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User
Posted 12 Aug 2016 at 11:46

So good to hear Allison. I do hope you and John have a great break and can approach the surgery in good spirits. Great to sense a bit of optimism in your post, it's been a long haul for John to make progress so long may it continue.

User
Posted 12 Aug 2016 at 22:01

Fantastic news! Have a lovely holiday - a pity you can't post pictures of the sandcastles!!

User
Posted 13 Aug 2016 at 02:14
Hi Allison,

Hope you have a wonderful holiday, fingers crossed that all goes well with the op in September.

Steve x

User
Posted 13 Aug 2016 at 06:35
DM

Have a nice holiday.

Thanks Chris

User
Posted 14 Aug 2016 at 08:58
DM

hoorah,best news from you in a long while. I did think the recent photo of John on FB with little D showed just how much better he is looking. You too are looking well and so much less anxious.

As George has so eloquently put it there is never a "too soon" for an incurable patient to get involvement of the local hospice. The help and support they can give to the Men and their families is amazing.

Enjoy your very much needed holiday in Devon, don't eat too many cream teas (oh what the... eat as many as you want! one every day if it takes your fancy)

see you for coffee soon it seems ages since we were able to get together.

Thinking of you and just so relieved things are getting better

xxxx

Mo

User
Posted 15 Aug 2016 at 12:13

Great news, so pleased for you both !

 

Fiona. xx

User
Posted 15 Aug 2016 at 13:22

From what I have seen on fb, John is enjoying his holiday while Devonmaid needs an afternoon nap to keep up!!! Lots of love to you both xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Aug 2016 at 19:00

Nice to hear good news 

Barry

User
Posted 19 Aug 2016 at 22:01
Well my Facebook friends know we had a fabulous holiday in Devon, lucky with the weather and such a joy to be with our granddaughter every day, sheer bliss. While we were away our consultant rang and said he wants to do another procedure while John is under the anaesthetic to try to see if the SPC can be removed. It would be an absolute miracle if this went well and the SPC could be removed, I can't tell you how awful the bladder spasms are that it causes, not to mention the other consequences on the bowel.

So we are now home, relaxing having made some fantastic memories and now hopefully we will have a quiet few weeks until the Operation.

Bye for now, back home in Swindon but longing to be back in my home county.

Lots of love

Devonmaid xxxx

User
Posted 19 Aug 2016 at 22:12

Very glad to hear you had such a good break and the possibility of losing the SPC. You've had such a rough time so it's really good to hear things are going well for you both. Did you make lots of sandcastles??

User
Posted 19 Aug 2016 at 23:16

Hi DM,

Glad you're home safely and had a great time (and great weather). 

I've really enjoyed the FB pictures, brings back memories of our holidays in the past.  Thank you for sharing them.

Really hope things go well for John in the coming months.

Steve xxx

 

User
Posted 20 Aug 2016 at 14:36

Dear A & J,

 

It's obvious from your post that you've had a perfect holiday. Actually, the happiness shines through!

This is absolutely uplifting to hear. You both really needed the time away, and I'm glad everything went so well, even the weather.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif

Now I am waiting to read here that your miracle will happen and the SPC will be removed successfully.

It's not much to ask of him upstairs, is it?http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif

 

Stay well, (both of you!),

Warmest wishes always,

 

 

George

 

User
Posted 20 Aug 2016 at 17:40
D

Hope oh does manage lose the SPC, intrigued to know what the surgeon is going to do.

Thanks Chris

User
Posted 20 Aug 2016 at 20:50
Chris

He is going to reroute the ureters (apparently they take a circuitous route) and reimplant them into the bladder. Then he is going to do the rebore thing and a urethral catheter again while John is under, he believes that with the previous TURP and the RT it could be a good time to do it. I'm not sure if he will be giving the prostate a further shave, I'll find out soon enough. Funnily enough, the last couple of days urine has been passing out through the penis again, only a little bit but an exit is there now. We don't know why this is happening (it's very painful actually) but we are wondering of the RT is continuing its job and is reducing the prostate size further. Either way it increases our hope. I have to say that the SPC (though much needed) is a nightmare, the leg bags drag him down (the weight of them) and are always uncomfortable. How people cope won't them forever I don't really know. Still it's better than the alternative as we say here.

Rosy, we did make sand castles and we played jumping the waves and a nice man made lovely puddles by digging for cockles, Dakota wore her Nanny out jumping form one to another all along the beach. Who needs the gym!

Lots of love

DM xxx

User
Posted 20 Aug 2016 at 21:49
DM

Thanks for the reply I hope all goes well, you certainly deserve a good outcome.

Thanks Chris

User
Posted 21 Aug 2016 at 21:08
Hi DM

Just caught up with your thread as we have been away too.

So glad you got to go away, you both so deserved the break. Wonderful therapy for uplifting your spirits. Hope you also managed to have a few glasses of wine!

Sounds like your surgeon has a good plan of action for John, hope all goes well for him.

Take care

Lesley xx

User
Posted 21 Aug 2016 at 22:08

I still love jumping waves!

User
Posted 22 Aug 2016 at 07:48
Hi Devonmaid just catching up really glad you had a lovely holiday and your grandaughter kept you busy sounds like you burnt off any calories gained with cream teas 😊 hope all goes well with the operation, take care both. Jayne x
User
Posted 06 Sep 2016 at 22:05
Evening all

Well the deed is done and the operation is now over. It was pretty traumatic, lasted over four hours and included a nice little incident where John vomitted on the operating table. Thankfully we had an alert anaesthetist, who prevented inhalation of the stomach contents. The operation itself looks like it will have been successful with the ureters now implanted at the top of the bladder instead of further down. The consultant said it was a very tough op, inside was much worse than had been expected, thank goodness it was an open procedure. He said we were close to a catastrophic state with the kidneys and all with no pain as usual with John. So he's got two,catheters, stents and is feeling very rough, but it is hoped that in a few weeks, he might be down to self catheterisation rather than an SPC and two healthy kidneys. The urethra was apparently in surprisingly good order, with just one stricture. John will be in hospital for a week or so, stents out two weeks later then, with luck a trial without catheter again.

None of this would have been possible if it hadn't been for our wonderful urologist and the fact that this operation is done commonly in Eygpt where he is from ( blinking foreigners coming over here making our people better using their amazing skills!). He is a fantastic person, he really believes in John and wanted to make his quality of life better. We are so lucky.

Lots of love

A very shattered but hopeful, Devonmaid xxx

User
Posted 06 Sep 2016 at 22:23
Brilliant news DM, have been waiting all day for news so at last the op is done and you can breathe. Gentle thoughts for J to make a full recovery and be home soon with lots of love and warmth plus a huge cuddle from little D.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
 
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