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User
Posted 05 Dec 2016 at 11:50

All empty,

Paul

User
Posted 07 Dec 2016 at 19:00

Hi all,

I have just had the letter from the follow up appointment after my prostate OP, the final pathology report confirmed T2c Gleason 3+4=7 with negative surgical margins, I think I made the right decision,
happy Christmas and new year to you all

Paul

User
Posted 08 Dec 2016 at 00:21
Paul,

That's good news.

Hope things are improving on the incontinence front.

Enjoy Christmas and good luck with your next PSA test.

KRO...
User
Posted 08 Dec 2016 at 07:15

That's great news for you Paul and I too hope your incontinence is improving as mine is, but it is a slow process.

My results were not as good as yours and I am awaiting the start of my Radiotherapy, 36 sessions, which should start very soon, I just have to have another MRI then a CT scan before the start of my daily sessions, but hope by the end of February I should be all clear.

Hope you have a wonderful Christmas and a very good New Year

regards
Tony

User
Posted 08 Dec 2016 at 10:32

Hi Kro,

things are better with the incontinence, 1 pad a day, I only really leak when out and about and the usual coughing and sneezing, I still get really annoyed when I leak, 1st PSA undetectable next in March,

have a great Christmas and new year

Paul

User
Posted 08 Dec 2016 at 10:37

hi Tony,

Glad to hear the incontinence is improving, I only leak now when out and about or when coughing and sneezing etc, hope all the tests go well for you, my 1st PSA was undetectable next is in March,

have a great christmas and lets hope the new year is a lot better than this has been,

best wishes

Paul

User
Posted 08 Dec 2016 at 11:04

Hi Paul
Yes the incontinence is much better and like yu my leaks are coughing, sneezing etc. I too only use one pad and it's the lightweight one now, but if going out for the day i use the next one up, as a 'just in case'.
My first PSA was negative at 0.09, but they seemed worried about the Vesicula seminal and any residue cells left hence the Radiotherapy, I think it's a 'belt and braces' job to avoid any problems in the future, well at least that is how it was put across so I hope nothing was lost in translation from Spanish to English.
But they did say I could drink red wine (Spanish of course) and malt whisky so am very happy about that especially over Christmas.
All the best to you and your family
regards
Tony

User
Posted 08 Dec 2016 at 11:16

Hi Tony,

Seems like we are quite similar in our recovery, my biggest problem is frequency going often, the hospital says it is normal and will settle down, I have to retrain the bladder, don't go overboard with the wine I find alcohol makes the incontinence worse but it is Christmas and I am not going to worry too much about it, hears to good PSA results,

best wishes

Paul

User
Posted 08 Dec 2016 at 11:24

Hi Paul
Yes very similiar, certainly the alcohol does affect it but worse for me is drinking tea and I love my tea. It's the weak flow that is most irritating for me as I seem to be in the toilet for ages before stopping, bit embarrasing when I am out with friends but they all understand my problems and getting out and enjoying our lives is what makes going through all this worth while.

Great that your readings are so low and a negative margins is really great news.

All the best
Tony

User
Posted 08 Dec 2016 at 11:35

Hi Tony,

Try de-caff tea, it does not taste that much different and it does make a difference, I am sure we will get back to normal eventually,

best wishes for all your family,

Paul

User
Posted 16 Dec 2016 at 11:53

Hi all,

I have not been on here for a while, it is nearly 3 months since my OP, I am getting on pretty well, continence is much better and getting better daily, the bigger problem is frequency, I am trying bladder retraining which is slow but seems to be working, next appointment with consultant in March so lets hope PSA is still undetectable, anyway I just want to say thankyou to  everybody that helped me when I started out on this journey and to wish you all a great Christmas and hope that next year is better for everybody,

best wishes

Paul

User
Posted 16 Dec 2016 at 13:06
Paul

Not sure if this would be any good for you. My frequency was quite high and my bladder capacity was only around 200 ml, I was prescribed solifenacil by by my consultant to take at night, my bladder capacity sometimes got upto 450 ml and the frequency dropped dramatically.

Thanks Chris

User
Posted 16 Dec 2016 at 13:14

Hi Paul
I went yesterday for the first day without any pads, one small victory but such a great boost for me. I do go to the toilet only once at night now, and depending on the amount of liquid i take in my frequency seems to be back to acceptable levels.
It is a slow job but for me almost three months post op, i feel my control is almost back to normal, I do however wear a pad if I am doint anything active, but so far no accidents and I have always been able to hold it until I can get to a toilet.
The only concern (apart from still waiting to start my Radiotherapy) is that my flow does seem to be weaker than previously.
Everything seems to be progressing well for you and I hope it continues to go well.
regards
Tony

User
Posted 16 Dec 2016 at 15:43

Thanks Chris,

I will keep it in mind

Paul

User
Posted 16 Dec 2016 at 15:47

Hi Tony,

Seems like we are very similar, I wear no pads at night and only leak during the day when I am out and about but that is getting better, my flow is like a teenager but frequency is a bit of a problem, I get up twice at night it was sometimes 5-6 times so it is getting better still can't have everything at once and we are all different,

Paul

User
Posted 18 Dec 2016 at 15:07

hi Chris,

How long after your OP did you start taking medication for frequency,

Paul

User
Posted 18 Dec 2016 at 19:58
P

I only started taking solifenacin a couple of months ago. I can only guess that in the short term the consultants want patients to recover in a more "natural" way.My personal view is if the tools to a faster recovery are there why not use them. Perhaps by coincidence I have restarted my daily sildenafil in the last few days and my nocturnal toilet visits have gone to zero in the last two nights. Still suffering with intermittent retention.


Thanks Chris

 
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