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User
Posted 20 Aug 2016 at 06:51

Hi all,

I would like to hear about the best ways of looking after your catheter post OP, any help would be most welcome,

Paul

User
Posted 20 Aug 2016 at 12:13

Keep it clean is the main priority, they are quite robust but do be careful not to catch the catheter, it would take alot to pull it out but it is uncomfortable if you accidentally pull it.

Whilst in hospital try too get two extra leg/ thigh straps.

Make sure the catheter is fitted correctly to your leg strap. The fastener should sit in the v of the y joint, many pictures show the fastener only round the pipe, this does not stop the pipe being pulled down.

My morning routine was close leg bag tap remove night bag. Remove straps from leg bag and tuck the tap of the leg back under the thigh strap.

Have a shower and using non scented soap or gel, wash the end of the penis and the first bit of the pipe. If applicable retract the foreskin and wash, remember to pull the foreskin back over the end, if you don't the foreskin can come up like a balloon. Use lube to get it back over and ice or frozen peas to reduce the swelling. A couple of days in and you will get more confidence in feeling and washing the area.

Once I had dried myself I would fit a new/ dry strap to the other leg and transfer the catheter to the other leg refit the dry leg bag straps. Alternating legs is recommended and it means you can dry the leg where the strap was.

Use a bag stand,bucket or bowl for the night bag, a bowl or bucket will save the carpet in the case of accidents.

I did get some stick for this but if you OH is attaching and removing the night bags buy her some disposable gloves and some chocolates or flowers, one suggestion was that marigolds count as flowers.

I wore pyjama bottoms at night to stop any tangles and also straped the night bag pipe around my ankle area to stop the pipe getting pulled out of the leg bag. The pipe should not come out if it is attached correctly.

A small squirt of instilagel or simalar will stop any discomfort at the end of the penis. I wore elasticated pants with short legs, briefs were be too tight and loose boxer shorts did not hold all the bits in place. Instilagel is a lubricant, anaesthetic and antiseptic ,I had a reaction to KY gel.

You may experience "by passing" when passing a motion this is where blood and urine pass between the catheter and the eye of the penis, slightly uncomfortable.

Talking of motions, avoid constipation and no straining to pass the first few motions, it could cause trauma to the urethral anastomosis / urethral joint.

Thanks Chris

User
Posted 20 Aug 2016 at 15:03

Thanks Chris,

Looks like it takes quite a bit of getting used to, will try and get everything in place ready, does the hospital supply the bags etc? thanks for taking the time to reply, seems like you wear nappies when you are born and then when you get older, like my daughter said full circle,

Paul

User
Posted 20 Aug 2016 at 16:30
P

Yes hospital supplied all bags etc, the only problem I had was my catheter removal was delayed by one day which left me a night bag short. Fortunately it was only a 10 mile round trip to get another bag. The catheter care is not a major problem,but you will have just had major surgery, only small wounds on the outside but alot has gone off inside.

Have a look at a conversation "swiftly moving on" for some pre op preparation tips.

Added

You are going to be dry within a week no need for nappies, think positive.

Thanks Chris

Edited by member 20 Aug 2016 at 17:36  | Reason: Not specified

User
Posted 21 Aug 2016 at 00:40

John had two day bags and one night bag - the type he had meant that it was simply emptied down the toilet and then re-used the next night.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 21 Aug 2016 at 09:50

I have read that instillagel can help stop the catheter rubbing, where can I get it from?

Paul

User
Posted 21 Aug 2016 at 09:59

Amazon sells it among others

****

We can't control the winds - but we can adjust our sails
User
Posted 21 Aug 2016 at 11:20

Originally Posted by: Online Community Member
Hi all,

I would like to hear about the best ways of looking after your catheter post OP, any help would be most welcome,

Paul

Paul...

The hospital should tell you all this and demonstrate it to you. I was given a catheter care sheet and the packs of bags etc also have instructions on use and care.

There is no problem showering and washing as long as you take care - yes make sure you have extra straps.

The bucket idea for retaining the night bag is excellent. Unless you move around a lot in bed then no real need for any other special measures.

KRO...

 

Edited by member 22 Aug 2016 at 16:59  | Reason: Not specified

User
Posted 21 Aug 2016 at 11:51

P

The hospital should give you some instilagel, or get a tube from the chemist about £2.50 -£3.50 a tube it "should" be a one use application. Just to clarify something I refer to day/leg bag and night bag, in reality the day/leg bag connects to the catheter and is stays attached until the catheter removal, the night/bed  bag connects onto the day/leg bag at night and disconnects the in the morning. The day bag should be changed after 7-10 days depending on you hospitals instruction.  My night bags were "one off" use and could only be used for one session, to empty it I had a break off a spigot at the bottom of the bag rendering it unusable for a second time. As Kro said the hospital should show you how to fit the bits together, just get your head round the taps or you could finish up with an over full day bag at night and a wet floor when changing over in the morning.

 

Thanks Chris

User
Posted 22 Aug 2016 at 18:02

Thanks all,

Just waiting for the OP now , just want to get it over with,

Paul

User
Posted 31 Aug 2016 at 18:27

Hi all,

Has anybody heard of Holmium laser enucleation of prostate followed by RT, could possibly be an option,

Paul

User
Posted 31 Aug 2016 at 19:35

It is not a treatment for PCa - it is a sort of re-bore of the urethra through the prostate to ease urinary problems, a bit like a TURP. It sounds like they want to ease your bladder problems prior to RT to minimise the chance of you going into retention?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 Sep 2016 at 06:36

Thanks, going with the OP anyway but getting nervous, just trying to keep busy,

Paul

User
Posted 01 Sep 2016 at 06:42

How did you all feel prior to surgery, I am getting pretty scared as the time is getting near, I am hoping for a cancellation and they call me in so I don't have much time to think about it, all sorts of thoughts going round in my head,

Paul

User
Posted 01 Sep 2016 at 07:29

Hi,

I felt apprehensive - but not scared.

The week before I had a Cystoscopy to check my bladder and on the same day had my pre-ops - the pre ops nurse was excellent and really made me feel at ease.

On the day I went in with my partner and both the surgeon and the anesthetist explained exactly what was going to happen...before I knew it I was with the anesthetist counting down... and then it was done - 3 hours later I woke up on care unit.

Hope all goes well for you - good luck

KRO...

User
Posted 12 Sep 2016 at 06:54

hi Sandra,

My brother in law had Brachytherapy, how soon after the OP did your oh have a PSA test, my brother in law has got to wait until Nov which is six months after the OP,

Paul

User
Posted 12 Sep 2016 at 07:29

Hi Paul. John's first PSA test after the op in June was in October which we got done through the GP and then we took those results with us to the Royal London in November.

His PSA came down from a high of 6.3 down to 1.8. It has continued to decrease since then and the last one in May this year was still at .02.

Our hospital prefers to have the PSA done locally (and so do we, as it's quicker) and our GP has been willing so far. John's hospital appointments have now  reduced to once a year but we shall still continue to ask the surgery to do a PSA every 6 months just to reassure us and Bart's consultant was fine with that.

Everything has to settle a bit after the procedure otherwise I assume you'd get a false reading due to the stress of the op. If your brother in law is concerned then perhaps he could ask for an interim PSA from the GP and just explain that he needs the reassurance that it is coming down.

Have a look at Kennt's profile. Like me, he kept a sort of diary and I think he marks his PSA's down on that

*****

Edited by member 12 Sep 2016 at 11:29  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 12 Sep 2016 at 11:27

Thankyou, it seems it is about the same length of time until his first PSA, he is not worried as long as he does not have to go out, he is a funny bloke, sticks rigidly to a daily routine,
my surgery getting near now, 29th, getting nervous

Paul

 

 

 

User
Posted 21 Sep 2016 at 09:19

Hi Guys,

I need some help, it is now 1 week until I go in for my OP, I can't get the feeling out of my head that something will go wrong, I need a kick up the arse or something, everybody says you will be fine but how can anybody know

Paul

User
Posted 21 Sep 2016 at 15:45

Hi Dave,

I week until my op, feeling very nervous, can't get over the feeling of something will go wrong, I need some straight talking, I know you are good for that,

Paul

 
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