likely to have PC

User

Posted 06 May 2017 at 08:14

Hi Lola don't worry to much about the removal of the catheter I never felt anything when mine was removed other than a sense of relief

User

Posted 06 May 2017 at 13:51

Hi Lola,

When I had a catheter I was in hospital and the sister asked a student nurse if she'd like to remove it. I was worried but she told me she'd done it and I didn't realise it was out.

Arthur

User

Posted 10 May 2017 at 08:00

Hi all,

Yesterday Paco had his first appointment with uro after operation.

The pathology results quite good :) Tumor contained inside the prostate. pT2a.

We were told that in some hospitals OH would be offered low RT since, despite being a contained tumor it's 4+3=7 Gleason, but not in that hospital and in his opinion. Frequent PSA tests and if under 0,4 (hope I got it right), no problem.

There is something in the biopsy I didn't like: perineural invasion. However the consultant didn't seem worried about it. Said it was much usual in this kind of tumors, do you know st about it? I've been googling but nothing clarifying found. Anyway, the uro said it was ok and, as Lyn says, I must beieve doctors and not let my imagination and fears fly.

No pain when catheter and stitches removed. Actually, as I had been said on here by some friends, he felt a great relief.

Almost continent first day.

PSA test in six weeks time and nwe appointment with uro.

Does it all sound correct to you?

We are happy we chose this nice and experienced surgeon. And a great hospital too, in Madrid.

Thanks to all of you for the support you have been giving me during these hard period. I'll continue to update and, as far as I am able, to help others with the experience now I have got.

Best wishes,

Lola.

User

Posted 10 May 2017 at 08:05

So glad it's all good news for you so far Lola. Long may it continue

We can't control the winds - but we can adjust our sails

User

Posted 10 May 2017 at 09:31

Lola
All sounds really good so far. Especially total removal and good continence. The rest will come with time. Best wishes

If life gives you lemons , then make lemonade

User

Posted 10 May 2017 at 13:22

Hi Lola
Everything is sounding really good so I hope you and Paco will relax a bit now.
Great news.

All the best to you both.

Kevan

User

Posted 10 May 2017 at 20:49

Thank you for the update Lola. All the best

Clare

User

Posted 13 May 2017 at 05:33

Hi all.

Back home wirh OH's prostate missing. It's good that getting rid of some part of of your body means a relief of worry and concern.

The RP has gone quite well and 5 days after catheter removal Paco is almost continent. Only when he sneezes or stand up etc etc he will leak a bit, so really happy.

I have a question. The consultant was quite happy about surgery and prognosis but there is something I read from the biopsy report I'm not sure about : "Perineural invasion". Maybe some of you may clarify.The doctor didn't seem to be concerned about it, but I wnat to know so far.

Thanks for your unvaluable support and best wishes to all of you.

Have a nice weekend.

Lola.

User

Posted 13 May 2017 at 11:33

It would depend on the rest of the phrase Lola. Does it say "there was no sign of perineural invasion" or "there were signs of perineural invasion" or "the perineural invasion was extensive"? As you can understand we can't tell you what it means without you telling us the context.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 14 May 2017 at 06:24

Hi, Lyn, I'll try to translate the biopsy report,
Hope you may now understand. Sorry for my English. Moreover technical words are sometimes hard to translate.

-Radical Prostatectomy:

.Prostatic Acinar adenocarcinome grade Gleason 7 (4+3)
-Tumor takes up 10% volume of the prostate.
-Localised on left hand lobe of prostate.
-Extraprostatic extension is not identified.
-All margins are clear.
Perineural invasion is identified,
Vascular invasion on deferent conducts and seminal vesicles in nor identified.
.pT2a

-Vesical neck:prostatic tissue with no evidence of tumoral lesion
-Vesical neck, medium lobe: `prostatic tissue with no evidence of tumoral lesin
-Linfadenectomy: five nodes isolated (? insulated, separated???) with no met in any of them.

May all have a nice Sunday,

Lola.
-

User

Posted 20 May 2017 at 10:51

I just realize my last post has disappeared or maybe I did something wrong.

I was asking for some information.

OH had Da Vinci 25 days ago and catheter removed 12 days ago. He soon stopped bleeding when going to the loo. Now he bleeds again a little bit when starting and finishing his pee. Is it normal or we should tell the consultant?

Thanks in advance.

Best wishes,

Lola

User

Posted 20 May 2017 at 12:02

This is tough for someone to answer as you have to use your own judgement Lola. Many people including myself had episodes of bleeding post surgery. One day I did a massive blood wee but had overstretched my bladder. There are wounds healing and scabs moving so some bleeding is inevitable. Just monitor it but heavy bleeding needs A&E

If life gives you lemons , then make lemonade

User

Posted 23 May 2017 at 21:34

Hope its getting better Lola

Scary times I know

Clare

User

Posted 13 Jun 2017 at 12:16

Hi there.
I have a question. I'd appreciate it if someone could give me some information.

After seven weeks from RP my hub's PSA is 0'04. Is it ok or it should be undetectable,?

Best wishes,

Lola

User

Posted 13 Jun 2017 at 12:48

Hi Lola,
the guidance here in the UK is that it should be less than 0.1 so it's looking pretty good. What did your consultant say? Is he still happy with the way everything went and the pathology report after the operation.
My OH results were 0.01 at 6 weeks and 0.004 at 16 weeks down from a starting point of 3.0

PSA has quite a long half life so it can take some time to completely clear the system and your next result may still come down further. As Lyn always comments the tests at these very low levels are also not always as accurate as we might hope and so a result of 0.04 at one hospital could actually be the same as 0.01 at another.

Be happy, enjoy the summer and get another test done in 3 months that will hopefully be the same or less than this one.

All the best Julie

User

Posted 13 Jun 2017 at 12:57

Thanks, Julie. You are helpful and nice, as usual.

We are seeing the consultant on the next week but we have got the results this morning. We are taking them to Madrid for the appointment. Paco had his blood test in our city.

Hope you are doing wel, GREAT WIFE.

Love,

Lola.

User

Posted 13 Jun 2017 at 13:18

Sounding just Rosy to me at 0.04. The stuff that dreams are made of. And a happy , care-free long hot summer ahead. Just enjoy

If life gives you lemons , then make lemonade

User

Posted 13 Jun 2017 at 13:22

Thanks, Chris. Hope you're doing better.

Best wishes

Lola

User

Posted 21 Jun 2017 at 08:58

Just updating OH latest news.

We saw the uro yesterday.
He said everything is OK as PSA level is 0,04.

Full continent.

Next control by November.

He recommended Cialis 5mg. One pil a day.

When going to have sex, 20mg.

Wish all the best to all of you. May you enjoy summer. We all deserve it.

I'm grateful to this site and people on here that have made our journey easier.
Lola

User

Posted 21 Jun 2017 at 09:23

Glad the results were so positive Lola.

Time to appreciate the here and now and not worry too much about what might or might not happen in the future.

Enjoy your time together

We can't control the winds - but we can adjust our sails

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