Well I never

User

Posted 05 Apr 2016 at 11:42

Page 5 - ta-daaaa

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 05 Apr 2016 at 13:02

a huge relief to hear about your brother, I bet that has also lifted J's spirits.

Im sorry he is still feeling unwell but the traumas of the last 3 months or so will take a while for him to get back from. Any improvements now will be such welcome milestones.

Thinking of you my friend.

PS I see Lyn has taken to page bumping too that page not found message is relly annoying.

User

Posted 05 Apr 2016 at 16:44

Hi devonmaid

Lovely to hear your brother has medical problem that is manageable, thank goodness it was diagnosed early. Agree it could have been fatal.

Sorry to see hubby not so well. I support your thoughts on encouraging him to use catheter following passing urine urethraly, particularly if urethral urine total is reduced. Am sure you are putting your urine dip sticks to good use.

Take care

Lesley xx

User

Posted 05 Apr 2016 at 18:34

Well better news for your brother and hope the treatment goes well. JOhn still having a difficult time, I hope he begins to improve, it's about time eh and you had some good news.

User

Posted 05 Apr 2016 at 19:29

Hi Devonmaid,

So pleased with the news on your Brother thank goodness the clot was found and in time this must be a huge worry from your shoulders. You have had such a rough time lately.

I so no that feeling of what next and thinking that I wouldn't be able to cope, some how we do though no matter how tough life is we get through it. I am not sure how but we do.

I have fingers and toes crossed that the new Aunty B regime for J makes an impact and you can see an improvement.

Lots of Love

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 05 Apr 2016 at 20:14

Hi Alison,

I don't usually answer just "good news threads", don't tend to empathy, leave it to others, but did try to make an exception for you as you have been there for so many so often and so consistently over the years. But all I got was "page not found". Bess this new site!!

I was going to pm you, but settled for sending you subliminal best wishes, which you have no doubt received by now?

If we never meet I would buy you a virtual coffee, with cream lovey. X

oh, and biscuit

atb

dave

Edited by member 05 Apr 2016 at 20:16 | Reason: Not specified

Do all you can to help yourself, then make the best of your time. :-)

User

Posted 05 Apr 2016 at 20:32

Thanks everyone. One nasty surprise for my brother. The consultant rang him on his mobile today and said he needs to go to his GP as his "prostate levels" are too high. I'm very confused about this as I can only wonder why on earth they would have done a PSA test. They didn't say any specific number, told him to wait two weeks and go back to his GP to discuss to allow the hospital notes to become available. I know they did liver tests and told him to reduce the alcohol (he likes his pint), I assume the liver function tests showed that but my worry button has been pressed as to whether he has a high ALP, you can know too much after all. Nothing to do but wait as ever. He's 49 and otherwise healthy (apart from 3 blood clots in his lung).

Eek!

Fingers crossed that this is nothing to worry about. Enough already and all that.

Chris, the ankles are swollen again and nighttime output is close to 2 litres. He's now on a some water tablet but it's made little difference.

User

Posted 05 Apr 2016 at 21:18

Have you had your blood pressure checked recently??? I should think it's off the scale with all these ups and downs! I do hope everything settles down with both hubby and brother soon.

In the meantime I think I would get into bed and pull the covers over my head for as long as it takes (perhaps with a bottle of your favourite tipple).

Take care

Rosy

User

Posted 06 Apr 2016 at 16:08

Hi Allison, I was so pleased to hear about your brother's results.

Rosy's right about your BP though. Is the NHS trying to scare you to death?

Get under that duvet till the dust settles!

Big Hug,

George

B2PCa

User

Posted 12 Apr 2016 at 20:18

Just an update on my brother re the prostate tests. His PSA was 5.4 at age 49 hence the worry. A week later it's 3.1. He will have another test to be sure but it's felt that this is related to the blood clot somehow. Phew"

User

Posted 12 Apr 2016 at 20:33

Pleased to hear you have had some good news. How is OH ?

Thanks Chris

User

Posted 12 Apr 2016 at 22:20

Phew indeed - lots of love xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 13 Apr 2016 at 09:19

Good news, one less worry for you!

Lesley xx

User

Posted 13 Apr 2016 at 12:56

Double phew DM, you and yours need a break from the whirl wind of emotions from the last few months.

BFN

JulieX

NEVER LAUGH AT A LIVE DRAGON

User

Posted 15 Apr 2016 at 20:42

Hi Chris

Up and down is how hubby is, poorly the last couple of days, urine cloudy with debris, despite the low dose antibiotics. Seems to have started to right itself though today. Lots of pains in various places, we have a CT scan coming up in early May followed by Onco a few days later, I think reassurance is needed. In the meantime on we plod.

Cheers

Devonmaid

User

Posted 15 Apr 2016 at 20:48

Have you still got the comfort blanket? You sound like you're still having a rough time. Thinking of you and fingers crossed for the scan result

Love and hugs

Rosy x

User

Posted 13 May 2016 at 19:32

Hi all

We went to see the oncologist yesterday after having had a CT scan last week. He started with the ominous "well there's good news and bad news" heart sinking we waited. PSA stable, bloods stable, so far so good. However, it is looking like the cancer has invaded the kidneys, neither of which seems to be working properly, despite the bloods being ok. Long story short, he's recommended a short course of RT to the prostate itself to try to reduce the tumour size and possibly improve the situation. If that doesn't work then it's a kidney drain and stents on both kidneys. The concern is renal failure apparently.

Actually we feel OK as we spent a whole hour with the oncologist and he was very thorough. He did say that it was good luck we had the CT scan because going by PSA and bloods they wouldn't have spotted it.

So we are waiting for the Churchill to phone to book him in for a planning session, followed by an unknown number of sessions but no more than two or three weeks as he wants to see us in five weeks and wanted to wait for post RT swelling to go down. He has already had 20 grays (I think) to his hip so obviously that needs to be taken into account.

Hubby has a second chest infection (possibly the same one), the oncologist gave me the distinct impression that chemo is not a good idea due to hubby's SPC and recurrent infections. Oh well that's one bridge we will face when we come to it.

Devonmaid

User

Posted 13 May 2016 at 21:08

Allison,

not much I can say other than I think of you both ever day, what a bloody rollercoaster.

xxx

User

Posted 13 May 2016 at 21:32

Thinking of you too Allison. X

We can't control the winds - but we can adjust our sails

User

Posted 13 May 2016 at 22:23

Never sure if putting a thanks on a post is enough, I cannot offer any advice but like others have said, you are both in our thoughts.

Thanks Chris

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