Well I never

User

Posted 01 Jul 2016 at 22:38

Hi Allison

Sorry to hear what you and John are going through, I hope things improve next week

Barry

User

Posted 02 Jul 2016 at 06:37

hi DM
the nightcap and candle made me laugh and think of Scrooge, good you had a couple of visitors and Tuesday we hope will bring some fresh treatment

regards
nidge

run long and prosper
'pooh how do you spell love'
'piglet you dont spell love -you just feel it'

User

Posted 02 Jul 2016 at 06:56

Hi Alison

Sorry to hear that things are not improving, sometimes this bloody disease does my head in, there is no rhyme or reason, all the people on here that have had mets and not two have responded the same.

I hope the visitors get stuck in to take some of the pressure of you.

We all send our love to you and John.

Si & the gang xx

Don't deny the diagnosis; try to defy the verdict

User

Posted 02 Jul 2016 at 09:10

Hi DM
Hang on in there DM. I admire all you are doing for jon. Gp should be able to change antibiotics if necessary on Monday. Good to see your visitors made Jon smile and they do sound pleasingly quite practical.
Hoping Jon will be feeling better soon.
Take care
Lesley xx

User

Posted 03 Jul 2016 at 17:24

Hi DM

Wishing you and your husband all the best for his upcoming appointments. I hope he finally gets some answers as to what this awful infection is and get on the right treatment.

Sending love and positive vibes to you xx

User

Posted 04 Jul 2016 at 18:53

A really hope that things are improving for J I keep looking out for some positive news from you.
Lots of love
BFN
Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 04 Jul 2016 at 19:07

Yes, how did it go today love?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 04 Jul 2016 at 19:51

Nothing much happened today Lyn, it didn't surprise me as really we need the urology people to share their plan with us and that's tomorrow. Onco said he thought that the RT could be causing some symptoms for up to six weeks, so John felt a little better at that. We have to go back in 5 weeks by which time it should be clearer whether the RT has worked. It was a struggle to get John there today but he seems cheerier tonight, so that's a good thing. Will update after our evening appointment tomorrow. If he does get admitted I've cleared it with Bupa that it will be in the private wing. I might as well use my company's private health care while I've got the option.

Love
DM xxx

User

Posted 05 Jul 2016 at 21:51

Well we had to wait for two hours to see our private consultant, he's a surgeon and had been called to an emergency op so we just regarded it as a rest from the rellies. So, long story short. He has offered three possibilities, one, do nothing, not really a genuine option as John would lose one or both kidneys taking this route. 2, do the stents through the back and keep coming back for more every six to ten months or 3, a rerouting of the ureters, bypassing the prostate and direct into the bladder. This is the biggest op but likely to be our favoured route.

As John has picked up a little over the last two days, he remains at home but with strict instructions to go out every day as he needs to build his strength. The urologist doesn't think he needs more antibiotics but he just needs to heal.

All in all, we do feel pretty ok about things, and will decide about which op over the next few days.

Love Devonmaid xxxx

User

Posted 05 Jul 2016 at 22:06

Very glad to hear John is feeling a bit better and here's hoping it will continue! Good luck with your decision making too.

User

Posted 05 Jul 2016 at 22:23

DM

Glad to hear J has picked up a bit. Your resilience does astound me, too "feel pretty okay" about the choices is amazing. I am sure you will come to the right decision on which way to go. Thinking of you.

Thanks Chris

User

Posted 06 Jul 2016 at 08:28

Hi DM,
Glad to hear you have a plan to work to, this in itself must be uplifting for you both. Hope he continues to build his strength up.
Lesley xx

User

Posted 06 Jul 2016 at 10:12

as Baldrick would say 'what we need is a cunning plan' and as you say the last option may just be this, lets hope its the most cunning plan ever

regards
nidge

run long and prosper
'pooh how do you spell love'
'piglet you dont spell love -you just feel it'

User

Posted 06 Jul 2016 at 14:40

At last a plan of action you will make the right choice when the time comes I am just so glad that John Is feeling stronger.
BFN
Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 06 Jul 2016 at 22:02

Originally Posted by: Online Community Member

as Baldrick would say 'what we need is a cunning plan' and as you say the last option may just be this, lets hope its the most cunning plan ever

regards
nidge

Preferably without any turnips?

User

Posted 07 Jul 2016 at 16:37

Hi Allison. Can they do a more permanent stent, it's more upheaval having them replaced and they can fall out anyway. At least with the other option it sounds like one off and once done that's it. Really feel for you, had all this scenario too. Anyway, you are in my thoughts,

Fiona. xx

User

Posted 17 Jul 2016 at 21:08

Good evening my fellow forum members, today has been our 40th wedding anniversary. I was a very young bride of 19, back on that boiling hot day in 1976. I am grateful we have made it to this day, certainly five years ago the odds were stacked against us. We were not able to go out to celebrate because John is still unwell following his RT but it's a major milestone and we managed to simply be happy to be together after all this time and a horrible cancer diagnosis five (nearly six) years ago.

I've been trying to practice gratitude, since I do believe it makes you happier and I am deeply grateful for those 40 years (where did they go?). I'm not greedy, I only want another 40, it's not tooooo much to ask is it?

No seriously, I did manage to raise a glass or two thanks to my lovely family, John doesn't drink these days and drinking alone is not much fun but someone had to do it. I chose a wonderful man all those years ago, when I was a green WRAF lassie and fell for the lovely bloke in the airforce blue suit (ok uniform), with the lush tash and leather bomber jacket. He hasn't changed really, though the hair is now white and the bomber jacket got lost years ago.

For those suffering loss today I have shed a few tears for you (and maybe a few for us too), but still think it's quite an achievement these days, to still be happily married after all these years.

Love to you all

Devonmaid xxxxx

User

Posted 17 Jul 2016 at 21:33

Many congratulations, and many more to come

Best wishes,

Arthur

User

Posted 18 Jul 2016 at 05:25

Congratulations to both of you for yesterday. 40 Years is a great achievement. The time just goes so fast doesn't it. We got married in 1969 so a bit ahead of you.

I do remember the heat of '76 though. We must have been one of the few families that raging hot summer that got washed out when camping. So wet, inside and out of the tent, that we had to go home very early !!

Story of our lives that is.

Again, congratulations and hopefully many more to come ( whisper - I think another 40 is a little optimistic given our ages - but we can hope eh!!)

*********

Edited by member 18 Jul 2016 at 05:26 | Reason: Not specified

We can't control the winds - but we can adjust our sails

User

Posted 18 Jul 2016 at 05:36

Many congratulations to you both.

I remember that summer - it was when David and I met. I was also working on a burns ward wearing a gown and mask on top of an old style nurse's uniform, starched collar and apron etc! The sister allowed us a single glass of squash during our shift as it was so hot. So the NHS has moved on!

As you say 40 years is a major achievement and I wish you much more happiness to come (but as Sandra says maybe another 40 is pushing it)

Much love xxx

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