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One wife's story of ED

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User
Posted 26 Jul 2017 at 08:49
Lynda it's 5mg Cialis daily or 20mg for an event. Johsan probably confused the Viagra dose.

We have had 20mg Cialis every 4 days (2 a week) which arent covered in Ireland except at 4 a month for 1st 6 months.

We did this from a month out but now will ask for 5mg a day and Viagra for an event, when we go back to our urologist as that seems to be the accepted best practice on this site.....generally. Of course there are people that do better on other plans I'm sure, but our plan is not working!

Also 11 months out going to start using a pump.

Good luck with your experimentation!

Misty

User
Posted 26 Jul 2017 at 09:41

Actually, starting point for rehabilitative Cialis is 2.5mg - some specialists will go straight to 5mg daily but because the side effects are quite uncomfortable for some men, better to stick with the lower dose if possible.

You might be better getting a pill cutter from the chemist and taking half a 20mg every 2 days, or a quarter of a tablet every day (but they are quite hard to cut into quarters)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Jul 2017 at 10:06
Wow Lyn and to think my poor OH started on 20mg every 4 days. He had very bad side effects. I really do feel we have had bad advice. Do you think it would be good for us to go to 5mg daily now and Viagra for an event? Seeing urologist next week so hopefully he will have tried out the pump then too! I will ask for prescription change based on your recommendation.
User
Posted 03 May 2018 at 13:10

Lyn an any others,

Thank you for your valuable information in this email thread :-)

Just a question, when can/should one start using the pump?

Paulo

User
Posted 27 May 2018 at 05:53

Hi Lyn,

i see your husbands latest PSA result is still undetectable - fantastic news, gives me hope 

 

👍

User
Posted 27 May 2018 at 07:31
Wow thanks Lyn very helpful thanks .
User
Posted 27 May 2018 at 17:25

Originally Posted by: Online Community Member

Hi Lyn,

i see your husbands latest PSA result is still undetectable - fantastic news, gives me hope 

 

👍

It bobs around between <0.1 and 0.11 so not truly undetectable but the higher score tends to be in August after 3 weeks in France so I choose to believe it is simply down to cycling adrenaline mixed with red wine and sex 👍🏼

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 27 May 2018 at 17:57
Sounds like my kind of holiday ! Maybe less cycling and more wine , sex and BBQ :-))

If life gives you lemons , then make lemonade

User
Posted 24 Jun 2018 at 16:04

Thank you for all your posts , I have just started on my rd to recovery op was on the 6th of June I am at wearing nappies stage right now not being a bull to control my bladder at all , I wish you both all the very best for the future I t worries me about what will come next but I know that help and advice is not far away 

User
Posted 11 Sep 2018 at 18:55

Thank you to everyone on this post, I'm nearly 10 months post op and I've just read this with my wife. 

I'm on daily Cialis and have been using a pump for the last 4 months, although the pump is only good for keeping the penile tissue healthy.  Going to try larger doses of Cialis and if that doesn't work then we're onto Muse, (Alprostadil pellets).

Your post has really given us hope.

User
Posted 11 Sep 2018 at 23:39

Originally Posted by: Online Community Member
Wow Lyn and to think my poor OH started on 20mg every 4 days. He had very bad side effects. I really do feel we have had bad advice. Do you think it would be good for us to go to 5mg daily now and Viagra for an event? Seeing urologist next week so hopefully he will have tried out the pump then too! I will ask for prescription change based on your recommendation.

 

Misty, I missed this - did you get it resolved? 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 11 Sep 2018 at 23:41

Originally Posted by: Online Community Member

Lyn an any others,

Thank you for your valuable information in this email thread :-)

Just a question, when can/should one start using the pump?

Paulo

 

Paulo, how are you getting on with the pump? 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 11 Sep 2018 at 23:50

Originally Posted by: Online Community Member

Thank you to everyone on this post, I'm nearly 10 months post op and I've just read this with my wife. 

I'm on daily Cialis and have been using a pump for the last 4 months, although the pump is only good for keeping the penile tissue healthy.  Going to try larger doses of Cialis and if that doesn't work then we're onto Muse, (Alprostadil pellets).

Your post has really given us hope.

 

If you are taking daily dose Cialis, try 2 or 3 extra tablets (but only for that one day) next time you think you are likely to be 'in the mood' later that day. If large dose Cialis isn't working, try Levitra or Viagra before you move on to Muse, Vitaros cream or one of the injections. John found a combination of Cialis 5mg and Levitra or Cialis 5mg and Viagra successful. 

The trick is understanding how and when to take it, although tablets don't work for everyone. Viagra must be taken on an empty stomach and in our house, it works a few hours later. Levitra can be taken without an empty stomach and works slightly quicker but neither are immediate. 

Is there any particular reason why you see the pump as only for penile rehab? Which pump do you have? 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 Sep 2018 at 18:46

I have a SOMACorrect Xtra pump recommended by the ED nurse and was lucky enough to get it on prescription from my GP.  I was originally very keen to try the pump, but after following all the instructions, i.e. 7 to 10 days of daily use to get familiar and used to the various combinations of constriction rings, when it actually came to trying it out for real it proved to be a real passion killer in the bedroom.  Tried 3 or 4 times but it just resulted in frustration for both of us.  So, it's now purely used as a medical aid to help with recovery.

Will see how the tablets go and try the combinations you've suggested, thanks Lyn.

User
Posted 12 Sep 2018 at 19:08

I’m using mine to suck up spiders and bugs and safely deposit them outside. I think that’s all it’s useful for. I have a Soma Touch II which is electric so it’s quick to trap the creepy buggers.

Fresh

Edited by member 12 Sep 2018 at 19:09  | Reason: Not specified

Base jumping without a parachute should be frowned at, never criticised. Fresh

User
Posted 13 Sep 2018 at 10:49

More or less one month after surgery I started using the pump. I must say it has more rehabilitation purposes than anything else. Either I did not get a proper one or I can't use it at its best or last it is not the ideal toy for me (us).

Well, it really does its purpose to make me get it harder but I can't keep it hard after I take it out. It was good at first as I was experiencing the improvements - Now I am keeping using it but needed to stop for a few weeks in August because I had a bacteria infection in my hand joints and I culdn't really make my hands helping using the pump.

I am noticing good improvements though on the erection from cialis (5 mg daily dose) plus 20 mgs once a week. I don't have any side effects, no headaches and it works well after I take the bigger dose. I am trusting this to heal me here along with the nerve healing by its own. Getting happier with this part too.

Now I am just hoping PSA stays low. 

 

User
Posted 13 Sep 2018 at 13:42
Paulo I mostly used my pump for rehab and still do although I am now functioning ok with cialis 3 1/2 yrs on. It sounds like your ring size isn’t right and you need a tighter one. Worth researching. Yes it’s a passion killer , but with the right ring on it can be fun and you can use it for up to 30 mins at a time if you both like

If life gives you lemons , then make lemonade

User
Posted 13 Sep 2018 at 14:02

Chris, thanks,

I will follow your advise and search for a tighter ring. We don't have a problem with the pump :-) so I will continue giving it a try.

 

User
Posted 13 Sep 2018 at 15:38
I could only crack pump "erections" with 2 rings 😂 Also make sure you have a porn star trim, the hairs ruin the seal and make it tricky to get the rings off!

User
Posted 13 Sep 2018 at 20:35
Tips for eff3ctive pump use:

- trim the public hair close to the skin

- use lube on the inside of the tube and where the tube will meet your pubic area

- go a size smaller on the rings than you believed possible

- try different combinations of rings - we ended up with rings from a different manufacturer which was fiddly but more effective

When the pump is successful for engorgement but doesn’t stay erect when the rings are used, it is down to technique - a little hesitation or a shaky hand can break the seal and the vacuum is lost.

There are some men who cannot get engorged with a pump; this is usually down to atrophy which is irreversible.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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