I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<12

Psa300

User
Posted 29 Sep 2018 at 16:06

Originally Posted by: Online Community Member

Blimey!  Well that was a ****storm!

I do think though as a NHS patient we have very little power!..........and daughter blabbed and told his mates! I wanted to throttle her! 

Check out my profile and posts and you will see what the NHS can achieve, with gentle prompting and a little awareness of what’s what on your part.

Why be embarrassed about it? My friend was but he is still going strong at 82, thirteen years later. He’s not “ashamed” any more! He’s proud to be a survivor.

Anyway, your daughter might have done his mates a big favour in encouraging them to get their own PSA tested.

Cheers, John.

User
Posted 05 Oct 2018 at 22:12

MRI 

97 % chance cancer 

67% aggressive 

They don’t pull their punches do they  ........l..Well ! 

It was a 8pm appointment with consultant so that was BAD 

you know if they leave you till last it’s cos they don’t want you blubbing in front of a room full of patients 

GUTTED   

next step local anaesthetic biopsay in five days 

and bone scan.    

He has mentioned suicide Jokingly? 

 

 

User
Posted 05 Oct 2018 at 22:16
I forgot to ask to see scan or ask for hard copy

Too much in shock

Rather than press around

Would it not be best to ask for radical removal of Prostate and be done with it !

Rather have bloody stupid biopsies and waste valuable time ?

Pathology are short staffed and can take three weeks for results

User
Posted 05 Oct 2018 at 22:37

Deleted

Edited by member 30 Dec 2018 at 17:55  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 06 Oct 2018 at 01:53
I obtained a DVD of my MRI scan but I have never watched it, and I could hardly see the tumour when it was pointed out to me on the consultant’s computer, despite it being 15mm in size! I think you have to be highly trained to interpret MRI imaging.

Prostate cancers are usually slow-growing, so don’t be too alarmed at the time scale for diagnosis. I went seven months from raised PSA to surgery, largely due to me getting second opinions and weighing up all my options. I am sure he is in good hands.

Best of luck.

Cheers, John.

User
Posted 06 Oct 2018 at 11:08

A biopsie is the only way to know for what is going on.  I was concerned over the time aspect but was assured by the PCUK nurse that a few weeks is a very short time in prostate cancer terms, not much will change in that time.  I'm now waiting for my op, 7 Nov, a month to go.  There is a bit of me that still worries over this delay despite the advice I've had, I think it's only natural.

one other thought, please bear in mind that you do have the option to choose where you have the op, and who does it, if you are not happy with the person you are currently seeing

all the best

Geoff 

User
Posted 06 Oct 2018 at 12:48

Hi Reenkamp, confusing isn't it! But only if you delve too deeply. 

The NHS has a protocol which they follow, they've handled tens of thousands of PC cases, so they know far far far more than me. 

I followed their guidance, which was

Do another PSA in 3 months

Mri scan

Biopsy, a template one because it showed a potential lesion at the back of the prostate, and going up the bum couldn't reach it. 

Yes it had cancer cells

Told me all options were open to me, watch and wait, RT, or surgery. I chose RT after hormones. 

6 months on, I'm mended!!!! 😀

My advice is to have trust, don't try to second guess everything, just take each step as it comes. 

When we are first told we MIGHT have cancer, we all want to rush and get rid of it. I remember urging my consultant to get a move on, he said we have a protocol which works, so why rush, when you've already had this problem for years  It doesn't work like that. 

It's a long pathway, because you'll probably be put on hormones for three months before any treatment starts. Knee jerk decisions, such as wanting surgery have consequences, which you need to understand. 

Don't worry, we are involved in the decision making, but only when it's appropriate. 

Don't panic, all will become clear, but only when you work through each stage. 

Good luck, be patiient, my treatment from start to end was about 15 months, but it worked. 

 

User
Posted 06 Oct 2018 at 20:44
We have been told by consultant three weeks for path lab to give results .

Is it possible to have quick turn over if we offer to pay for results?

User
Posted 06 Oct 2018 at 21:52

Originally Posted by: Online Community Member
We have been told by consultant three weeks for path lab to give results .
Is it possible to have quick turn over if we offer to pay for results?

I don’t think so. Even if you had a template biopsy privately at around £1500 it still takes 2-3 weeks for the results.

User
Posted 07 Oct 2018 at 08:32
Yes, talk openly to your mates, you will be surprised because you often find one or two who will tell you they were diagnosed 15 years ago, but haven't done anything yet, they just stay on active surveillance and quite expect to die of something else first.

Besides, none of the treatment options are pleasant, even AS could involve biopsies. Be careful what you wish for. They won't do a biopsy until they do the mri, and they won't offer treatment options until the biopsy results. The odds are that he will likely be put on a 3 month course of hormones before they do the agreed treatment.

In reality, there's no rush, neither are there any shortcuts.

In practice we all panic, but soon just get used to it. It'll take many months before he's mended, don't waste a year panicking.

User
Posted 07 Oct 2018 at 10:20

Deleted

Edited by member 30 Dec 2018 at 17:56  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Oct 2018 at 10:38

Mine was like that as well, Lynn, but as soon as the results were available the specialist nurse rang me to update me with the news that it was cancer with a gleason of 7. She also told me that with this score, all treatment options were available. She also invited me to come and discuss the options with the team of consultants in a couple of weeks. I seem to remember being asked if I wanted news as soon as it was available. I can't remember, but I would have said yes. 

That gave me chance to do a bit of research (on here) so I was well prepared for these discussions.

The early news was much appreciated. 

 
Forum Jump  
<12
©2025 Prostate Cancer UK