I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error


From docetaxel to ??? - the interregnum

User
Posted 26 Jun 2017 at 18:25

Originally Posted by: Online Community Member

Any idea if they will do a scan to see what the positive signs of the Chemo were.

 

I've been having increasing discomfort from my left shoulder so my Onco decided she wanted a nuclear medicine bone scan. This was done last Wednesday together with an X-ray of my lungs last Monday to see whether the pneumonia is improving. I am awaiting the results.

User
Posted 19 Jul 2017 at 10:53

Finally (sigh) got the results from the bone scan and X-ray.

The bone scan "shows no sign of any new disease and indeed the areas that show up on the latest scan have not changed from previously".

My chest X-ray "shows the changes in your left lung have improved in the lower and mid zones and your right lung is clear". It is now 10 weeks to the day since I was diagnosed with pneumonia. I'm still coughing. I'm still short of breath. I've started to play croquet again but can only manage an hour or so whereas pre-pneumonia I could play all day. Ability to walk far is still limited and thoughts of returning to the gym are a distant pipe dream. So a small improvement but heaven knows how long it will be before I feel 'right' again.

The chest X-ray "shows abnormality of the texture of the bones around your left shoulder" so this no doubt explains my left shoulder pain and lack of function. Whether anything can be done about it I won't know till I next see my Onco in August.

Oedema and peripheral neuropathy, no change.

I've said it before and I'll say it again. Poeple, listen to me, if you are on chemo you don't want to contract pneumonia. Do whatever you can to avoid it like the plague. Otherwise, like me, you may live to regret it.

User
Posted 19 Jul 2017 at 11:44
A good warning, I think many people believe they have to be "normal" or "brave" and carry on as before when going through chemo but in reality they need to care for themselves. One of my favourite people on here (Martini for those who remember him), was a wonderful man, died from and infection during chemo. Don't underestimate how dangerous it can be. I think so many people say that prostate cancer chemo (doxataxel) is a breeze, that they are lulled into a false sense of security.

Hoping things continue to improve for you.

Devonmaid

User
Posted 19 Jul 2017 at 17:29

Hi David, how is your PSA doing?

Unfortunately mine has jumped up to 13.3 some 3 months following completion of Chemo. Otherwise everything else is fine and dandy.

Will be having further scans in September to check on progress, but my chemo holiday may be coming to an end soon.

All the best

Dave

"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"
User
Posted 19 Jul 2017 at 18:24
Ok so not brilliant news on the PSA rise but this disease is so darn weird. Trevor has had rise on rise for 2 years and then one month without treatment and it halves 🙃

I am saying this because this crazy roller coaster ride likes to flip us around a bit one minute you are up and the next minute you are down .

Good news on the scan results and as the Wiz would say that is more important than what the PSA is doing .

Trevor had pneumonia a couple of years ago and that also turned to Sepsis so I suppose we have just had round two with that one . Small steps CO you will get there , just take small steps and suddenly the small steps turn into bigger steps without you even noticing .

Love that you are still enjoying your music. 💗

Remember small steps X

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 02 Aug 2017 at 11:08

At long last I feel I'm on the mend from the pneumonia.11 weeks stumbling around like a right old git but the last 6 days have seen a slow but sustained improvement. I'm coughing much less, I'm feeling stronger, my walking range is increasing (I managed to play a whole hour of croquet on Monday without needing to sit down at regular intervals, woop woop), the breathlessness has reduced and beer is tasting better than it's tasted in quite a while. Still quite a way to go before I'll be back in the gym but I can see the light at the end of the tunnel.

Oedema and peripheral neuropathy, no change, however I'm hopeful that increasing exercise will see off the oedema and even if I'm stuck with the peripheral neuropathy that my increasing sense of well being will make it seem not as bad as it has been.

CT scan and bloods including PSA next week. Once the Onco has got the CT results she will be calling me in for a consultation.

User
Posted 02 Aug 2017 at 12:51

You certainly seem to be moving in the right direction. You've had. Very rough time. Best wishes, Ian.

Ido4

User
Posted 02 Aug 2017 at 15:00

Glad to see that you are finally feeling a bit more like your old self Col x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 02 Aug 2017 at 15:29

Hi Colin
All going in the right direction and well done for facing it all. Enjoy the rest of summer

If life gives you lemons , then make lemonade

User
Posted 02 Aug 2017 at 16:00

Pleased to hear that at long last you are starting to improve from your pneumonia. All the best for the tests next week and hope you get some answers when the results are back. Take care.

User
Posted 02 Aug 2017 at 16:07

Who's this Colin bloke? He seems to be impersonating me. A doppleganger. He's going to get a slap when I get my hands on him.

Originally Posted by: Online Community Member

The last time Dodgy007 signed in to this site was 11 May 2017 20:26:28 so I fear you may not be getting an answer any time soon Clare.

There's another one as well! This Chris bod. A slap is on the cards for him as well.

There's one thing I have to say for Colin and Chris. They must be damn good looking beggars.

 http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif  http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

Edited by member 02 Aug 2017 at 16:08  | Reason: Not specified

User
Posted 02 Aug 2017 at 18:10

Good news David

"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"
User
Posted 02 Aug 2017 at 18:35

Believe me , a slap is the last thing I need in life right now. Apologies ok

If life gives you lemons , then make lemonade

User
Posted 02 Aug 2017 at 19:17

Originally Posted by: Online Community Member

Believe me , a slap is the last thing I need in life right now. Apologies ok

You misunderstand me Chris. I was merely trying to be amusing about sometimes being referred to by names other than my actual name.

User
Posted 02 Aug 2017 at 22:52
So just getting your name right D A V I D 😂 I think that's Welsh for David 😁

Also my brothers name but everyone calls him Tommo 😳 and that's a whole different story / but I am sure I will tell it at some point in my journey.

I told you small steps would lead to bigger steps and here you are playing potato croquettes absolutely fantastic , keep going with those vegetables is all I can say it won't be long before you are tossing a banana over the fence .🤗

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 03 Aug 2017 at 06:44

Originally Posted by: Online Community Member


I told you small steps would lead to bigger steps

Same say, "In God we trust". I say, "In Julie I trust".

User
Posted 03 Aug 2017 at 07:57
I thought you were Colin or Chester!!!

I'm from Essex so I should know the answer!

User
Posted 03 Aug 2017 at 08:33

Originally Posted by: Online Community Member
I thought you were Colin or Chester!!!

I'm from Essex so I should know the answer!

LOL, nice one. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

User
Posted 03 Aug 2017 at 21:57
Great to hear of such a fab improvement, Col/Ches/David!

It's such a relief to hear you are on the up, fingers crossed the blinking cancer got the message too.

Love

Devonmaid xx

User
Posted 03 Aug 2017 at 22:58

Good for you George! I'd go easy on the banana tossing though... might be ok for Trevor and Julie but they are in a league of their own.

Take care. Sip the beer slowly.

Ruth

x

 
Forum Jump  
©2025 Prostate Cancer UK