Teacups, more of our lovely friends stepped in to help yesterday to get to the hospital :) A firefighter and a policewoman, both with great manual handling skills. The best bit was using a black rubbish sack for slithering across the seat! N was actually able to stand from the wheelchair and then shuffle a little and sit straight onto the seat. It's a Honda Stepwagon, the seats are very high, not great for shorties like me but N has no trouble. Our friends came with us and waited then helped to get back in the car, followed us home and helped put him to bed again. I feel so lucky to have this support.
We met a new onco yesterday and our appointment was not one of doom and gloom, yay!
Radiotherapy to be booked for 1 zap of the prostate to try and improve bleeding and relive pressure in that area on the bowel/urethra etc. Onco thought given N's history so far he is likely to suffer some side effects such as diarrhoea etc.
Ct scan and bone scan booked to see what's what as psa has increased from 33 mid December to 203 last week.
Enzalutimide to be started in a couple of weeks, this is now available because the Abiraterone was working, psa Oct was 80 and on Abiraterone it had come down to 30'see but onco felt that N's problems in the last few weeks were due to poor tolerance of the Abiraterone in conjunction with SIADH treatment. So we get another drug, if N improves enough to start it.
Onco felt N will improve as his blood tests showed he was fairly stable now in terms of hb, sodium, potassium etc. Alp was 240, down from 400ish.
Onco has a special interest in genomic treatments and gave me details.of the Barcode2 trial to go through with N, again, if he is well enough. He certainly isn't fit enough to travel at the moment or have any chemotherapy (carboplatin) if he was identified to have a suitable gene mutation for it.
N's legs are very painful this morning from yesterday's exertion but he is keen to get moving again, so the next couple of weeks will be focused on trying to regain some strength.
Xx