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That was not in the plan.

User
Posted 20 Nov 2015 at 22:52

Phew...great news Chris

Bri

User
Posted 20 Nov 2015 at 23:40
CB

It gets worse,during my last stay in hospital the nurse injected me with an anti clotting medication gave me some pills to take and told me to drink some water. Thirty seconds later I grabbed a sick bowl tried to move into a better position, Dawn was half holding the sick bowl I emptied the contents of my stomach which went in one side of the bowl and straight out the other side all over Dawn. Unfortunately I had not bought her any aprons, but at least she did have some gloves to help clean me up. I do love her.

Thanks Chris

User
Posted 21 Nov 2015 at 00:09

Originally Posted by: Online Community Member
CB

It gets worse,during my last stay in hospital the nurse injected me with an anti clotting medication gave me some pills to take and told me to drink some water. Thirty seconds later I grabbed a sick bowl tried to move into a better position, Dawn was half holding the sick bowl I emptied the contents of my stomach which went in one side of the bowl and straight out the other side all over Dawn. Unfortunately I had not bought her any aprons, but at least she did have some gloves to help clean me up. I do love her.

Thanks Chris

Tutt tutt tutt.  She only caught half of it in the bowl, shoddy.  

That you love each other is the best news.  Suspect she loves you more?  

dave

 

Edited by member 21 Nov 2015 at 08:36  | Reason: Not specified

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 21 Nov 2015 at 08:50

Really glad for you Chris. You've been incredibly brave I think. Let's hope everything gets back to normal.
Chris

If life gives you lemons , then make lemonade

User
Posted 21 Nov 2015 at 10:58
Chris

I'm sure Dawn has had far worse than you missing the puke bowl, some men will do anything to get us ladies to take our kit off!

Seriously though I am sure that was minor price to pay for having you tube, bag and fancy free again. May your onward recovery be swift and complete.

Hope to see you both in the New Year

All my best wishes

Xx

Mo

User
Posted 21 Nov 2015 at 12:26

Hi Chris.Im 4 weeks post De Vinci(operation performed in Bradford)&go to have my first PSA blood test next week followed up by a review with the surgeon the week after.Reading your story makes me wonder just what is to come,i like everyone else ive read am overwhelmed by your bravery,resilience&humour in situations most would find unbearable.Im just trying to regain fitness,get more continent&not do anything to jepordise the blood test,but its so difficult to know what to do.I guess the PSA will be what it will be.I was Gleason 3+4(T3a)on Right side/Lside benign, with 12% disease(PSA originally was 5.2).You are an inspiration to us all.I wish you the best of luck in your journey back to good health&look forward to reading further posts regarding your recovery.

Best Wishes.

Polarbear2.

User
Posted 21 Nov 2015 at 17:08
CJ PB

The clip migration is quite rare something like 1 in 500. Not sure how you work out the odds for two migrating. Strictures are reasonably frequent but I have not come across too many guys with them.

I think were were all brave to have an operation or RT or Barchey etc when we did not feel ill, knowing we risked life changing side effects.

My follow up operations were no brainers as there was a symptom that needed sorting. Being looked after by a superb Urology team helped and I am sure I will miss them when I get sorted.

CB

You are in trouble.

Mo

There was worse that involved a nappy change and a baby daughter with wind and diarrhoea.

Thanks Chris

User
Posted 22 Nov 2015 at 03:40
Hi Chris,

You've had a rough time of it recently. I really hope that things are a bit easier and you can look forward to a better new year.

Take care.

Steve

User
Posted 17 Dec 2015 at 19:49

BACK ON TRACK ?

Two years ago today I heard those mind numbing words “ I am sorry to say that you have prostate cancer”. When I look at some of the recent posts I realise how fortunate I really am.

After twelve months of consistent 0.03 PSA results the 18 month test was a disappointing 0.06. Two recent PSA tests came back at 0.04 and 0.05 so at least a fluctuation and not a steady increase. My consultant is not concerned at this stage. Unknown to me I was carrying the pseudomonas infection for quite a while and probably had the 18 month test whilst carrying the infection, this may or may not have had an influence on the reading.

As regards the incontinence, I was almost dry 14 days after the RARP in April 2014, the Dilatation in August 2015 has left me incontinent, I have bad days and nightmare days, I have been using the sheath system “Bard care Spirit” not Coloplast /Coveen for the last three days and the difference is incredible. Not only is it better to leak into a bag it also improves the part of bladder retraining where you try to hold the urine for the extra minute. No major accidents to worry about.

My consultant pulled a face when I told him I was using the sheath system, but did accept my view that it is improving my state of mind and quality of life. Although the incontinence nurse said it was becoming the gold standard for treating incontinence the consult said urologists regularly see incontinence get worse for post RP patients as they come to rely on the bag. I will be having more bladder pressure test and cystoscopies in the next few weeks to see why things are not working correctly.

Bri, I did listen to your advice, but was persuaded things could be improved.

I have a stock pile of Muse in the fridge and now have the all clear to restart the ED rehabilitation.

As I frequently say to people at least I am still here to moan about things.

Thanks Chris

User
Posted 17 Dec 2015 at 20:34
Chris

Honest and Frank post so thanks for that. I am sure you have had more crosses than enough to bare so I hope 2016 is onwards and upwards for you in more ways than one!

Have you been following Tony and his posts on the pump?

I will message you after Xmas re the Newark gang.

I trust D is well and enjoying sporting her marigolds?

Xxx

Mo

User
Posted 17 Dec 2015 at 21:01

Hi Chris pleased for you on the PSA results hope the other improves as well enjoy xmas Andy

User
Posted 20 May 2016 at 09:23

This afternoon I will be having my sixth general anaesthetic and sixth urethral procedure in the last 21 months. I say procedure as opposed to dilatation because I am expecting it to be more a removal of a foreign object rather than a stretch of the bladder neck. Following a slow decline from 12 mls/sec to 5 mls/sec in the flow rate, a cystoscopy two weeks ago restored the flow to around 11mls/sec, they could not get into the bladder and one of my consultants still wants to carry on with today’s procedure, I now have two consultants, am I being greedy ?  I think the odds of finding a third migrated clip are about the same as Leicester winning the premiership and we all know what happened there.

It is now almost 25 months since my robotic assisted radical prostatectomy, I actually met my robot last week at an open day of our local urology department, the robot was not quite as big as I thought it would be. My PSA has slowly risen from 0.03 to 0.07 a few weeks ago, still good but I would have preferred it at a constant 0.03, the next test in July is eagerly awaited.

Following a trip to the GP about itchy skin we suspended the daily 100mg of sildenafil two weeks ago and the itching seems to have stopped. Although I cannot get an upright erection, with stimulation and no chemicals I can achieve about 90 per cent of the pre-op size, not bad for a “supposedly” non-nerve sparring Op. As I keep telling people you do not need an erection for vaginal intercourse and it is wonderful.

Continence has stalled at around 3-5 mls a day and I think I can live with that and I am not sure an AUS would, A be fitted at such a low leak level and B might still leak a little anyway.

If I could turn the clock back would I have surgery, one hundred percent yes.  For those who might be considering surgery do not be put off by my experience, there are many guys who have had a more straight forward journey.  At three months post op I had been back at work for two months, was completely dry and having fun getting around erectile dysfunction, At fifteen months life was almost back to normal until the urethra was punctured.

As I have said before I am still in a good place and far better off than many of the guys and girls on here. I admire the resolve and optimism you and your ladies give to the rest of us. Twenty five months ago in April 2014 one of our member’s husband had just been diagnosed with PCa, sadly we lost him earlier this year, how cruel life and this disease can be.

Thanks Chris

User
Posted 20 May 2016 at 09:39
Chris ,

I hope that all goes well for you this afternoon. Your attitude and determination that you share with us in facing this disease is great. And I follow your updates on ED too with interest, having just embarked on ED treatment myself. Before dx I would never have thought I should be making comments like that. But being on this forum has certainly changed my outlook on life !

John

User
Posted 20 May 2016 at 09:56

Fingers crossed for you Chris.

Hope all goes well

We can't control the winds - but we can adjust our sails
User
Posted 20 May 2016 at 10:03

Hi Chris

More General Anaesthesia? Just think of it as being like one of those Spa 'pamper days'  where you get to relax for a while  ( so I'm told).

Joking apart, sending you  this by way of a brief message of support. Only sorry I can't be of more practical help.

 

 

User
Posted 20 May 2016 at 14:01

Hi Chris
I can only wish you the best of luck. Boy have you manned up and been through the mill , yet managed to help and encourage others at the same time. Thankyou.
Chris

If life gives you lemons , then make lemonade

User
Posted 20 May 2016 at 15:26

Hi Chris,

Hope the procedure goes well, you are due a good result. Tried to access your profile several times but keep getting 'Page not found'

Barry
User
Posted 20 May 2016 at 15:38

Hi Chris,

Hope everything goes well and things are much better for you.

All the Best,

Steve

User
Posted 20 May 2016 at 15:58

Hi Chris..fingers crossed this sorts it at last for you

Bri

User
Posted 20 May 2016 at 16:16

Only just seen this... Hope all went well Chris.

KRO... 

 
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