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After Hormone Therapy

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User
Posted 28 Sep 2020 at 10:26

A simple question —— what is the normal T level for a 65 year old ? Dr Google only seems to show it measured on a different scale...

User
Posted 28 Sep 2020 at 23:02
Castrate level is generally thought of as 20 ng/dL or 0.7 nmol/L - normal levels are 250 - 1000ng/dL or 8.7 - 35nmol/L - a man of 65 could be in the lower half of the range rather than the upper half without anyone being concerned.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 29 Sep 2020 at 09:02

Thanks Lyn,

So my 5.5 is ok at 8 months since my HT started to wear off.

Phil

User
Posted 29 Sep 2020 at 13:59

Mine is only 9.2 and that is 18 months after the end of HT.

It falls within the range though and was described as normal.

Not that there is anything remotely normal about all this.

Edited by member 29 Sep 2020 at 14:01  | Reason: Not specified

User
Posted 30 Sep 2020 at 09:10

Pete, looking forward to getting the T back up 👍...

Good luck on your journey too.

Phil

User
Posted 30 Sep 2020 at 12:48

Originally Posted by: Online Community Member
Castrate level is generally thought of as 20 ng/dL or 0.7 nmol/L - normal levels are 250 - 1000ng/dL or 8.7 - 35nmol/L - a man of 65 could be in the lower half of the range rather than the upper half without anyone being concerned.

Your normal range doesn't agree with the lab my tests go to, which lists the NHS normal as 6.7 - 25.7 nmol/L, and yes, it drops linearly from age 25.

The tests for the GnRH Agonists that I've looked at regard ≤1.2 as castrate level, although all the actual measurements I've seen from people I know on GnRH Agonists are <0.5 (mine is 0.2).

User
Posted 30 Sep 2020 at 16:21
Isn’t it a bit of a vicious circle though Phil ?

Prostate cancer feeds on testosterone, so the higher the T score goes, the higher the likelihood of future problems if there are some cancer cells still lurking around ?

User
Posted 30 Sep 2020 at 16:47

Personally, at the moment I just want to get back to as close to normal again as I can. I can’t worry about the PCa coming back as it would consume my mind and mess up what future I have.

The HT was a journey that’s for sure.

But saying that I really do not want to go back on - I don’t know if I could deal with it all again...

Lets hope that the scientists can find a better way to deal with this dreadful disease in the future.

Take care

Phil

Edited by member 30 Sep 2020 at 20:46  | Reason: Not specified

User
Posted 11 Oct 2020 at 21:01

Hello! 2004 surgery to renove prostate, 2010 radiotherapy, 2016 Zoladex and Eligard. Now I have doubling PSA at 11.4 and PSA at 1,30 with HT. What should I do? Go with chemo? Any advice? Regards

User
Posted 12 Oct 2020 at 15:51

Hi gcf1942. You are on a completely different pathway to me so have no experience or knowledge of the chemo treatment. Hopefully someone will see and offer their experience and knowledge.

Good luck

Phil

User
Posted 12 Oct 2020 at 17:16
Hi gcf, what do you mean by doubling PSA at 11.4 and PSA at 1.30? the two numbers make no sense, possibly it is reported in a different way in your country?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 Oct 2020 at 17:34

His profile says doubling time 11.4, but does not specify weeks or months.

Thanks Chris

Edited by member 12 Oct 2020 at 18:32  | Reason: Not specified

User
Posted 12 Oct 2020 at 19:16

Also, Zoladex and Eligard ( = Prostap)?
Together?

User
Posted 12 Oct 2020 at 20:51
It's Brazil 🤷‍♀️
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 04 Feb 2021 at 12:58

So latest update ....consultation over phone this morning with nurse, not consultant.

PSA now up to 2.75 , was 1.2 in September with a lowest of 0.08 .

Testosterone now 8.8 which she says is fine.

She wants to keep an eye on the PSA so another test in 3 months ... Hoping it stays at that. Must admit I’m a bit worried now.

I also had what I thought was a water infection 4 weeks ago but antibiotics didn’t work and a test showed nothing up. It got a bit better but I am left needing to pass water more frequently- sometimes less than an hour between. Started needed to get up once in the night whereas before i slept right through. Also when I do go it’s a more urgent need than normal. Nurse is putting me back on Tamsulosin to see if that helps. 
Also got to get back to Kegel exercises as I found I can’t stop my flow much now whereas during my RT (July ‘18) I could release a cup full and go back to the waiting room ok when RT was delayed.

Hope everyone else is doing ok ?

Phil

 

User
Posted 04 Feb 2021 at 20:35

Sorry your PSA has risen Phil. Have they discussed what will happen if PSA rises again over next 3 months?

 

Ido4

User
Posted 04 Feb 2021 at 21:17

Sorry to hear your latest news Phil - stay positive.

My next PSA update is in March - beginning to think about it now.

 

 

User
Posted 04 Feb 2021 at 22:20
Phil , all best wishes to you. Thank you for all your support. Hope things come good and just keep living between results ok. That’s the most important thing for sure !

If life gives you lemons , then make lemonade

User
Posted 05 Feb 2021 at 00:37
Goalhanger was it a dip test at the GP practice or a proper test sent off to the lab? That doubling time is remarkably short for a cancer recurrence so my instinct would be deep seated infection or inflammation; the other symptoms would also point that way.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 05 Feb 2021 at 09:21

Thank you for all your support guys, and gals. Much appreciated.

Firstly, she never mentioned what we will do if the PSA goes up again. It wasn’t a consultant it was some kind of support nurse. I was expecting better news or I would have thought the consultant would have spoken to me ...

I suspect it means more HT ??? She didn’t seem overly concerned whereas my head just started spinning and didn’t think to ask about future treatments. 

The water infection test was sent away but to be fair it was getting slightly better by then. I will try the Tamsulosin for a month and see what happens.

With regard to the PSA I just have to wait and hope it doesn’t go up anymore ....

I must admit when it went to 1.2 I got worried  as I read most of those that had RT/Brachy had their PSA stay fairly low.

Must try not to worry now , easier said than done .....

Forgot to mention best of luck Chris, hope the Bicalutimide and Decapeptyl both work well, and Pete good luck with your PSA test in March. 

Take care all

Phil

Edited by member 05 Feb 2021 at 10:21  | Reason: Not specified

 
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