From docetaxel to ??? - the interregnum - - Page 3Advanced or metastatic cancer

User

Posted 17 Aug 2017 at 10:44

PSA up from 6.17 to 13.59 in 49 days.
Awaiting appointment with Onco.

Edited by member 17 Aug 2017 at 10:46 | Reason: Not specified

User

Posted 17 Aug 2017 at 11:26

Sorry to hear that David... hope the appointment is rapid and that your onco has some useful answers. And hope that you are continuing your recovery from the pneumonia and that the beer remedy is proving its worth. Such a lot to handle though.

Thinking of you.

Ruth

User

Posted 17 Aug 2017 at 11:42

Also sorry to hear that. Hope you're appointment wait isn't long. Best wishes, Ian.

Ido4

User

Posted 17 Aug 2017 at 12:35

Sorry to hear the rise in PSA, Hopefully someone can come up with a treatment that works for you. As my husband is halfway through Chemo I'm very interested in what treatment plans they come up with for you. Best wishes.

User

Posted 17 Aug 2017 at 14:07

Sorry to hear your latest results David, especially after what you've been through in the treatment process.

Best wishes,

Arthur

User

Posted 18 Aug 2017 at 05:38

Originally Posted by: Online Community Member

PSA up from 6.17 to 13.59 in 49 days.
Awaiting appointment with Onco.

We are running neck and neck with our PSA scores David.

My outlook is, I am feeling fine and enjoying life, so what the heck.

I am enjoying being back at work, furthermore because I now have a disabled badge due to my condition I can drive to my work in Victoria through the congestion charge area without paying and park where I like It really is a delight to drive through areas of London with very little traffic around and not having to pay for the pleasure,

I really am looking forward to the journey going forward as I know my Onco still has many tricks up his sleeve.

All the very best wishes to you David

Dave

"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"

User

Posted 18 Aug 2017 at 21:21

Sugar that is not what I wanted to read and not what you wanted to hear. Cluck that PSA .
If it makes you feel any better Trevor had a 300 increase in 2 weeks .
This morning he was washed and dressed at 7.45 when i asked what appointment he had he said " I am going to work " I thought here we go he has totally lost it now he has been retired for 7 years .
It turns out because I am renovating my utility room ( trust me I am a dab hand with a drill and a bit of 2 be 2 ) anyway he still hadn't poked his head round the door by 2.45 and the thought did cross my mind that if he was an apprentice I would have sacked him by know but hey I suppose the thought was there .
That's my man you see and that's my message don't ever be defeated that is how Trevor survives , he might not be able to achieve what he thinks he can , but he believes he can.
X
BFN
Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 19 Aug 2017 at 08:10

Originally Posted by: Online Community Member

That's my man you see and that's my message don't ever be defeated that is how Trevor survives , he might not be able to achieve what he thinks he can , but he believes he can.

Good advice Julie, thank you, I'll try hard to follow it.

I had a morale boost yesterday. I played in the quarter final of a croquet competition at my club. Since May I've only been able to play the occasional game and become exhausted very quickly. Yesterday's game was a 3 hour one. I whacked my opponent 26-2! That felt good.

Had a crap night last night though as my lower back reacted to the exertion. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-frown.gif

You wins some and you looses some.

User

Posted 28 Aug 2017 at 08:09

Onco appointment arranged for 5/9/17. The ??? in the title of this thread may be determined at that appointment.

Current status. Up sides. Recovery from pneumonia continues. My walking range continues to improve. I whacked another opponent 22-0 at croquet last week, happy days. I will be making my first foray in four months to the gym on Friday. A very gentle start in the hope of slowly building up towards where I was fitness wise.

Down sides. My left shoulder continues to deteriorate, I hope my Onco has a solution. Oedema and peripheral neuropathy, no change. And, of course, the PSA rise.

User

Posted 28 Aug 2017 at 15:40

David,

My next Onco visit is also on 5/9/17, so we will be able to exchange notes.

I have none of the side effects you had to go through but my PSA is neck and neck with yours

All the very best wishes to us both

Dave

"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"

User

Posted 05 Sep 2017 at 17:00

Mrs_C and I saw the Onco today. The PCa in the left shoulder has progressed and is the reason for the increasing pain and incapacity of the shoulder. The other bone metastases are unchanged. There is spread to one lymph node in my left armpit which is evidenced by swelling in that area. My Onco hopes that the rising PSA is down to the shoulder and that alone. She has ordered RT to the shoulder, 5 sessions over 2 weeks because my lungs still show some inflammation from the pneumonia and she doesn't want to risk damaging them. She confirmed that the scans did not show any honeycombing of the bones and thus she felt there was no risk of bones breaking. A further PSA test is to be done between 3.5 and 4 weeks after the last shot of RT and we see her again on 31 October 2017. So the, maybe optimistic, hope is:

1. The RT stabilises and maybe lessens the shoulder pain.

2. Zapping the PCa in the shoulder causes the PSA to fall back.

She is also actively considering Radium 223 treatment.

Edited by member 19 Sep 2017 at 16:01 | Reason: Not specified

User

Posted 05 Sep 2017 at 21:50

Sounds like a good plan. I think localised RT for pain relief can work well, hope this does for your shoulder. Hope you get some improvement!

User

Posted 05 Sep 2017 at 22:03

Hi David

All the very best..

Gordon - Devon

User

Posted 05 Sep 2017 at 22:11

Hi David,
Or in Welsh DAVID , I can't praise Raduim 223 highly enough it has worked so well for Trevor it has been shamazing and he has a similar problem in his shoulder and has kept the ALP on a level since Christmas.
BFN
Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 05 Sep 2017 at 22:25

Fingers crossed for you Col x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 05 Sep 2017 at 22:36

Sending you best wishes and hope it works. My husband so far is finding HT and Chemo is keeping his pain levels right down but for how long. So watching your posts with interest.

User

Posted 06 Sep 2017 at 18:06

Originally Posted by: Online Community Member

Mrs_C and I saw the Onco today. The PCa in the left shoulder has progressed and is the reason for the increasing pain and incapacity of the shoulder. The other bone metastases are unchanged. My Onco hopes that the rising PSA is down to the shoulder and that alone. She has ordered RT to the shoulder, 5 sessions over 2 weeks because my lungs still show some inflammation from the pneumonia and she doesn't want to risk damaging them. She confirmed that the scans did not show any honeycombing of the bones and thus she felt there was no risk of bones breaking. A further PSA test is to be done between 3.5 and 4 weeks after the last shot of RT and we see her again on 31 October 2017. So the, maybe optimistic, hope is:

1. The RT stabilises and maybe lessens the shoulder pain.

2. Zapping the PCa in the shoulder causes the PSA to fall back.

She is also actively considering Radium 223 treatment.

David,

I too saw my Oncologist yesterday, but had a different outcome to yourself.

He started by commenting on how well I was looking which was countered by my commenting that I was not suffering really at all.

He then presented me with the news that although my testosterone was still low, my PSA had now jumped to 35.9, so he needs to know what is going on before our next plan of action. Well *!*! said I

So now, for the 3rd time, I am going to experience the delights of the super duper PSMA PET / Prostate Scanner. This is happening this Wednesday then I see him a week on Tuesday to find out the plan going forward.

The annoying thing is that he knows how well I react to Chemotherapy, so that is definitely one of the tricks up his sleeve still.

So much for our long and fruitful Chemo holiday David

All the very best wishes to you David and long may our journey continue.

Dave

"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"

User

Posted 06 Sep 2017 at 19:25

David,

I am a recent member of this "club". I just wanted to say that your posts regarding your journey have been so very useful and inspirational to me as I start my own battles. The advice you have laid out helped to prepare me for the Chemo (although I forgot the pineapple on the day and my taste buds have paid the price!).
I wish you all the very best and although the journey continues I hope that it is a long and manageable one for you and yours!

User

Posted 19 Sep 2017 at 16:03

Things proceed at quite a pace.

I have now had 4 of the 5 RT shots with the last one tomorrow. So far, I would say there has been a marginal reduction in pain. Next bloods will be on 18 October followed by the Onco consultation on 31 October when we will see whether her optimistic hopes for the RT have been realised.

An appointment has been made with a Nuclear Medicine consultant at Derriford hospital in Plymouth for next Monday 25 September to discuss my suitability for and the advantages and disadvantages of Radium 223.

User

Posted 19 Sep 2017 at 22:19

I hope they come up with an acceptable treatment path for you David

All the best, Arthur

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