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From docetaxel to ??? - the interregnum

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User
Posted 20 Sep 2017 at 20:53
David ,
Trevor did brilliantly on the Raduim 223 and is still having good relults 6?months on . It helped with pain and mobility I have only got good things to say about it .
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON
User
Posted 21 Sep 2017 at 10:15

David,


 


Met with my Onco on Tuesday for the results of my PSMA PET Scan.


This scanner really does pick up every pin prick.


So, I have couple of spots (I mean less than 1mm) in areas not wanted and my bone mets and lung mets have increased during my wonderful 5 month Chemo holiday.


So that holiday is now at an abrupt end and I am looking forward to a further 4 - 6 cycles of Docetaxel commencing on Wednesday. Onco may change it to Caza depending how I go


I have that feeling when I was in the queue, (many, many years ago) for the Space Mountain ride at Disneyland Paris.


Bring it on I say!


The journey continues.


Regards


 


Dave


 


 

"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"
User
Posted 21 Sep 2017 at 10:25

Dave,

Sorry to hear that but I can see why your Onco wants to put you on chemo again whilst you are asymptomatic and still physically strong enough to deal with it. Abbi or Enzo can be kept for a later date as can Radium 223.

User
Posted 21 Sep 2017 at 14:18

David,


 


Those were his exact words


 


Regards


 


Dave

"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"
User
Posted 21 Sep 2017 at 15:50
Dave
Whatever treatment you get I Hope it all works out for you, as your "strap line" has been a source of inspiration for me since February.
All the best----J.
User
Posted 21 Sep 2017 at 15:54
David
I too echo everyone's thoughts and hope that any new treatment regime brings you some additional relief.
All the best
J.
User
Posted 21 Sep 2017 at 18:13
Dave, I echo the last few replies. Hope you get positive results from the next phase of treatment. Best wishes, Ian.

Ido4

User
Posted 25 Sep 2017 at 17:51

So I now know the ??? in the title of this thread will become Radium 223. Therefore, I will shortly create a new thread where I will document the highs and lows of Radium 223. The first infusion of a maximum of six will be on 10/10/17. Thereafter 4 weekly with bloods at the end of the second week.

User
Posted 25 Sep 2017 at 18:08

Colin 


Just a quick word,


good luck


Barry

User
Posted 25 Sep 2017 at 18:31

Originally Posted by: Online Community Member


David,


 


Met with my Onco on Tuesday for the results of my PSMA PET Scan.


This scanner really does pick up every pin prick.


So, I have couple of spots (I mean less than 1mm) in areas not wanted and my bone mets and lung mets have increased during my wonderful 5 month Chemo holiday.


So that holiday is now at an abrupt end and I am looking forward to a further 4 - 6 cycles of Docetaxel commencing on Wednesday. Onco may change it to Caza depending how I go


I have that feeling when I was in the queue, (many, many years ago) for the Space Mountain ride at Disneyland Paris.


Bring it on I say!


The journey continues.


Regards


 


Dave


 


Good luck Dave


 


Barry


 


 


User
Posted 26 Sep 2017 at 18:36
So Mr D it's Raduim 223,
I have only got good words to say about it and Trevor is living proof of that .

They give you a really nice leaflet of dos and don't s the treatment is over in minutes so that's no Biggie .
Trevor felt a bit sick after his first treatment but after that it was a breeze .

The below advice is only for about a week after that you can piddle on who you like , but always refer to your leaflet . 🤗

Yes you will be radioactive for awhile so .
No kissing or weeing on pregnant women ( hopefully that bit will be easy) 😄
Any dribbles on the toilet seet need to be cleaned asap ( all normal rituals for any man living in my house) 😂

Separate washing of clothes
Oh and thank you so much for your lamb recipe ( I love it and Trevor wants me to try it ) I will report back on how much he has enjoyed it because unfortunately that's the the other thing with Raduim 223 , you can't eat lamb for at least 6 months after the end of treatment. 😘

BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON
User
Posted 26 Sep 2017 at 18:43

Originally Posted by: Online Community Member
unfortunately that's the the other thing with Raduim 223 , you can't eat lamb for at least 6 months after the end of treatment. 😘


Oooooooo, you little fibber you.

User
Posted 27 Sep 2017 at 20:44
Hi Col
John has had two infusions of Radium 223. It's easy enough to manage the toilet habits for the few days afterwards, even with an SPC. He has definitely been unwell in the first week afterwards, and lots of tummy troubles, which is fairly common. He has had some increase in pain but has not needed to take much extra painkillers, but then he's so stoic his pain needs to be about nine before he'll take being other than paracetamol. PSA is shooting up (42) but nothing is yet being done about that as they focus on other bloods, such as ALP and another specific reading I'd never previously heard of. Good luck, it has great results apparently, so fingers crossed for those of us on this bit of the journey.

Love Devonmaid
User
Posted 28 Sep 2017 at 07:58

Thanks DM.

It does sometimes seem that there are as many opinions about a specific treatment as there are consultants.

For the record here's what the Nuclear Medicine Consultant (who I really liked, always good) at Plymouth said.

I said I'd read that I should stop taking vitamin D whilst on Radium 223. He said I was the second patient he had seen that had said that. However, he didn't believe there was any problem with continuing with vitamin D.

I asked that apart from the way I felt (always a very important factor as many others have said on here), how would we know whether the Radium 223 was working.

I said I'd read that Radium 223 had little effect on PSA but has a significant effect on ALPs. He said that for Mr Average they normally see PSA drop for the first four Radium 223 infusions and then rise from infusion five. He also said that for Mr Average they normally see ALPs drop through all the six infusions.

User
Posted 28 Sep 2017 at 18:27
Who is Mr Average that's what I would want to know and is he partial to lamb .

Seriously Trevor didn't really have any drops in PSA which was to be expected the Raduim only targets the bones but the cancer in the bones also excretes some PSA because it is still prostate cancer .
Dm is right other bloods are more important especially ALP which is the bone marker and the same with the first 2 weeks on the first treatment where a bit rough but after that Trevor found it plain sailing .
He said the Geiger counter after each treatment was a bit worrying but as normal when you get used to it it's ok .

BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON
User
Posted 03 Oct 2017 at 18:00

This thread is now closed. A new one has been started:


http://community.prostatecanceruk.org/posts/t13243-Radium-223---the-highs-and-the-lows#post169820


 

Edited by member 03 Oct 2017 at 18:01  | Reason: Not specified

 
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