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Worrying time

User
Posted 12 Jul 2020 at 14:28
Angie,

Thanks for sharing this. Best wishes to you and Bri.

Rob

User
Posted 12 Jul 2020 at 15:43
So sorry for your difficult times. Hoping something can be done to manage the brain tumor.

Good luck

Cheers

Bill

User
Posted 12 Jul 2020 at 16:30

I just wanted to say I have just read your thread and am so so sorry to hear your latest news.

Fingers crossed for a plan to sort this out. You have been through so much and deserve a breakdown fingers crossed.

Clare

User
Posted 12 Jul 2020 at 17:17

I am so sorry and hope something can be done.

User
Posted 12 Jul 2020 at 19:00

I am so sorry to read about Bri, my thoughts are with you both.

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 12 Jul 2020 at 20:01

Originally Posted by: Online Community Member
Devastating development. Could Brian cope with an op or some form of radiation if this was considered a possibility?

Hi Barry

it all depends on what the specialist at Nottingham decide really, but at the moment Bri wouldn’t be strong enough to cope with another operation.

Xxx

User
Posted 12 Jul 2020 at 20:04

Thank you all for your kind words and good wishes, I will post an update as soon as we know anything.

🌈🙏🏻🤞🏻

User
Posted 12 Jul 2020 at 21:29

So very sorry to hear your devastating news Angie.  I hope the specialists at Nottingham are able to offer Bri some treatment to help.  Look after yourself too, such an awful time you have both been through.

Ange xx

User
Posted 12 Jul 2020 at 22:49
Oh Angie, I am so, so sad to see your post. We have had a few brain tumours in our family so I completely recognise your description of the confusion and the words coming out jumbled up. The steroid should reduce the pressure on his brain quite quickly and bring back your Bri to you - I do hope so. Have they suggested that it may be a prostate cancer met?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 13 Jul 2020 at 20:44

Originally Posted by: Online Community Member
Oh Angie, I am so, so sad to see your post. We have had a few brain tumours in our family so I completely recognise your description of the confusion and the words coming out jumbled up. The steroid should reduce the pressure on his brain quite quickly and bring back your Bri to you - I do hope so. Have they suggested that it may be a prostate cancer met?

The Macmillan nurse phoned me and she thinks it is possibly secondary but until we get the results we won’t know.
he had a phone call at 2pm today for an appointment at 5.30 today for an MRI scan, so the hospital are not hanging   around. 🤞🏻🙏🏻🤞🏻🙏🏻 

User
Posted 13 Jul 2020 at 21:45

Thinking of you both xx

User
Posted 02 Aug 2020 at 11:50

Hi a further update on my Bri

The test came back and confirmed the tumour is secondary from the bone cancer, it’s been a very tough few weeks for Bri, he is slowly losing more and more abilities, he can speak but it very rarely makes sense what he is saying, He cannot understand what is being said to him, he now relies on a wheelchair to get about and on Friday I had to make the decision to have a bed downstairs for him as he is no longer able to climb the stairs. He had 4 sessions of radiotherapy last week, he should have had his 5th and final radiotherapy on Friday but he was to ill to go we are hoping that he can go tomorrow to have his last one, apparently it takes 6 /8 weeks before we will know if it has shrunk the tumour at all. 
Bri has gone from a very strong independent gentleman to a gentleman that now relies on me for absolutely everything.

we have the support of Macmillan and the district nurse came yesterday for the first time and We are  so lucky to have a wonderful family too.

when Bri was first diagnosed three years ago we never in our wildest dreams though that we would be on this path, we expected radiotherapy,chemotherapy and different thing but never did we think it would come to this. 

Stay safe and well everyone 🌈❤️

User
Posted 02 Aug 2020 at 13:30
I am so sad for you - it is rare for prostate cancer to spread to the brain but when it does, the effect is devastating; as you say, a very rapid decline. Do try to take care of yourself as well, Angie, while you are caring for Bri x
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 02 Aug 2020 at 15:15

So so sorry to hear this Angie. Your words really resonate in terms of the variability of the paths for the individual with this disease.

So so sorry that you and Bri have such a rough rough path.

Big hugs Angie

Clare

User
Posted 02 Aug 2020 at 15:43
So sad to hear this. Strength and love to you x

If life gives you lemons , then make lemonade

User
Posted 02 Aug 2020 at 18:08

So sorry to read this Angie. Love and hugs to you and Bri.

 

Ido4

User
Posted 02 Aug 2020 at 21:47

Such sad news Angie.  It is unbelievable what has happened in three years since Bri’s diagnosis. Sending you both love and hugs.

Ange x

User
Posted 03 Aug 2020 at 06:20

Very sad to read this, my thoughts and prayers to both of you.

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 11 Aug 2020 at 09:49

Hi all

Just to let you know Bri lost his fight with PC and passed away at the weekend, he was at home which is where he wanted to be, 💔😢💔

User
Posted 11 Aug 2020 at 10:04

Very sorry to read this. I have been moved by your & Bris story. My condolences to you and family.

 
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