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User

Posted 22 Jun 2017 at 09:54

Great news Lola. A happy consultant is a very good thing. Have a great summer.

User

Posted 22 Jun 2017 at 18:16

Hi Lola,

Just the news you wanted.

Have a celebration drink.

Take care.

Steve

User

Posted 08 Dec 2017 at 17:03

Hi there:

Just came on to the site to congratulate Chris on his journey. So happy to hear such good news.

And by the way, I'd like to share something: My OH PSA test six weeks after RP was 0.04. Nowadays, few days before next visit to uro, it has come up to 0.05. Do you think it's something to be concerned o scared about?
You knou you can't help your mind going round and round.

Best wishes to all of you,

Lola.

User

Posted 08 Dec 2017 at 21:55

Lola

That rise is so small I would,put it to the back of your mind and forget it.

Thanks Chris

User

Posted 08 Dec 2017 at 22:53

Thanks. You have brought me some calm to face the night.

I really appreciate your words.
xx
Lola.

User

Posted 08 Dec 2017 at 23:14

Lola , this cancer is so worrying always. It’s nasty in that it can be so long without cure. The results you are showing at the moment should be neglected in reality. In honesty most hospitals won’t offer RT until 0.2 is reached or if 3 rises are amseen in a row!! And here I am at PSA12 and my Onco isn’t wanting to nuke me nor castrate me , and I still feel safe in his hands ....
Get through xmas ——its mostly a slow growing disease and I aint worrying !

If life gives you lemons , then make lemonade

User

Posted 08 Dec 2017 at 23:27

Thanks for answering, Chris. Really appreciate it.

And remember: when I say I'm glad to hear of your good news, it's a real feeling that comes from deep inside me. I have always been following your journey. And at the same time, thankful for your help and support.
I wish you the happiest Xmast.

Lola.

User

Posted 09 Dec 2017 at 23:34

Hi Lola,

Hope you can take the great advice you had here and enjoy the Christmas period. Easy to say I know but really meant - here is wishing you peace

Clare

User

Posted 10 Dec 2017 at 00:15

Feliz Navidad, Lola. One of the very few Spanish phrases I know.

Ulsterman

User

Posted 26 Dec 2017 at 10:10

HI there.

First of all: Merry Xmas.

My best wishes to all of you - of us- fighting PC or worried about it, awaiting for results, suffering, trying to get some relief, concerned about it in general.

In Spain we say "el miedo es libre" -fear is free-. Sometimes we can't help feeling fear stil if this f**** desease doesn't seem to be getting worse.

May next year bring good news and comfort to our souls.

Tomorrow the uro is seing OH for the second time after surgery, seven months ago. His PSA has risen from 0.04 to 0.05, but I'm trying hard not to give much relevance to this fact and enjoy Xmas with my family. We'll see what the uro says about it.

Your help, since the moment this journey started and panic took over me, has been amazing. That's why now, about to see the doctor again, I want to say THANKS for having teached me to manage fear, to get some knowledge on this topic, to share a part of my live with you, because we are in the same boat.

Big hugs xxx

Lola.

User

Posted 26 Dec 2017 at 12:24

Hi Lola
Hope you are enjoying your Christmas and hopefully the New Year will start off with some good news for you. The PSA readings are under 0.1 so basically undetectable and let's hope it continues that way.
Wishing you and your family a very happy New Year.

Kevan

User

Posted 26 Dec 2017 at 12:49

Big hugs to you Lola, xxx

User

Posted 27 Dec 2017 at 13:01

Hi there
Just want to share it with you: OH has just seen the uro in Madrid. He wasn't concerned about PSA rising from 0.04 to 0.05.

Six months from now new blood test and, in this occasion , CAT will also be done.
I wish you all there best, from the bottom of my heart xxx

Lola

User

Posted 27 Dec 2017 at 13:13

It's good news Lola that the Consultant isn't concerned.

Time to relax, see in a New year with hope in your heart.

Best Wishes to you and yours X

Sandra

We can't control the winds - but we can adjust our sails

User

Posted 27 Dec 2017 at 16:36

Hi there,

The urologist has recommended 9H an ointment for ED. The commercial name in Spain is Viridec. Alprostadilo is the active ingredient. Can someone provide information or experience? It's absolutely new to me.

User

Posted 27 Dec 2017 at 16:41

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4977016/
A link to the product.
It's said to work at 83%
I don't know. Just recommended two hours before.

User

Posted 04 Jan 2018 at 05:57

Hi friends,

I have a question: my hub, DP Da Vinci last May, has just had seven months test after surgery. everything was ok but last night, he suddenly found blood in his urine and some discomforo at his postate bed. He says that yesterday, due to circumstances, he had had to contain his urine for a while as there was no possibility of going to a bathroom, but anyway, it seems scary to me.
On the other hand, just today he is suppossed to have a colonoscopy done. We don't know what to do about it. What could that bleeding be due to? Is it ok still having the colonoscopy? Going to emergency service first? Taking the antibiotic his consiltant gave him in case he had some discomfort or temperature?
The doctor who operated him doesn't belong to the SERGAS (National Health Care) and in aditionto this, his hospital is in Madrid; so, starting again in SERGAS? No, my God!

The day is about to start and we are confused and concerned, can someone here tell us something? I woul'd really appreciate it.

Thanks in advance.

User

Posted 04 Jan 2018 at 08:44

Hi Lola, Viridec is called Vitaros in the UK and there are quite a few posts about it on here - some people find it effective.

Can't help with the blood in the urine thing except that he might have a bit of an infection. In the UK that would definitely not be an emergency hospital thing but perhaps just mention it to the specialist doing the colonoscopy. Fortunately the bladder and the bowel are not connected so hopefully it won't stop the appointment from going ahead.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 04 Jan 2018 at 09:03

As usual , Lyn, you have been extremely helpful. Thanks.

That's just what we were about to decide. Now, there's no doubt.

We'll mention it to the doctor before he starts with the colonoscopy and, also, he'll take the antibiotics the uro had given to him in case he felt some discomfort. He has bacteria but not so many .The uro said it's OK as far as he doesn't feel poorly or has temperature,
Thanks again, Lyn!! Xx
Lola

User

Posted 08 Jun 2018 at 06:36

HI all.

For all theese months since I first joined this friendly site,I've been quietly following your comments on your travel, your fears, your joys, etc.

Now I'm her again to tell you abour oh's last news. I'm really scared. As I wrote above, my husband's psa a few weeks after RP was 0.04. Six months later it was 0.05. The uro wasn't concerned about it, but yesterday we got the results of his last PSA,one year after surgery. It has risen to 0.08 and still being below 0.1, the fact that is has been increasing is scary.

Appointment with uro will be on June 27 and I know I must wait to hear his comments, but your opinions would be really appreciated.

I would like Paco to have the blood test again, but on the one hand I'm sure he''l refuse, and on the other hand I'm afraid the laboratory machine is ok and the result would be the same.

Thanks for reading.

Lola.

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