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15 years (nearly) completed

User
Posted 12 Sep 2017 at 14:02

Aged 58 at diagnosis ar G8. The rest is in my profile. I'm very much aware many have not done so well. One can only hope as new treatments come on line that 13 years will be more common. 

Good luck to all

Ray

Edited by member 01 Jul 2019 at 15:55  | Reason: Not specified

User
Posted 12 Sep 2017 at 14:02

Aged 58 at diagnosis ar G8. The rest is in my profile. I'm very much aware many have not done so well. One can only hope as new treatments come on line that 13 years will be more common. 

Good luck to all

Ray

Edited by member 01 Jul 2019 at 15:55  | Reason: Not specified

User
Posted 12 Feb 2019 at 15:24
Difficult to post when other folks are going through tough times. However on balance I feel my results might give hope to some.

My profile formatting seems to have gone astray - oh well never mind.

Jan 2019 PSA 0.726

Next meet July.

Ray

User
Posted 13 Sep 2017 at 09:44

well done Ray, tony is now in his 11th year and gleason 9. he was diagnosed at 61. looking forward to his 13th year anniversary and your 15th year one. x

regards barbara

User
Posted 14 Sep 2017 at 07:39

Thanks both.

Barbara, Tony is doing very well. You will overcome the recent scare (from your profile) -keep fighting.

Ray

User
Posted 02 Jul 2018 at 16:32
Just updating PSA to show after RT it can move around somewhat. Now at 1.57. Test again in 3 and 6 months - see consultant in 6 months. Hopefully without tempting fate Sep will be completed 14 years from diagnosis and no cancer treatment for past 10 years.

All keep as well as you can

Ray

User
Posted 09 Jun 2019 at 01:00

Hi Andy & Malcolm,

When I ended my original Zoladex treatment in August 2016 (last injection twelve weeks prior to that), I was concerned that I still didn't feel anything had changed by the following May (2017). 

My GP sent me for a testosterone test and the results confirmed that my level was still at 0.3.  The normal level is in the range of 7 to 31 so it was clear that things hadn't changed from when I was on treatment.  A couple of months later I found that things seemed to returned to normal and I felt so much better.  It had taken nearly a year to get the drug out of my system.  I felt so much better in every way.  My libido returned and I was able to enjoy sex again. 

Unfortunately, in my case, this was only to last for nine months as I had to restart Zoladex again in March last year due to my PSA rising again (doubling every 12 weeks). 

So for me, HT will now be for life, as even with the treatment, my PSA is still rising, though at a slower rate (doubling every 8 months).

Steve 

Edited by member 09 Jun 2019 at 01:36  | Reason: Not specified

User
Posted 10 Jun 2019 at 10:16
Hi

In my case if you would have asked 12 months after HT ends my reply would have been something like pretty much back on track other than ED and decreased level of hot flushes. However although ED remained as each year passed fitness improved, hot flushes decreased further and a sense of just feeling better. That theme continued for a good 6 years. At present ED remains, hot flushes continue at a low level and far less frequent. Taking increased age into account I'm happy with my level of fitness. I still feel it was worth sticking with HT even when the planned 36 months turned into 47.

Ray

Show Most Thanked Posts
User
Posted 12 Sep 2017 at 18:13

Brilliant Ray, keep on keeping well x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 Sep 2017 at 19:03

Pleased to hear the news ,

I hope you have many more 

Just keep a close watch on your PSA don't let it drift , I Did

Barry

Edited by member 12 Sep 2017 at 19:05  | Reason: Not specified

User
Posted 12 Sep 2017 at 20:41

Good result so far - here's to many more years. It's 10 years this month since my diagnosis but I am aiming for more years even if it means further treatment.

Barry
User
Posted 12 Sep 2017 at 22:25

Keep plodding on Ray.  http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

 

Roger
User
Posted 13 Sep 2017 at 06:30
R

Great news and long may it continue.

Thanks Chris

User
Posted 13 Sep 2017 at 08:14

Thanks to all for the comments and good luck on your own life journey.

Ray

User
Posted 13 Sep 2017 at 09:44

well done Ray, tony is now in his 11th year and gleason 9. he was diagnosed at 61. looking forward to his 13th year anniversary and your 15th year one. x

regards barbara

User
Posted 13 Sep 2017 at 22:56

Excellent results Ray.

Keep going.

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 14 Sep 2017 at 07:39

Thanks both.

Barbara, Tony is doing very well. You will overcome the recent scare (from your profile) -keep fighting.

Ray

User
Posted 14 Sep 2017 at 09:24

Well done Ray, you have always been a great help and inspiration to me.

:)

Dave

User
Posted 14 Sep 2017 at 12:08

Brilliant Ray...plenty more years to come

Bri

User
Posted 14 Sep 2017 at 21:53
I think another one for the hall of fame ! Fantastic keep on keeping on Ray.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 14 Sep 2017 at 22:03
Thank you, Ray, and the other 'long timers' - you give me hope and I am grateful for that.

Ulsterman

User
Posted 15 Sep 2017 at 02:53
Well done, Ray.

13 is certainly a lucky number for you.

All the Best,

Steve

User
Posted 15 Sep 2017 at 08:19

Thanks all for the kind words. I've always been inspired by those fighting against whatever thier own journey throws at them so thank you all for helping me.

Ray

User
Posted 23 Oct 2017 at 19:56
Well done Ray just keep it going, I am a month short of 14 yrs and still going strong.
User
Posted 23 Oct 2017 at 20:05

Brilliant Ray.  Good to see positive news.   

My brother has just taken 'RT' route,  so your PSA values in your profile are very useful.

May I ask:

I assume you have a PSA test  this month ?  (ie do you 'call them in' or wait for appointments )

 

All the very best

Gordon

 

User
Posted 24 Oct 2017 at 07:50
Congratulations ray fantastic news, my partner at the start of this journey, 6weeks into Ht awaiting Hd brachy/Rt so you are realy an inspiration that longevity does happen, just reading your news has given me such hope, (and possibly a little tear in my eyes), thank you to all your advice and contributions towards helping others on their journeys ray, your inspirational, keep on keeping well.take care..jo.xx
User
Posted 02 Jul 2018 at 16:32
Just updating PSA to show after RT it can move around somewhat. Now at 1.57. Test again in 3 and 6 months - see consultant in 6 months. Hopefully without tempting fate Sep will be completed 14 years from diagnosis and no cancer treatment for past 10 years.

All keep as well as you can

Ray

 
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