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Psa300

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User

Posted 21 Sep 2018 at 22:46

husband 57. Fit as fiddle

had hoods taken for MOT. psa. 300!

No symptoms

no issues with urinary or erectile no blood no pain

terrified ! So high

waiting for app with consultant. He is ex navy and big, hard uncommunicative guy

he is also scared but can’t show it

help,

User

Posted 22 Sep 2018 at 12:13

Deleted

Edited by member 30 Dec 2018 at 17:54 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 23 Sep 2018 at 12:03

Deleted

Edited by member 30 Dec 2018 at 17:55 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 22 Sep 2018 at 10:45

Deleted

Edited by member 30 Dec 2018 at 17:54 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 23 Sep 2018 at 03:06

Strange that worked for me when I checked but here is another way https://vimeo.com/169926390

original amended

Edited by member 23 Sep 2018 at 03:07 | Reason: Not specified

Barry

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User

Posted 22 Sep 2018 at 00:53

Did he have a digital rectal examination (finger up the bum in layman’s terms)?

User

Posted 22 Sep 2018 at 06:02

Yes the poor bugger. Doc reckons nottoo swollen but can feel hard area to it

User

Posted 22 Sep 2018 at 06:53

Sorry to hear that. Needs to push on ASAP with further investigations. Ask if you can get mpMRI scans in your area before they do biopsies and then insist on template biopsies as that is much more likely to find any problems. Good luck

User

Posted 22 Sep 2018 at 10:18

I concur with tonyc. Best practice is an mpMRI scan FIRST, and then a biopsy. If at all possible avoid a TRUS biopsy (again up the bum) and elect for the far more accurate template biopsy (usually under general anaesthetic).

And again, best of luck.

Cheers, John.

Biggest Leap Forward in Diagnosis for Decades

Is pre-biopsy mpMRI scanning available in my area?

Edited by member 22 Sep 2018 at 10:33 | Reason: Not specified

User

Posted 22 Sep 2018 at 10:45

Deleted

Edited by member 30 Dec 2018 at 17:54 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 22 Sep 2018 at 11:32

What I wrote was not ‘poor advice’. I said go for an mpMRI FIRST, and then as you say, there may be no need for any biopsy and its potential side-effects.

If there is no mpMRI facility in their area, then they are in the hands of their medical professionals as to the way forward.

User

Posted 22 Sep 2018 at 12:13

Deleted

Edited by member 30 Dec 2018 at 17:54 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 22 Sep 2018 at 12:29

Originally Posted by: Online Community Member

Best practice is an mpMRI scan FIRST........If at all possible avoid a TRUS.........elect for the far more accurate template biopsy

User

Posted 22 Sep 2018 at 13:25

Template biopsy is only "best practice" if there is no obvious target for biopsy or the disease is anterior located (I beleive).

Probably best to let the specialist decide what is best practive.

What is definitely best practice however is for the patient to ask questions like " would it be better for me to have a template biopsy" .

User

Posted 22 Sep 2018 at 14:55

Which is exactly why I took the trouble to look up and post the hyper-links to the PC UK PROMIS results and to the American survey which states that an mpMRI scan can make a biopsy unnecessary.

Not at all ‘poor advice’ for Reenmatch and her husband.

Cheers, John.

Edited by member 22 Sep 2018 at 14:57 | Reason: Not specified

User

Posted 22 Sep 2018 at 23:21

This is a short video with one of my consultants' at the Royal Marsden talking about MRI and biopsy concerning the PROMIS trial. MRI can be be very useful indicator and scans are improving but you you can't place total reliance on them despite what appears to be suggested, as we know from the experience of some men on this forum. https://vimeo.com/169926390

Edited by member 23 Sep 2018 at 03:21 | Reason: link problem

Barry

User

Posted 23 Sep 2018 at 01:13

Your hyper-link seems to go to a Google search page about the eminent oncologist Dr. Chris Parker, rather than a specific article, Barry.

My point was that mpMRI can work in two ways to avoid unnecessary biopsy. One, if nothing shows up, you are probably in the clear. Two, if a tumour is present together with a high PSA then PCa is very likely and again no biopsy required, bring on the HT for a start.

Cheers, John.

User

Posted 23 Sep 2018 at 03:06

Strange that worked for me when I checked but here is another way https://vimeo.com/169926390

original amended

Edited by member 23 Sep 2018 at 03:07 | Reason: Not specified

Barry

User

Posted 23 Sep 2018 at 05:26

Thank you Barry, very helpful as ever.

“.........the TRUS biopsy is as bad as we thought it was......there is no way I would have a biopsy before an MRI.......” - Dr Chris Parker of the Royal Marsden Hospital and Chairman, the National Cancer Research Institute Prostate Clinical Studies Group.

User

Posted 23 Sep 2018 at 12:03

Deleted

Edited by member 30 Dec 2018 at 17:55 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 23 Sep 2018 at 14:46

I am very sorry Reenmatch, that your innocent questions about your husband’s PSA have descended into inane internet squabbles about particular diagnostic procedures. I guess that’s the WWW today.

Please read through everything nevertheless, as no-one is lying to you, but as ever, people have differing opinions. Please bear in mind we are all laymen here, and your best bet is to listen to what your clinicians tell you, but also have an idea what they are on about, from this forum.

User

Posted 28 Sep 2018 at 23:15

Blimey! Well that was a ****storm!

its actually helpful to see the conflicting advice as it means there is no definitive way forward

i do think though as a NHS patient we have very little power!

I cant insist on any option simply listen and hope our medical practitioners are decent?

best thing that happened today was

MRI done

and daughter blabbed and told his mates! I wanted to throttle her! As we are ex military, stoic, hard nosed and private people

But I guess it’s helpful his mates can now support him

Edited by moderator 29 Sep 2018 at 08:07 | Reason: Not specified

User

Posted 29 Sep 2018 at 06:11

One thing I would strongly advise would be to speak to one of the PCUK nurses here. They are so well informed and offer impartial clinical advice as well as being wonderfully understanding and supportive. They will take as much time as you need and will try to answer any questions you come up with no matter how daft. They are also not tied to any particular treatment option so their advice is completely impartial. The nurses I have spoken to at my hospital are less able to be as open, because as they explained to me, they work eith s consultant who does one kind of therapy. So they openly admit they may be biased. The PCUK nurses do not have those ties

i spoke to them, they are angels who helped me sort out the jumble of thoughts crashing about in my head and made my decision making so easy

Wish you all the best

Geoff x

User

Posted 29 Sep 2018 at 07:28

Good luck Reenmatch, I am also a wife doing the posting as this is not my husbands sort of thing.

With a PSA of 300 your husband is starting from a very different place to mine ( his was 3.56) other than having no symptoms at all so was perfectly continent and no erectile dysfunction at all.

Your MRI ( if it was an MpMRI) should give a PIRAD score. I recommend googling PIRAD to make sure you understand what it is saying. I also believe in asking for a hard copy of the scan results plus a CD of the scan in case you ever want someone else to look at it. This is me though .. I like full information but others willl advise ‘ do not google’ but we are all different and nothing makes me feel worse than feeling ‘ in the dark’

it all felt better when a diagnosis is given and a plan was in place so this is probably difficult times for you. There is a lot of research on going and a lot of clinical trial successes to take note of.. it helped me to know that.

so just from one wife to another all the best ..

Clare

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