I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error
ο»Ώ
123>»

Worrying time

Email this conversation Print this conversation
User
Posted 19 Mar 2020 at 20:09

Hi all, it’s been a while since I have been on here. My Husband Brian had a telephone consultation with the oncologist this afternoon and his PSA has gone from 0.03 to 24.7 in six months, he wants him to go for a second blood test ASAP, he is  just getting  over double pneumonia and I was just wondering if the pneumonia could have effected the blood results ? 

thank you and stay strong and safe x

User
Posted 12 Jul 2020 at 21:29

So very sorry to hear your devastating news Angie.  I hope the specialists at Nottingham are able to offer Bri some treatment to help.  Look after yourself too, such an awful time you have both been through.

Ange xx

User
Posted 03 Aug 2020 at 06:20

Very sad to read this, my thoughts and prayers to both of you.

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 07 Apr 2020 at 18:04

Sorry to hear that Angie.

Guessing here, but they might have put him on a biphosphonate (such as Zoledronic Acid, one tablet/week) to prevent calcium loss from bones.

Or they might have added an anti-androgen (such as Bicalutamide, one tablet/day) to make the hormone therapy work better.

Wishing you the best.

User
Posted 07 Apr 2020 at 20:04

Are you sure they are giving him a tablet for his bones? It sounds like they are adding Zometa to help with bone strength but that is usually given as an infusion every few weeks. If it is zometa, did they give a warning about dental work? Not many dentists are working at the minute but usually, a man needs to visit his dentist to get any work done before starting Zometa as one of the side effects is overgrowth or death of the jaw bone. If he does need to go to the dentist in the future it will be important to let the dentist know he is on it.

Edited by member 07 Apr 2020 at 20:10  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Apr 2020 at 20:04

Angie, so sorry to hear your husband’s result.

My very best wishes to you both.

Angex

User
Posted 24 May 2020 at 20:12
Hi Angie

How is Bri doing?

User
Posted 25 May 2020 at 21:18
Just to be clear, they aren't talking about RT as a treatment for the cancer - perhaps one or 2 zaps to help stabilise the tumours in a couple of the bones?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 May 2020 at 09:44
Sorry Angie, I didn't word that very well. I was trying to help you manage your expectations - I wasn't asking you. Bri has advanced cancer so they are unlikely to be talking about him having a curative course of RT.

It is still the same cancer so it will still be as aggressive as it was when he was diagnosed.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Jun 2020 at 22:06

What a difficult time for you both Angie.  Thinking of you and hoping the treatment is successful at keeping the cancer at bay for Brian for a long time going forward.

Angex

User
Posted 16 Jun 2020 at 23:23
Sorry to see this, Angie - have they said anything more about a bit of RT to the hip to help stabilise it?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 17 Jun 2020 at 08:47

Sorry to read this, I hope the Enzalutamide helps.

Ido4

User
Posted 17 Jun 2020 at 11:53

Originally Posted by: Online Community Member

Sorry to read this, I hope the Enzalutamide helps.


Thank you 🀞🏻It does x 

User
Posted 17 Jun 2020 at 12:02

Hoping that the treatment helps with the control of the cancer. Can’t imagine what you are going through in these already difficult times.

Good luck and fingers crossed for you .

Phil

User
Posted 17 Jun 2020 at 17:43

Hi Angie

i just read your thread and am so sorry to read that things have been really tough. Fingers crossed the new drug settles things and the scans help with a new plan.

Here’s hoping for some stability for you.

Clare

User
Posted 17 Jun 2020 at 22:12

Yes indeed, it seems to have really helped others get some respite so fingers crossed ( for you both as your clearly are very much in this together) 

Clare x

User
Posted 12 Jul 2020 at 08:08

Oh Angie, so sorry what you and Brian are going through.

Sending hugs and thinking of you both...

User
Posted 12 Jul 2020 at 08:17

Thoughts and prayers are with you both 🌹

User
Posted 12 Jul 2020 at 08:26

So sorry to read about Bri deteriorating. My thoughts are with you and Bri.

 

 

Ido4

User
Posted 12 Jul 2020 at 10:31

Angie 

So sorry to hear your bad news.

Love and hugs to you both.

Thanks Chris

User
Posted 12 Jul 2020 at 10:41
Simply heart breaking. So sorry :-(

If life gives you lemons , then make lemonade

User
Posted 12 Jul 2020 at 14:28
Angie,

Thanks for sharing this. Best wishes to you and Bri.

Rob

User
Posted 12 Jul 2020 at 15:43
So sorry for your difficult times. Hoping something can be done to manage the brain tumor.

Good luck

Cheers

Bill

User
Posted 12 Jul 2020 at 16:30

I just wanted to say I have just read your thread and am so so sorry to hear your latest news.

Fingers crossed for a plan to sort this out. You have been through so much and deserve a breakdown fingers crossed.

Clare

User
Posted 12 Jul 2020 at 17:17

I am so sorry and hope something can be done.

User
Posted 12 Jul 2020 at 19:00

I am so sorry to read about Bri, my thoughts are with you both.

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 12 Jul 2020 at 22:49
Oh Angie, I am so, so sad to see your post. We have had a few brain tumours in our family so I completely recognise your description of the confusion and the words coming out jumbled up. The steroid should reduce the pressure on his brain quite quickly and bring back your Bri to you - I do hope so. Have they suggested that it may be a prostate cancer met?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 02 Aug 2020 at 13:30
I am so sad for you - it is rare for prostate cancer to spread to the brain but when it does, the effect is devastating; as you say, a very rapid decline. Do try to take care of yourself as well, Angie, while you are caring for Bri x
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 02 Aug 2020 at 15:15

So so sorry to hear this Angie. Your words really resonate in terms of the variability of the paths for the individual with this disease.

So so sorry that you and Bri have such a rough rough path.

Big hugs Angie

Clare

User
Posted 02 Aug 2020 at 15:43
So sad to hear this. Strength and love to you x

If life gives you lemons , then make lemonade

User
Posted 02 Aug 2020 at 18:08

So sorry to read this Angie. Love and hugs to you and Bri.

 

Ido4

User
Posted 02 Aug 2020 at 21:47

Such sad news Angie.  It is unbelievable what has happened in three years since Bri’s diagnosis. Sending you both love and hugs.

Ange x

User
Posted 11 Aug 2020 at 10:04

Very sorry to read this. I have been moved by your & Bris story. My condolences to you and family.

User
Posted 11 Aug 2020 at 10:34

Hi Angie, so sorry to read this. Thinking of you and sending my condolences.

 

 

Ido4

User
Posted 11 Aug 2020 at 10:57

Really sorry to read your sad news about Bri’s passing Angie.  Thinking of you and sending you love, hugs and strength.

Ange x

User
Posted 11 Aug 2020 at 11:47
Such sad news but I am so pleased that you were able to get Bri home and care for him on your (and his) own terms. I hope that you have good support networks around you; be kind to yourself over the coming days, weeks and months xxx
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 11 Aug 2020 at 13:18
Sorry to hear your sad news. Wishing you strength during these awful times.
User
Posted 11 Aug 2020 at 13:28

So sorry to see your sad news, please accept my sincere condolences. Take care of yourself.

Thanks Chris

User
Posted 12 Aug 2020 at 07:51
Angie very sad to learn the news about Bri.

Please accept my sincere condolences.

User
Posted 12 Aug 2020 at 09:15
Hi

So sorry to hear your news.

Look after yourself.

P

User
Posted 12 Aug 2020 at 15:48

So sorry to hear this sad news .

I hope you can find support from your family to help you get through.

Phil

User
Posted 12 Aug 2020 at 18:38
Very sorry Angie another brave battle come to an end.

Look after yourself and cherish your memories

Cheers

Bill

User
Posted 12 Aug 2020 at 20:40

Sorry Angie. It seems it was a horribly aggressive form of this b****rd disease. Look after yourself. 

Dave

User
Posted 13 Aug 2020 at 06:11

I am so sorry Angie. It seems as if we have both had similar experiences as my G deteriorated quickly and passed at the weekend too. The decline was so sudden  and frightening. I pray that you will find peace again one day but I know how tough it is. Stay as strong as you can. X

User
Posted 16 Aug 2020 at 23:01

Oh Angie, so so sorry to read this.

Please accept my condolences, very sad news to read.

Clare

User
Posted 17 Aug 2020 at 02:11
So sorry PCa claimed another victim.
Barry
User
Posted 17 Aug 2020 at 09:30

So sorry to hear of your loss, thoughts and prayers to you and your family 

Carl....

User
Posted 17 Aug 2020 at 11:04

So sorry to hear this.  Take care xx

User
Posted 17 Aug 2020 at 12:45

So very sorry to read about your sad loss, Angie. Please accept my sincere condolences and best wishes for the future. 

User
Posted 19 Aug 2020 at 07:38
I

am so sorry to hear your sad news, will be thinking of you and your family on the 27th. xx

barbara

User
Posted 31 Aug 2020 at 10:06

So sorry Angie. I just read about you and Brian today. I hope you got to give him a beautiful send off. My heart goes out to you, I hope you have good support around you. Do let us know how you are getting on. Xxx

User
Posted 20 Oct 2020 at 11:10

Hi All

I hope your all keeping well.

just thought I would say hi and update you all to let you know that Bri had a good send off it was a lovely service we were allowed 24 people (it was tough having to pick just 24 people but I’m not complaining it could have been worse) we managed a wake in the local pub afterwards.

I desperately miss “my Bri “ and at times it still feels surreal, I am lucky to have a good support network around me and I feel blessed that family, friends and neighbours are all at the end of the phone if I need them. 
it’s a daily struggle but it’s a new way of life that I need to learn to come to terms with one day at a time.

I asked for donations to PC at the funeral and on the day we raised nearly £600, we still have a charity collection box at the pub ( I contacted PC uk and they sent me the donation tin) My neighbours son who is 9 years old is doing a virtual challenge called “the ocean road challenge” which he has to walk 149 actual miles, he is doing really well and only has 40 miles left to do, he has raised £510 at the moment hopefully he can still get some more donations in via his just giving page. I know it can’t help “My Bri” but hopefully the money raised will be able to help go towards helping so  many other men in the future.

bye for now and please try and stay safe and well 🌈

 

User
Posted 20 Oct 2020 at 13:07

Hi Angie, thanks for the update. Comforting to know Bri had a good send off.

Great to hear the amount raised for PCUK and what an amazing 9 year old neighbour. Good for him. Take care.

Ido4

User
Posted 20 Oct 2020 at 13:07

Hi Angie,

So pleased to hear that you were able to give Bri a good send off.  Such a difficult time for you and, although you have good support, it must be a struggle each day going forward.  I do think about you and so many on the forum who are experiencing this unbelievable loss and somehow finding the strength to adjust to a new way of life.

An amazing amount collected/donated to PC, people are so generous.

Keep posting, it’s so good to hear how you are.

Ange  x

 

Show Most Thanked Posts
User
Posted 19 Mar 2020 at 20:49

Hi Angie,

Sorry about your news. It certainly is worth repeating the test, in case something went wrong.

I can't think of any way pneumonia could cause a PSA rise, unless infection spread wider and included prostate.

Wishing you all the best.

PS, it might help to update his Bio with dates of treatments, tests, etc.

User
Posted 20 Mar 2020 at 00:43
Sorry to see this Angie - it looks like his cancer has become hormone independent (also referred to as castrate resistant) - in other words, the cancer has learnt to survive without testosterone. If he is still just on the injections, they may add bicalutamide again or they may suggest adding enzalutamide or abiraterone.

Let us know when you get the results of the repeat test

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 20 Mar 2020 at 11:43

Thank you for your replies, Bri did have a bad bout of pneumonia he was in hospital for three weeks, so maybe the infection spread to the prostate? 
He had his last hormone injection last week so we will see what happens after they have repeated the blood test. 

 Will post an  update as soon as we know anything.

Thank you again, and best wishes to you both. Xxx

User
Posted 07 Apr 2020 at 16:22

Bri had a telephone consultation this afternoon unfortunately the cancer has spread to his bones, mainly his left hip, due to the COVID 19 they are holding off any hospital treatment, they are keeping Bri on the hormone injection but adding a tablet that is a bone strengthener ? He is going to be monitored closely. The orthopaedics will be getting in touch as Bri will be susceptible to fractures because of where the cancer is.
 Bri does have a niggly pain in his hip and thigh but  nothing  that he can’t cope with.

When the covid 19 is all over they will get a treatment plan sorted.

stay safe and well everyone 🌈

User
Posted 07 Apr 2020 at 18:04

Sorry to hear that Angie.

Guessing here, but they might have put him on a biphosphonate (such as Zoledronic Acid, one tablet/week) to prevent calcium loss from bones.

Or they might have added an anti-androgen (such as Bicalutamide, one tablet/day) to make the hormone therapy work better.

Wishing you the best.

User
Posted 07 Apr 2020 at 18:41

Thank you Andy 

🌈 hoping you stay safe and well x

User
Posted 07 Apr 2020 at 20:04

Are you sure they are giving him a tablet for his bones? It sounds like they are adding Zometa to help with bone strength but that is usually given as an infusion every few weeks. If it is zometa, did they give a warning about dental work? Not many dentists are working at the minute but usually, a man needs to visit his dentist to get any work done before starting Zometa as one of the side effects is overgrowth or death of the jaw bone. If he does need to go to the dentist in the future it will be important to let the dentist know he is on it.

Edited by member 07 Apr 2020 at 20:10  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Apr 2020 at 20:04

Angie, so sorry to hear your husband’s result.

My very best wishes to you both.

Angex

User
Posted 07 Apr 2020 at 21:47

To be honest as it was a telephone consultation it was difficult to take all the information in, the consultant said he would write to the GP straight away with the new prescription so until we get it from our GP we won’t know exactly what the tablet is. Nothing was mentioned about dentists. 
when we know what he is taking I will let you know.

thank you Lyneyre for your reply.

stay safe and well 🌈

User
Posted 07 Apr 2020 at 21:49

Originally Posted by: Online Community Member

Angie, so sorry to hear your husband’s result.

My very best wishes to you both.

Angex

thank you Ange.

stay safe and well 🌈 x 

User
Posted 16 May 2020 at 11:37

Hi all

i thought I would give you a quick update on Bri. He was admitted to Derby Royal hospital on 21st April to have his thigh pinned as the cancer has weakened his bone so much it could have fractured at anytime. The operation went well, he did contract a chest infection whilst he was in hospital (but luckily escaped catching covid ). He is now home recovering from the operation. 
we are waiting to hear from the consultant regarding treatment, it was mentioned that he could have radiotherapy to start with until he is fully recovered from the operation.

 

Hope your all staying safe and well 🌈 

 

User
Posted 24 May 2020 at 20:12
Hi Angie

How is Bri doing?

User
Posted 25 May 2020 at 17:26

Hi 

thank you very much for asking how Bri is?
He is doing ok still struggling to get about on the crutches but his leg is definitely getting stronger. Apparently the consultant said his leg inside was a mess ??.. I’m presuming he meant that the cancer had weakened his bone more than fist thought.

we are still waiting to hear from the cancer team regarding treatment but radiotherapy has been mentioned by the orthopaedic department but no dates have been sent through. Alison Bri’s cancer nurse has been worth her weight in gold helping with pain management and just generally helping us through this difficult time.

Hope your keeping safe and well 🌈

User
Posted 25 May 2020 at 17:29

Originally Posted by: Online Community Member
Hi Angie

How is Bri doing?
 

I have just posted a reply to you but didn’t tag you in it sorry didn’t realise I could reply directly to you.

hope your keeping safe and well 🌈

User
Posted 25 May 2020 at 21:18
Just to be clear, they aren't talking about RT as a treatment for the cancer - perhaps one or 2 zaps to help stabilise the tumours in a couple of the bones?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 May 2020 at 09:15

Originally Posted by: Online Community Member
Just to be clear, they aren't talking about RT as a treatment for the cancer - perhaps one or 2 zaps to help stabilise the tumours in a couple of the bones?

its difficult to say, as at the moment I’m not allowed in to appointments with Bri so I’m hearing everything second hand???!!!
I am extremely worried that they said his leg was a mess, I’m thinking as the cancer was aggressive last time it’s aggressive again and that when we finally get to see the consultant things are going to be worse, Bri hasn’t been well the last few days, he hasn’t got a temperature but is extremely tired has no appetite, the GP is ringing him this  afternoon about a medication review so I will try and speak to him later and get his thoughts on what is happening. 

thank you for replying it means so much especially at these strange difficult times 🌈🌷🌈 

User
Posted 26 May 2020 at 09:44
Sorry Angie, I didn't word that very well. I was trying to help you manage your expectations - I wasn't asking you. Bri has advanced cancer so they are unlikely to be talking about him having a curative course of RT.

It is still the same cancer so it will still be as aggressive as it was when he was diagnosed.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 May 2020 at 10:42

Originally Posted by: Online Community Member
Sorry Angie, I didn't word that very well. I was trying to help you manage your expectations - I wasn't asking you. Bri has advanced cancer so they are unlikely to be talking about him having a curative course of RT.

It is still the same cancer so it will still be as aggressive as it was when he was diagnosed.

Thank you I hadn’t thought about it like that but that makes sense now thank you. 

User
Posted 16 Jun 2020 at 19:47

Hope your all keeps safe and well🌈.

Update on Brian

Bri had the pin put in his leg from his hip to his knee, that was healing well then last Monday 8th June, Bri was getting out of bed and he heard a click in his hip, and was  in excruciating pain, cutting a long story short he was taken by ambulance to Derby Royal and they confirmed he had two fractures in his hip above the pin, luckily they were the type of fractures that heal themselves. He is recovering well and getting around the house well using his crutches.

we went to the hospital today to see his consultant and get the results of his PSA, in March the PSA was 25 today it’s 125 πŸ™. They are putting Bri on Enzalutamide, we are going to pre treatment assessment on Monday where they will explain all about the drug and side effects then if everything is ok he will start it on Tuesday.

They showed us Brian’s last bone scan and there are specs of cancer in his spine, ribs, left shoulder blade,right upper arm but the main mass is on his left hip. 
we are hoping and praying this treatment is successful in holding back the cancer.

best wishes Angie xxx 🌈 

 
Forum Jump  
123>»
Email this conversation Print this conversation

Similar Topics

Brachytherapy - worrying times by Nursielynz
in Side effects
Worrying times by lindy
in Supporting someone with prostate cancer

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2025 Prostate Cancer UK