15 years (nearly) completed

User

Posted 14 Feb 2019 at 00:16

Good to hear you are still doing well Ray, very encouraging for others too.

Prompted by what said about Bio - now finds it's consolidated into one long paragraph which makes for hard reading and one short sentence. I suppose I will have to precis and rewrite it but have too much going on to do so at present.

Barry

User

Posted 14 Feb 2019 at 09:01

Thanks to all for the comments, much appreciated.

As regards profile if I try to edit via mobile there is just a postage stamp size screen.

Ray

User

Posted 08 Jun 2019 at 05:27

Ray,

Was browsing and came across this thread.

I notice you were on Zoladex for nearly 4 years. It would be interesting (to me at least) to know how long it took to recover from hormone therapy side effects, and if you think you made a full recovery after such a time on HT. I guess that's one of my concerns.

Cheers.

User

Posted 08 Jun 2019 at 16:26

That’s what I have been trying to find out had a couple of replies look at my question , my last injection `wears off ‘ next week , womder if side effects wear off in say 3 months???

User

Posted 09 Jun 2019 at 01:00

Hi Andy & Malcolm,

When I ended my original Zoladex treatment in August 2016 (last injection twelve weeks prior to that), I was concerned that I still didn't feel anything had changed by the following May (2017).

My GP sent me for a testosterone test and the results confirmed that my level was still at 0.3. The normal level is in the range of 7 to 31 so it was clear that things hadn't changed from when I was on treatment. A couple of months later I found that things seemed to returned to normal and I felt so much better. It had taken nearly a year to get the drug out of my system. I felt so much better in every way. My libido returned and I was able to enjoy sex again.

Unfortunately, in my case, this was only to last for nine months as I had to restart Zoladex again in March last year due to my PSA rising again (doubling every 12 weeks).

So for me, HT will now be for life, as even with the treatment, my PSA is still rising, though at a slower rate (doubling every 8 months).

Steve

Edited by member 09 Jun 2019 at 01:36 | Reason: Not specified

User

Posted 10 Jun 2019 at 10:16

In my case if you would have asked 12 months after HT ends my reply would have been something like pretty much back on track other than ED and decreased level of hot flushes. However although ED remained as each year passed fitness improved, hot flushes decreased further and a sense of just feeling better. That theme continued for a good 6 years. At present ED remains, hot flushes continue at a low level and far less frequent. Taking increased age into account I'm happy with my level of fitness. I still feel it was worth sticking with HT even when the planned 36 months turned into 47.

Ray

User

Posted 01 Jul 2019 at 11:07

Latest PSA hardly moved at 0.743. Don't wish to temp fate but come Sep that will be 15 yrs since diagnosis.

As regards waterworks I got on Vesicare via back door rather than consultant as I knew con's wouldn't agree. I've recently had problem starting to pee and eye pressure rising. As soon as I said that "off them now" See con's in 3 months re different pills or whatever. I'm down to sse opto consultant Friday.

Good luck to all.

Ray

User

Posted 01 Jul 2019 at 11:33

Hi Ray

good news on the PSA and hope you get on ok on Friday with your eyes. all the best

Barbara x

Notification

Join the online community now.