all services are available at the weekend. Our Urology theatres are in the Urology suite and that all closes at the weekend. The guy doing me this morning did ask why they had not taken me into theatre on Saturday.

Thanks Chris

User
Posted 23 May 2016 at 19:54

Christ...i had tears in my eyes reading the account of your ordeal Chris. My urologist said to me if i ever go into retention not to let any Tom Dick or Harry near me...but not sure how i would stop them.

As you know they could not get the camera into my bladder but thankfully i can still pass urine,albeit at a slower pace.

I really hope they get you sorted mate

Bri

Edited by member 23 May 2016 at 19:54  | Reason: Not specified

User
Posted 23 May 2016 at 20:18
B

I did ask a few days before Friday's dilatation" do I need this doing" but was advised to have it done and see what had slowed the flow down. As it happens nothing was found.

By coincidence it is a bit difficult to avoid Tom and Dick they are my consultants and the guy who should have done my catheter on Saturday is Hari. Today's procedure was done by Al.

We have posted about how they would get a camera into your bladder,they can go in through the abdomen wall same as they do with a SPC, hope it never comes to that for you.

All seems to be settling down so far.

Thanks Chris

Edited by member 24 May 2016 at 05:43  | Reason: Not specified

User
Posted 23 May 2016 at 21:39
Chris

You can imagine this made me cry at the memory of the New Year's butchery on my hubby. I can't imagine how men can inflict such pain on other men, it's horrific. We also had the "holiday staff" - don't get me started on the junior doctors after what we went through and John had to endure waiting 24 hours for relief and 3 litres in the bladder and 5 more litres stored in the body. I'm sure that's why he has now got kidney damage.

You have my utmost sympathy, I had no idea men went through this sort of thing. My eyes have been well and truly opened.

You have been a great support to us and although the SPC is a pain in the ***** at times, it has improved John's quality of life and I thank goodness he's got one.

Thinking of you Chris

Devonmaid

User
Posted 23 May 2016 at 22:10
DM

Sorry to have brought back bad memories for you.

I think the problem arises from starting a procedure and not knowing when to stop or going past the point of no return. I only suffered retention for 2 or three hours and not sure how much was in the bladder, I know most of it finished up in the bed that was not changed for quite a while due in part to staff change over. To be in retention for 24 hours with 3 lites must have been a nightmare, he is one exceptional man.

At least I got away without having another SPC.

Thanks Chris

User
Posted 24 May 2016 at 21:23

Hi Chris,

Sorry to read that this is not going to plan.

Your dour sense of humour will get you through it, FCS don't lose that mate!

Will buy you a pint (of creme de menthe or Babycham) when I see you next.  Hope you are both well and keeping smiling?

dave

 

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 25 May 2016 at 12:55

Hi Chris.. really living up to the thread title - none of us would like what you have just gone through to be in our plan.

Hope that things are now settling down a bit and that you get sorted out soon.

KRO... 

User
Posted 26 May 2016 at 21:30
Thanks Chris

John won't let me speak about this thread, it's too painful a memory. I do sometimes go on a rant about what happened, but mostly I am glad that he had an SPC and he can live fairly happily with it. It's definitely better than going into retention. I am always hoping you'll come out the other side with everything working well.

Lots of love

DM

Edited by member 26 May 2016 at 21:31  | Reason: Not specified

User
Posted 26 May 2016 at 22:29
DM aka A/WW/SG

Went to the GP today and got the obligatory antibiotics for another water infection. Wish I had got the SPC at the moment,I had forgotten how uncomfortable by-passing can be with a urethral catheter. An old back problem has decided to come back and give me grief at the moment.

Thanks Chris

User
Posted 27 May 2016 at 15:55

You really are going through it Chris, hope it improves quickly for you, will have to meet up some time when your a bit better all the best Andy

User
Posted 27 May 2016 at 16:37

Blimey! 

Just been reading your thread Chris...... Hope things eventually work out OK at long last.. ..... Must be a nightmare for you.. 

Making me stop to think again before I possibly commit to any further investigations in August  re my persistent leakage problems...

Best wishes 
Luther

User
Posted 02 Jun 2016 at 14:52

Thank you for all the messages of support. Having had numerous urethral catheters with very few problems I was amazed at how much a catheter can upset the workings of the body. I have experienced by passing on numerous occasions but the pain associated with this latest catheter has been quite severe, it affected trying to pass motions and I have been suffering with back pain for the last week. The antibiotics to treat a UTI gave me a lovely rash on my feet ankles and calves.

Yesterday I had my catheter removed, the relief was out of this world, despite being the most troublesome catheter it was the least uncomfortable removal of all my catheters, within a few hours most of the back pain had gone and I can now urinate normally again. Flow is a bit slow and volume is also low, touch wood the slight incontinence seems to have gone, although there is more urgency and frequency with a couple of accidents trying to “hold on”.

I am now back on twice daily intermittent self-dilatation for the foreseeable future and will be using a four inch drain pipe otherwise known as a size sixteen catheter. Not been too successful so far but early days. I have not been on any ED medication for the last three weeks but still managed to get some tumescence even with the catheter in, now that is weird.

I hope that any guys still contemplating options and reading this will not be put off the surgery route, my initial surgery was pretty straight forward and hopefully a success, only time will tell.

Thanks Chris

User
Posted 03 Jun 2016 at 13:56
Chris

I truly hope that you get some stability now, heaven knows you have had the most turbulent times , you always deal with everything so calmly and stoically. You continue to support others even when your own journey has been horrible at times.

Thanks for all your kindness and support

xxx

Mo

User
Posted 21 Jun 2016 at 18:18
Hi

Went to see the consultant today about the stricture and decided to let it settle down. Kidney scan and function all okay.

Then the bombshell PSA up from 0.07 in March to 0.13, gutted.

Thanks Chris

User
Posted 21 Jun 2016 at 18:56

Mate !!!
Don't know what to say. I guess you'll have a plan of action ahead. You have had so much stuff done , never a complaint , and always been there to help everyone else.
Best wishes
Chris

If life gives you lemons , then make lemonade

 
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