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Well I never

User
Posted 14 May 2016 at 00:02

Not a lot I can say either other than I'm also thinking of you both.

Paul

User
Posted 14 May 2016 at 01:03

Bloody chest infections :-( Hopefully, the zaps to the hips were far enough away from the prostate not to limit how much he can have this time. Fingers crossed and loads of love xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 May 2016 at 04:06

hi fingers x for the RT to do its job

regards nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 14 May 2016 at 06:04

Hoping you can keep strong for each other. You've been through so much

If life gives you lemons , then make lemonade

User
Posted 14 May 2016 at 06:30

Hi Allison,

Thanks for the update,
Always thinking of you and hubby, lots of ups and downs hope the
infections go away

Barry

User
Posted 14 May 2016 at 06:43
Hope everything goes well for for you both with the next stage for treatment.

Thinking of you ,

John

User
Posted 14 May 2016 at 07:45
Hi D,

I can feel that awful sinking feeling in your post, let's hope that if J does need the op then it goes smoothly as you know we also have the issue with chemo. Life on this roller coaster is exhausting isn't it.

Thinking of you as always, lots of love.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 14 May 2016 at 08:26

Sorry to hear it wasnt only good news. Damn disease...thankfully they did a scan so at least you and they know what needs to be done.
Thinking of you both

Bri xx

User
Posted 14 May 2016 at 17:28

Also thinking of you. Such a sod to have kidney complications, you feel there is nothing this damn disease doesnt compromise. Send my love as always,

 

Fiona. xx

User
Posted 14 May 2016 at 17:35
Sending you a big hug devonmaid, really hope the radiotherapy has good effect for hubby.

Not sure how active hubby is at present but maybe this would be an appropriate time (pre radiotherapy) for a short get away to the seaside. A bit of sea air and sunshine would be great therapy.

Wishing you all the best with next treatment plan.

Take care,

Lesley xx

User
Posted 15 May 2016 at 02:05

A big hug from me too. I do hope the radiotherapy helps and also that the chest infection clears. If he's well enough for some sea air that sounds like a good idea from Lesley. I've just had some and even a bit of a paddle which felt good (and not even that cold)!

Take care

Rosy x

User
Posted 15 May 2016 at 10:49

Always there is change! When you think things are stable something comes along to remind us we are on a journey. I hope the RT can give the necessary relief and if not you have a second option, albeit not one you would wish to go down. Thinking of you and John as always!

User
Posted 15 May 2016 at 11:42
I realise that this may sound a bit forward as we don't actually know each other but I notice from your profile that I am not far away from you. I finish my sessions at the Churchill on 23rd June and from 25th May my appoinments settle down at 1.30p.m. When you get your appointments at the Churchill if you think that I can be of any help to you with transport at any time, then do not be afraid to contact me and I will do anything I can to help.

I realise that you possibly already have support in place but I am more than happy to let you have my mobile number should you need it.

I hope that all will go well.

Kind regards,

Kevan

User
Posted 15 May 2016 at 12:45
Thanks for your support everyone. John isn't moving much at the moment in so far as he's been very breathless and can't manage for long without having to stop. That said I took my girls away for the night to go on the Harry Potter tour (birthday surprise for my 33 year old) and he was ok on his own, though we have plenty of local back up if needed. It was a nice break for us and John loved time to watch wall to wall Westerns with the dog at his feet. I'd love to take him away to the seaside and I hope we will once we get the RT sorted. When we went up for his hip RT last year we rather enjoyed the daily trips, the RT department is a nice place with lovely people and we treated it as days out. The oncologist did say that this might not be as pleasant an experience due to the location of the RT and of course they need to do calculations on what's possible.

The chest infection is clearing up thank goodness, the sun has come out. We feel very lucky that someone ordered a CT scan, otherwise we might be in a very different position.

Devonmaid xxxx

User
Posted 15 May 2016 at 13:09
Hi Allison,

Thinking of you both. Hope the RT works it's magic.

Take care.

Steve x

User
Posted 16 May 2016 at 21:55
So glad you some time away , it just recharges you batteries some times and from one old timer to another a recharge is just what we need.

Being breathless is probably one of the worst things that Trevor has to deal with so I can totally emphasise with how J is feeling.

Keep your chin up chook

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 18 May 2016 at 22:31
Well we saw the urologist tonight and he showed us pictures of how the prostate had invaded the bladder leading to the blockages in the ureters and urethra. He was (as always, he's such a nice man) very reassuring about the possibility of renal failure and told us if he thinks John needs stents it will be done right away as an emergency with no waiting. He told us what to look for, chest pain (surprisingly) etc. He to,d us that the RT is palliative only to help with symptoms and wouldn't make any difference to the kidney issue, which did surprise us. Still, we start the RT process tomorrow with the planning session. I do actually feel happy that John is getting RT to the prostate as it doesn't seem common and that's where the cancer is concentrated and very active. I assume the RT will be scheduled for next week or the week after as we already have out next Onco appointment for 13th June.

DM

User
Posted 19 May 2016 at 00:48
Hi,

Hope all goes well with the planning session and the treatment follows soon.

Steve x

User
Posted 19 May 2016 at 05:53

Best wishes to you both Alison. You're both so brave and have been through so much recently.
Here,s to another drink by the seaside soon !
Chris

If life gives you lemons , then make lemonade

User
Posted 19 May 2016 at 06:16

Good Luck DM. Hope it all goes according to plan.

We can't control the winds - but we can adjust our sails
 
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