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After Hormone Therapy

User
Posted 31 Aug 2020 at 16:58

Hey Phil

Got my 6 month PSA booked for 23 September.

Getting nervous now - it’s been nearly 18 months since HT finished.

Pete

 

 

User
Posted 31 Aug 2020 at 17:01

Best of luck Pete. Always a nervous time and I suppose always will be .......

Phil

User
Posted 07 Sep 2020 at 10:33

Good of you to respond Goalhanger.  ( I think I may have played against you in a few Park games where there is no referee! )  You seem to indicate that you were less physically affected by HT [I’m on Eligard] than myself;  and good luck to you for that.  I avoided mentioning anything about my mental state because it’s early doors and I just don’t know where I’m at in that regard.  As reassuring as a best ever PSA of 0.06 is,  there is a backdrop of mental anguish caused by what I perceived to be my muscles turning to mush.  I’m now an ex-mesomorphic athlete progressively shedding good quality and tastefully apportioned body-hair;  and who doesn’t even walk with the same previous co-ordination,  due to muscle wastage,  which I had life-long taken for granted.   Basically at this stage where statistically I have a 30% 5yr survival potential I am kind of optimising my chances,  but without any optimism if you get my drift;  and this a projection I make,  not begrudgingly,  on behalf of my 5yr old German Shepherd rescue dog.  If I said that currently life doesn’t seem very much worthwhile living it is more an appreciation of fact than an attitude.

’To treat or not to treat?  That was the question.  Whether ‘twas dumber in the mind to suffer the HT and IMRT etc etc … thereby taking arms against the BigC;  Or by not opposing,  end it?   The fascinating hypothetical that all advanced PC sufferers are obliged to consider.

There you are you see,  I said I was a bundle of fun,  didn’t I?

Cheers,  stay as well as you can be....
Julian

Edited by member 07 Sep 2020 at 10:35  | Reason: Not specified

User
Posted 07 Sep 2020 at 13:12

Hi Julian. Everyone seems to react differently to the Hormone Therapy , plus it’s also the fall-out of being diagnosed with a possible life limiting disease. 
I feel I am only just starting to get my head back 7 months after it should have started wearing off. 
I have no idea if I personally suffered more than ‘normal’ due to having some childhood issues rear their ugly head, but I certainly don’t want to go back on it. Fingers crossed I won’t have to but if the PCa comes back I suspect my family will want me to fight back with all the weapons at my disposal.

There are a few on this forum who have fought a brave battle with as little intervention as possible. As with most decisions in life no one knows what the outcomes would be had one chosen a different path.

Only 7 days till my next PSA and T tests ...and getting nervous. Then a telephone appointment with consultant or nurse. Much prefer a face to face but I suspect they’re not doing those now.

Phil

User
Posted 10 Sep 2020 at 08:17

It’s incredible what this thing does to you.

I am on 6 month reviews with my oncologist and that is happening in a couple of weeks.

For most of the 6 month period I don’t give much thought at all to my condition and I live in relative peace and harmony.

Yesterday I called my GP to tell him that I am getting very sharp pains in my right side when lying in bed and if I move the wrong way it can be extremely painful.

He has now ordered another radioactive  bone scan and an MRI scan for me.

So I now have  an upcoming PSA test, 2 scans and an oncologist appointment within the next few weeks.

And this morning I was suddenly filled with an overwhelming sense of dread.

Hopefully, all will be well and in a month from now I hope I can return to peace and harmony.

Until the next time !

 

 

 

 

 

 

 

User
Posted 10 Sep 2020 at 08:22

Best of luck Pete. Fingers crossed it’s something else and simple to fix.

Phil

User
Posted 10 Sep 2020 at 08:31

Cheers Phil - we all live in hope.

User
Posted 10 Sep 2020 at 10:14

Good luck Pete. Hopefully the pains are not cancer linked.

The dread you describe is so recognisable to me and I’m sure many others.

Ido4

User
Posted 10 Sep 2020 at 13:30
Gosh, your GP is a bit trigger happy! Fingers crossed but I am sure all will be well.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 10 Sep 2020 at 15:05

I guess he is just covering his derriere.

He did a similar thing a couple of years ago when I had a bad back.

 

User
Posted 25 Sep 2020 at 07:32

So, my latest 6 months results are PSA < 0.02 and Testosterone 9.2.

This is 2.5 years after salvage RT and 1.5 years after the end of HT.

Very happy with this and thankful.

Now in year 7 since diagnosis.

 

 

User
Posted 25 Sep 2020 at 15:01

That’s great Pete , long may it continue. I’m now 11 months after my last HT injection. Had my 6 monthly telephone consultation. PSA now 1.2 , up from 0.97. Consultant seems ok with that. Testosterone now up to 5.5, so a little way to go with that but a good improvement none the less.
Still seem to need antidepressants but I have at least reduced the dose.

Phil

User
Posted 25 Sep 2020 at 22:39

Great results Pete.  

User
Posted 25 Sep 2020 at 23:04

Good to hear your T results are progressing well Phil and that your Consultant is ok with your PSA result.  Hope you can relax a little for the next six months.  Sounds like you’re doing well managing to reduce your anti depressant dose.  Good luck going forward 😃

Keith will have his PSA test soon and then a phone consultation on the 15th October.  We are starting to feel anxious now as this will be his first PSA since completing his RT.  Hoping it’s good news.  He has had a lot of aches and pains, especially in his right hip, hopefully just the effects of the ongoing HT.  

All the best,

Angex 

User
Posted 26 Sep 2020 at 03:04

Hi Ange

Regarding aches and pains, I have them perpetually in my back , hips and side of my abdomen.

There have been times when I got scared because I thought they might be cancer related but I try to convince myself that they are due to a combination of over- exercising and advancing age.

My GP is supposed to have organised some scans to check but I am still waiting on a date for these.

l hope all goes well for Keith.

Edited by member 26 Sep 2020 at 03:05  | Reason: Not specified

User
Posted 26 Sep 2020 at 03:08

Good news on your results Phil.

Keep hanging in there.

User
Posted 26 Sep 2020 at 08:44

Great result Pete. 

Ido4

User
Posted 26 Sep 2020 at 15:22

Hi Pete,

Yes it’s very scary, every ache and pain we tend to think is related to the PCa.  When Keith was first diagnosed in August 2019 his bone scan revealed a lesion on the right hip.  Following the Team meeting his Oncologist decided to do chemo treatment first, which took place in March 2020.  On completion of 6 chemo sessions, and a further bone scan, his Oncologist was of the opinion, and the Team agreed, that as they could see no change to the lesion they were ALMOST certain it was not a met.  Keith then had RT to the prostate and now awaits a PSA test and consultation with Onco on 15th October.  So early days into this disease in the scheme of things, but we are still very suspicious about the hip!!  Holding our breath for the PSA result.  We are keeping our fingers crossed that he won’t have to stay on HT for life, he’s experienced twelve months of it and taken all the side effects in his stride and I think he’s been amazing.

Your latest results are great 7 years on and I can imagine how happy you are after all you’ve been through, really pleased for you.  Hope your GP can arrange your scans soon so you can have further peace of mind and keep moving forward. Like you, Keith keeps active and always has some sort of project on the go so we keep saying it’s only muscle aches and advancing age.

We’re all fighting this disease as best we can and trying to keep positive.

Good luck to all xx

User
Posted 28 Sep 2020 at 09:53
Hi All … and very good news Pete!
User
Posted 28 Sep 2020 at 10:12

Thanks Ange and Pete.

Fingers crossed for Keith’s PSA and consultation in October. As you say there’s always the worry that any ache and pain is PCa related.  
My consultant wants to see me in 4 months which I thought was odd but it will coincide with my year from when the HT should have started wearing off. ( last injection October’19).

Phil

 
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