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Treatment Experiencies

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User
Posted 25 Sep 2016 at 17:56

Thanks I will remember that

Paul

User
Posted 26 Sep 2016 at 18:04

Hi all,

Did anyone read the article in the paper saying that most men will live for 10 years after being diagnosed with PCa even if they have no treatment

User
Posted 26 Sep 2016 at 18:32
Paul

There are also men who have died two years after diagnosis. I was 62 when diagnosed and I think the worst advice I was given on diagnosis was "if you do nothing you may still be here in 10-15 years. The better bit of advice in the same conversation was "if we get it you could be around for 30-35 years"



Thanks Chris

User
Posted 26 Sep 2016 at 19:00
Originally Posted by: Online Community Member
Hi all,

Did anyone read the article in the paper saying that most men will live for 10 years after being diagnosed with PCa even if they have no treatment



Incredibly irresponsible journalism. Makes me so sad that this did not have any qualifying factors like age, severity etc.
Most could be 51% or 99% so that would be pretty misleading if presented that way.


my best wishes
xx
Mo
User
Posted 26 Sep 2016 at 20:14

What the research actually showed was that for men diagnosed at an early stage with a low Gleason grade, the likelihood of still being around in 10 years was the same whether they had RT, RP or AS - which is more or less what the European 10 year study found a few years ago - it is about the over-treatment of pussycats. But we all knew that over-treatment was a problem ... what we really need is research into knowing which are the pussy cats and which are the kilers.

Art has uploaded links to this research (and summaries) for us on another thread on here, Farfar.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 26 Sep 2016 at 21:53
Chris
sorry for posting this here but your inbox is full!
xx
Mo
User
Posted 28 Sep 2016 at 18:20
Paul

Enjoy your sleep tomorrow and make the most of being looked after for a few weeks. Remember to ask for some earplugs for tomorrow night, hospital wards seem to be busier at night than in the day. Take it easy but keep active.

Look forward to hearing your experience.

Thanks Chris
User
Posted 28 Sep 2016 at 18:28

Good luck tomorrow Paul.

Fingers crossed for you. It's a good luck day and special for us.

Tomorrow is my grandson's birthday. Diagnosed with inoperable cancer at 13 and here we are 7 years later aged 20, living life to the full

I'm sure you'll be fine. Just remember to do as you're told and not rush things.

All the best

Sandra

********

We can't control the winds - but we can adjust our sails
User
Posted 28 Sep 2016 at 18:59
Hi Paul,

Good Luck for tomorrow!

Steve
User
Posted 28 Sep 2016 at 19:04
Evening Paul
Hope all goes well for you tomorrow and that you have a good recovery.

Keep us posted when you can.

Kind regards

Kevan👍
User
Posted 28 Sep 2016 at 19:37
Hi Paul thinking of you tomorrow. Jayne x
User
Posted 28 Sep 2016 at 20:01
Paul
here's to you having a very successful op tomorrow and a safe but speedy discharge from hospital.
Then feet up and take it really easy for a while.
best wishes
xx
Mo
User
Posted 30 Sep 2016 at 07:12
Hi Paul

Hope all went well yesterday.

Was thinking of you.

KRO...
User
Posted 02 Oct 2016 at 08:03

Hi Guys,

well I got through it, went to theatre at 7.30 am back at 12.30 pm so about 4 hours, surgeon said all went well with negative margins, so fingers crossed, came home yesterday morning and had my first decent nights sleep last night, a bit painfull around my stomach from entry wounds but mostly when i cough or get up from a chair, the biggest problem was the gas but a few good farts and it is a lot better now, all I am worried about now is looking after the catheter, how robust are they, so now one step at a time, 

best wishes to all

Paul

User
Posted 02 Oct 2016 at 08:24
Great news, Paul. You must be pleased it's done. Hope your recovery goes well and remember, don't try to rush things, give the body time to recover properly.

Take care.

Steve
User
Posted 02 Oct 2016 at 09:03
Paul

We told you it would be okay and great news from your surgeon. As regards the catheter the first time round I was like you very wary of how robust they are, could I pull it out.
It would take a fair bit of effort to pull out, I accidentally caught some of mine a few times it keeps you alert. Keep it clean and wash round the end of the penis, the advice is non perfumed soap/gel.

You may get by-passing where urine comes out between the catheter and the penis,can be quite uncomfortable but with soon pass.

Keep active but no marathons,moving around will help keep the motions soft.

Thanks Chris


User
Posted 02 Oct 2016 at 09:55
Good news Paul,

Take it easy... remember... for first couple of weeks the heaviest thing that you should lift is a kettle of water... :-)

KRO..

Edited by member 02 Oct 2016 at 09:56  | Reason: Not specified

User
Posted 02 Oct 2016 at 09:55

Well done Paul.

Very pleased that's over for you. Wishing you a speedy recovery

Best Wishes

Sandra

*******

We can't control the winds - but we can adjust our sails
User
Posted 02 Oct 2016 at 10:04

Well done mate. Make sure you're looked after. Get a little bell :-))


If life gives you lemons , then make lemonade
User
Posted 02 Oct 2016 at 10:54
Hi Paul
So pleased that all went well and that you are feeling pretty good. As the others have said, take things easy as your body has experienced a bit of trauma and things need time to settle. The catheter is pretty robust so shouldn't cause any problems but hygiene is important.
I did have a smile as I could hear the note of relief in your post. It's a beautiful day here today and reading your post has just made it even better.
Every good wish for your recovery.

Kevan

Edited by member 02 Oct 2016 at 10:55  | Reason: Not specified

 
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