likely to have PC

User

Posted 27 Apr 2017 at 08:17

Hi all

As some of you know Paco was operated last Tuesday. The procedure was long as the lesion was larger than expected.

The surgeon came inform an said he had removed left seminal vesicle, nerve and inguinal nodes. In panic I asked whether capsule had broken. He said "no, I don't mean so. Keep calm".

Next morning, when coming to see how Paco was going I asked again about inguinal nodes: were they affected? He said of course all the stuff would be analyzed but he didn't think so, an said again we must keep peacefully.

Now he is calmly listening to the radio. He has been a little in pain during night because of CO2 inside, but he is feeling better now.

Hard evening fur us too while waiting for OH to be taken into ICU after op, in the room for family and visitors. Besides our own anxiety and concern, an old lady happened to pass away and family didn't stop crying, screaming , getting out of control, getting sick and being attended by medicals etc etc.

Thanks to all for your supporting and help.💛🌹

Love, Lola.

User

Posted 27 Apr 2017 at 13:08

Ah Lola, what a stressful time you have had.

The worst is over now. Paco will recover, maybe slowly, but he will recover.

It is sad that somebody else lost a loved one and that you had to listen to their distress, and I am sure you are grateful that you aren't in that situation.

You are doing well for your Paco and family. Be strong and continue to be brave. He is a strong man and he will be well again I'm sure.

*********

We can't control the winds - but we can adjust our sails

User

Posted 27 Apr 2017 at 13:19

As Johsan says the worst is behind you, you can now see Paco getting stronger each day. All the best. Julie

User

Posted 27 Apr 2017 at 14:16

Hi Lola
The op is now over and so Paco needs time to recover as this is major surgery but you need some time to relax as well. Paco will probably be pretty bruised and a bit tender for a few weeks so it's maybe a good time for you both to maybe just sit and chill for a bit. Everything is now just a waiting game and you can't do anything about what might happen tomorrow so try to just get as much out of today as you can.
Between you you will cope so now just a step at a time.
Look after each other.

Kevan

User

Posted 27 Apr 2017 at 22:18

All best wishes Lola . Fingers crossed for a smooth recovery and back to family times xx

User

Posted 29 Apr 2017 at 18:45

Hi all.

Updating Paco's recovery from da Vinci.

Still in hospital since Tuesday.

He was going to be discharged tomorrow but he will not due to some lymphatic fluid in the place his nodes used to be before removal 😏

Still blood in urine and drenaje catheter

No problem to poo.

Awaiting biopsy results. I don't know for how long 😕.

Scared because of the fact that nodes were finally removed.

Long days here.

I miss my house but mainly I miss a life disease-fear-free.

Thank you all your support.

Regards,

Lola

User

Posted 29 Apr 2017 at 19:43

Hi Lola
Very stressful for you but well done hanging in there !! I was in hospital 14 nights mainly because my drain was quite excessive ( I had 18 lymph nodes removed ) , and then it got infected around the tube into my body. Oh and I threatened to throw myself out of a window because my bipolar meds were withdrawn overnight , but that's a different story. I hope so much your results are clear x

If life gives you lemons , then make lemonade

User

Posted 29 Apr 2017 at 20:49

It wasn't easy for you, Chris. I personally know, in adition to undergo OH cancer twice, how poorly one feels when suffering a mental disorder. Everything gets magnified and the suffering is unbearable.

Hope you are dealing well with both issues. I assume you are on treatment? Lithium?

I must take lots of pills to prevent anxiety and COD
Otherwise I couldn't stand this situation.

There are times in life when you don't think you can carry on.

I sympathize with you.

Something strange has just happened to Paco: he suddenly needed to pee. He then let it go and, despite the catheter, he started to pee freely. I wonder whether this is a good or bad matter.

Regards and my best wishes to you, Chris.

Lola

User

Posted 30 Apr 2017 at 16:54

Hi there,

OH has been discharged this morning. Not really feeling too poorly, but awaiting for final biopsy results is not an easy matter to deal with.

He is not so pesimistic as I am,

I am devastated, really scared by reading the discharge report.

I'll try to translate it the best I can.

Carcinoma 4+3 Gleason (high risk) (I thought G 7 was medium risk)

"Radical postatectomy",

"bilateral lymph nodes removal",

and a scaring word that is new to me. I don't know how to translate it.... "amplified", "extended". ("Ampliada" in Spanish) referring to prostatectomy.

"Awaiting for final histopathology results".

I'am afraid it all sounds really scaring, doesn't it?

The, uro had told us not to worry, but after having read this paper I am in panic.

Best wishes,

Lola.

User

Posted 30 Apr 2017 at 19:14

You should try to calm down Lola, you seem to find it very difficult to trust the doctors even though they have many years of experience and know what they are doing. If the surgeon had opened Paco up for surgery and seen loads of spread to terrible places, he would have stitched him up again without doing the operation. If there is some small breach well that is no big deal really - they would just talk to you about the possibility of radiotherapy or hormones.

The important thing about the word 'extended' is what is its context ... what is the whole phrase or sentence?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 30 Apr 2017 at 19:36

In Spanish "prostatectomía radical ampliada", something like "radical increased prostatectomy"

User

Posted 30 Apr 2017 at 19:43

Referring to the operation itself.

User

Posted 30 Apr 2017 at 20:47

I think it might mean either radical prostatectomy with lymph node removal or radical prostatectomy with nerve bundles not spared.

Since the surgeon already told you that the nodes had been removed and had mentioned that the nerves had been removed (possibly on one side?) this is not new information for you. He also told you that he didn't think the lymph nodes were affected so hold on to that thought until you get the proper results.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 03 May 2017 at 07:59

OH 's recovery going on well. Concerned on too much fluid coming out from drain wound? Went to emergency. No.problem, normal and clean fluid, they said.

Still awaiting for post operation biopsy. Don't know whether they will phone or email us or we have to wait until next appointment, in .seven or ten days when we are supposed to meet surgeon again and have the catheter removed.

One question, are lymph nodes often/always removed in this surgical procedure? Does nodes removal mean nerves have not been spared?

Regards and thanks for your support

Lola

User

Posted 03 May 2017 at 08:35

Hi Lola, in the UK we usually get the biopsy results at an appointment about 6 weeks post-op and not many men get to see their consultant in 7 to 10 days so it must be quite different in Spain, I think.

Re lymph nodes - in England it depends on the surgeon and hospital. Some remove the nodes near the prostate automatically and some remove them only if they are suspicious. At our hospital, they do not remove the lymph nodes in keyhole or robotic RP so if they think the nodes need to come out you have open surgery. Removing the lymph nodes can happen with the nerve bundles saved, and removing the nerves can happen with the lymph nodes left in place, or they can all be removed.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 03 May 2017 at 09:49

Hi again, lovely Lyn.

Just an appointment confirmed: on the next Tuesday we'll meet the surgeon and he will let us know everything including post operation biopsy..

I'm afraid some RT or anything else will be needed.

I'm trying hard to become familiar to the journey we are starting these days.

I appreciate the helping support I'm getting from this site and pretty much from your care and knowledge.

Hug,

Lola

User

Posted 03 May 2017 at 20:05

Hi all.

My husband had da Vinci 8 days ago. (tuesday). He was discharged on the last Sunday, 5 days after.

His drain catheter was removed.

Today, eight days after surgery, still leaking clean and not stinky fluid . Is this something we must worry about?

In emergency, he's was said it was normal as far as it was clean fluid, but it seems to be a big amount of fluid.

Information and advice would be appreciated
We are considering the fact of going to emergency again.

Thanks in advance

Lola

User

Posted 03 May 2017 at 20:49

They have already told you it is normal, you should really try to trust the specialists more as they are in a better place to judge than we are!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 06 May 2017 at 05:30

Good morning there.

Thinking of Eleanor and OH.

Now that I've been in this site from February I am concerned about all of you as if we are a great family helping each other.

The news hasn't been good lately here and it makes me feel sad.

As Paco is concerned, he is still feeling poorly in pain. The catheter is supposed to be removed on the next Tuesday. I haven't told him how painful the procedure is, according to want I have read here.

The pathology results will also be told to us that day but we feel more calm now that a friend of mine who is a consultant at a different hospital has got to know from her colleague at our hospital that the tumor was not spread. Anyway expecting for the appointment in three days.

Looking forward to coming back home and see my garden, my dog and everything there.

Best wishes to all,

Lola

User

Posted 06 May 2017 at 05:57

Lola

Because of my ongoing problems I have been catheterised on about ten separate occasions over the three years, the removal of the Catheter has never been painful, it has varied from a strange sensation to feeling nothing. We keep saying this, stop worrying.

Thanks Chris

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