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Well I never

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User
Posted 18 Jun 2016 at 17:44
D

Sorry to hear things are not getting any better. I never quite understood how the SPC could properly empty the bladder, I do not see how it can be in the correct position to drain everything. I found it drained better when I was laying on my side. If alot of stagnant urine is in there no doubt it will be infected. Could J tolerate doing self catheterisation to help drain more urine out of the bladder.

Hope you get something sorted soon.

Thanks Chris
User
Posted 18 Jun 2016 at 17:58

I admire you both. John has immense resolve and you patience and understanding. I don't think I would be coping well at all with all you have been through recently. I agree maybe hospital is the way forward , even though that seems a step backwards.
Best wishes
Chris


If life gives you lemons , then make lemonade
User
Posted 18 Jun 2016 at 17:59

DM I really feel for you both.

I hope you get some help soon XX

We can't control the winds - but we can adjust our sails
User
Posted 18 Jun 2016 at 19:19
Hi DM
This sounds such an awful situation for you both. I must admit I would be inclined to think Jon needs to be in hospital, at least they can monitor output (irigate to maintain flow), start treating infection with iv antibiotics and give him adequate pain relief. I know I cannot see how poorly Jon looks but I might even consider a 999 call.
Thinking of you, hope he has a settled night tonight whatever the plan is.
Take care
Lesley xx
User
Posted 18 Jun 2016 at 21:57

This is dreadful - take no prisoners DM in getting John the proper medical care. Keep us all in the loop, you are on my mind xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 19 Jun 2016 at 00:39

Hi,


I'm so sorry this is happening to John, it's just not fair.  My heart goes out to you both, it's not easy looking after someone who is in pain and feeling that you can't do anything to take that pain away.


I hope they manage to help John soon and provide the medical care he deserves.


Steve x

User
Posted 19 Jun 2016 at 08:19

I hope things have improved this morning. You both shouldnt have to go through this. The NHS is great but its when you hear things like this that you realise its no where near perfect

Thinking of you both

Bri x

User
Posted 19 Jun 2016 at 16:04
Just looked in and seen your post DM, I really do hope that things have settled a little bit if not then I agree a swift 999 call maybe what is needed. When ourr NHS is working well it is fantastic and when it's not it is downright deplorable.
Thinking of you X
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON
User
Posted 20 Jun 2016 at 23:12
Hi my friends
Well John is in hospital getting IV antibiotics, fluids (he was dehydrated despite drinking loads) and a good clear out in the bottom department. I contacted the consultant by email yesterday morning and he rang me straight back. After a chat he said he thought John needed to be in hospital but I couldn't get him to go in on a Sunday, not after the New Year debacle. Not only that I would have needed an ambulance as he was so weak. Anyway, long story short, the plan was to take him to the surgical assessment unit today at eleven to see the urology registrar. As it happens the lovely consultant came down to see him too and said that if his bloods are deranged (I love that word) he will go ahead and arrange to fit a stent, but otherwise just aim to get him over this hump and do minimal invasive stuff. Despite all of that it took 7.5 hours of sitting around in a hideously hot, airless room with other sick people, to get a bed. Mustn't moan, he did finally get a side room and is comfortable now in hospital. Thanks for all your support, I knew he needed some proper medical help and he's getting it. Bless him, he has suffered a great deal this year and is pretty weak. My main concerns were that he improves a bit after antibiotics but goes downhill rapidly once they finish, each time being left weaker and the impact on his damaged kidneys. Thank goodness the consultant gave me his email and phone number (he feels very bad about what happened at New Year) and I was able to speak to him directly.

I'm sure that things will start to improve greatly now that he is getting the attention he needs.

Lots of love to all of my friends here, I really do appreciate everyone of you.

Devonmaid xxxx
User
Posted 21 Jun 2016 at 05:21
DM,

You both seem to be going through so much at the moment. I really wish you well and hope that the current position improves for you.

John

User
Posted 21 Jun 2016 at 06:00
Thank goodness John's now getting the treatment he needs. I do hope he starts to feel better soon and in the meantime you get some well deserved rest.
Rosy x
User
Posted 21 Jun 2016 at 06:07

Hi DM, what a journey! It's good that John is having the treatment that he needs and that you could contact the consultant directly. Hopefully he will get better now that he is in hospital and get some strength back.

My thoughts are with you both

Chris/Woody

Life seems different upside down, take another viewpoint

User
Posted 21 Jun 2016 at 07:18

Glad you finally got it sorted. It's no less than your John deserves.

I like the humanity of the Consultant. They aren't all living in ivory towers then.

Best wishes for a speedy improvement

We can't control the winds - but we can adjust our sails
User
Posted 21 Jun 2016 at 07:53
D

Good to hear J is getting the right attention and good of the consultant to give you his contract details.
Hopefully things will start to improve soon.

Thanks Chris
User
Posted 21 Jun 2016 at 08:06
So relieved to read Jon is getting some good care and attention. Hope he continues to steadily improve.
You take good care of yourself also DM, nows your time to catch up on some rest.
Lesley xx
User
Posted 21 Jun 2016 at 08:39
Morning
I've spoken to my lovely man this morning , he's still on Iv antibiotics and fluids, he's got to go back on Tamsulosin, which is fine. He sounded much better, his voice was strong rather than the high pitched weedy sound that was coming from him. Absolutely no doubt he needed this treatment and I thank goodness he is being sorted out. I was very worried as you all know. In our case it's often been the side effects of treatment, rather than the cancer that have proved hard to handle, but the alternative is much worse!

Lots of love
Devonmaid xxx
User
Posted 21 Jun 2016 at 10:02

Turning your page for you DM.

Mines showing page 7 but then it's not found !!

We can't control the winds - but we can adjust our sails
User
Posted 21 Jun 2016 at 16:41
Hi DM
Just caught up with your posts, what a terrible time you have had, poor John , hope things are improving.

Will keep you both in our thoughts
Take care
Debbie
User
Posted 21 Jun 2016 at 16:46

I am glad John is sounding better, that must be a good sign. Hope he continues to improve and will be home soon and feeling much better.

User
Posted 21 Jun 2016 at 19:12
DM
This might flip your page, stupid bug.

I am so sad to read all the bad things you are experiencing. Sadly reminiscent of the hardest times with Mick.

At last admitted for better and more comprehensive treatment. Take this opportunity to charge your own batteries and pamper yourself a bit.
Big hugs
Xxxxx
Mo
 
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