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Mick's day of reckoning part 2

User
Posted 28 May 2014 at 17:14
Brilliant news, what a weekend you can look forward to,

Life is for living

Barry (alias Barrington )

User
Posted 28 May 2014 at 17:16
Best News Mo Best Wishes to you both for.Friday

Carol

User
Posted 28 May 2014 at 17:40
Brilliant news Mo. You must both be so thrilled

Take care

Bri x

User
Posted 28 May 2014 at 18:57

So Happy for you and Mick,

I feel a home coming party maybe on the agenda.

Lots of Love

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 28 May 2014 at 21:41
Great news Mo.
User
Posted 30 May 2014 at 10:18

Hi Mo,

Just wanted to say I hope everything goes according to plan for today and Mick gets home safe and sound. I will be thinking about you both.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 30 May 2014 at 20:04
Hoping that all went according to plan today. Mo.

Welcome home Mick xxxx.

User
Posted 31 May 2014 at 08:02
Hope you got Mick home, Mo?
User
Posted 31 May 2014 at 10:17
Hi Mo, hope everything ok but sure you will be very busy at the moment. Just hoping things are ok and as you know we are here

Bri xx

User
Posted 31 May 2014 at 13:35
Hi all,

Just heard from Mo, Mick is home but they are both knackered.

We are all thinking of you both wishing that all goes well

Life is for living

Barry (alias Barrington )

User
Posted 31 May 2014 at 14:51
That's good I checked in with Si earlier and he told me Mick got home last night. Not surprising that they are both exhausted.

Bri

User
Posted 31 May 2014 at 20:15
Mick came home last night he had a bad time in the wheelie taxi he was very sick but it is 3 months since he has been in a vehicle other than 2 ambulance rides (without blue lights and nee nas much to his disgust) he is going to take a few days to adjust and it is quite scary for him knowing that there are no nurses or drs just along the corridor only nurse mo. Oh and the overnight carer 3 or 4 nights a week and hospice at home+ district nurse every morning and two carers twice a day. House is like Piccadilly circus. We will scale back when everything is stable. We had to fight to get the healthcare package a very emotive and distressing process . We finally got a fast track 12 week package approved at 2pm on Friday, hats off to the palliative care team who then got everything in place until Tuesday giving monday to get a more manageable timetable together.

Today we are both very tired , Mick has another urine / local infection he feels ok but blood sugar is all over the place again.

Our GP will come out on monday so we can get full transfer from hospice to home care.

This is probably the hardest part of this journey for me . Next big goal is Leicester it is going to be tough if we cannot get Mick stable and clear of any infection. But wehave a few weeks and I am stockpiling dexamethasone in case of need.

Fingers crossed ....one good thing we no longer need to worry about PSA results ....So I am going to cheat and move the decimal place on the last one several times and say it was 5.306

Xxxxx Mo and Mick

User
Posted 31 May 2014 at 22:28
Hi Mo,

You and Mick are a fantastic inspiration to us all. The next few days are going to be hard on you both but you are both fighters and will get through them.

Rest when you can, Mick will need all your strength. Leicester and the mad gang are looking forward to seeing the two of you.

Take care

Life is for living

Barry (alias Barrington )

User
Posted 31 May 2014 at 22:43
Wonderful news Mo. So much hard work to get there hope mick can settle and keep clear of infection. Make sure you take time for yourself when you can too! Thinking of you both!
User
Posted 31 May 2014 at 23:14

Hi Mo,

So glad that Mick is home, tell him Trevor says the nee nas and the flashing blue lights aren't nearly as much fun as they sound. It will take Mick a little while to feel relaxed back at home he has been away and  reliant on Drs and Nurses for a long time. Once you get a routine going and Mick has had a few home cooked meals, your new normal will slot into place. As TG says try and rest as much as you can, I know this won't be easy and probably impossible.  In fact that was a pretty daft thing for me to say, rest is going to be pretty much on the back boiler. I don't know if this is going to help but I have adopted a fur coat and no knickers approach to housework. So everything looks OK on the top, just don't let anyone open cupboards.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif I used to be very house proud and know I realise I cannot do everything. 

Enjoy having Mick home, another good tip , make visitors work for a cup of T.

Lots of love

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 31 May 2014 at 23:51
Phew, although I will forever more think of you and Mick when I hear a nee na.

It is great to hear that people went the extra mile to make sure you got Mick home without any more delays. You are bound to be tired but despite the warnings from everyone else and the undoubtedly hard work ahead of you, I think you may find you are less weary being at home together than what you have just been through. The nervous energy involved in planning & mobilising, the worry, constant back & forth visiting - these are draining. Being together surrounded by your own stuff and the people that matter most - these are radiators.

Thinking about you and looking forward to seeing you at Leicester x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 May 2014 at 23:56
Julie, I have always had that approach to housework ... and to cooking .... and to ironing. John was appalled that I had an article published in a national in which I mentioned that when visitors arrive I shove things behind the sofa. Not many people visit me anymore 💩

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 Jun 2014 at 00:19
First - best wishes to Mo and Mick - you deserve all the luck in the world.

Second - I wish my OH would take a relaxed view to cleanliness around the home. We had a few words when she got back from work yesterday as my efforts were not up to standard! I am sure there's more to life than a perfectly clean house.

Stay Calm And Carry On.
User
Posted 01 Jun 2014 at 03:34
When we were on our cruise🚢 I had breakfast☕️🍴🍛🍓🍌🍍 delivered to our stateroom (cabin). Putting the order out the night before together with the time required⏰ worked perfectly and about 5 minutes before breakfast was delivered they would ring📞 the cabin to ask if it was convenient to deliver it.

When I suggested to Karen that at home after preparing my breakfast she ring me in the bedroom from the kitchen to see if I was ready for her to bring it up, for some reason SHE WENT OFF ON ONE👹. Woman today, just can't understand them.😳

Life is for living

Barry (alias Barrington )

User
Posted 01 Jun 2014 at 07:17
And on the cleaning note: Sorry to go off on a tangent Mo but couldn't resist

Three friends married women from different parts of the world...

The first man married a Greek girl. He told her that she was to do the dishes and house cleaning. It took a couple of days, but on the third day he came home to see a clean house and dishes washed and put away.

The second man married a Thai girl. He gave his wife orders that she was to do ...all the cleaning, dishes and the cooking. The first day he didn't see any results but the next day he saw it was better. By the third day he saw his house was clean, the dishes were done, and there was a huge dinner on the table.

The third man married a girl from Yorkshire. He ordered her to keep the house cleaned, dishes washed, lawn mowed, laundry washed, and hot meals on the table for every meal. The first day he didn't see anything, the second day he didn't see anything either but by the third day, some of the swelling had gone down and he could see a little out of his left eye and his arm was healed enough that he could fix himself a sandwich and load the dishwasher. He still has some difficulty when he urinates.

Im

Sure Mick will appreciate that one x

Bri

Edited by member 01 Jun 2014 at 07:18  | Reason: Not specified

 
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