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Today is the First Day of the Rest of my Life

User
Posted 05 Jan 2015 at 19:00

Steve,

You have been given lot's of good advice from the other forum members so I won't repeat it all, but would like to say the following.

You have come through your cancer diagnosis, you have come through your RT treatment, you have come through your heart scare and you will get through this bad bout of depression. I do have to so say though you must see your doctor about this, pills do not sort everything and I think you really need the help of an experienced counsellor who specialises in depression, you need professional help so make sure you get it before things get any worse.

Best wishes, hope things improve soon for you.

Good luck to ALL who are fighting or affected by cancer.

Regards,

Gerry

Edited by member 05 Jan 2015 at 19:01  | Reason: Not specified

User
Posted 05 Jan 2015 at 23:09
Hi Steve, I am still a newby and was sorry that we never met at kings x this Xmas. i think where you are may be where I will be one day however don't be cross about having those thoughts it's totally understandable and natural, I won't offer ways to compensate as that has been done earlier. I did have one thought for you ( forgive me if this is not the kind of photographer that you are) , assuming you have been taking a wide variety of pictures for years and you own the copyright have you considered cataloging them and in some way looking to sell certain images as that may allow you to 1) have something positive to do, 2) get your catalogue on the computer and 3) maybe make a few quid whilst working from home. I am sure this is not as easy as I make it sound but perhaps just put your mind to it for a bit as a distraction. Perhaps approach a local gallery to see if they will display some of your work? Apologies if this is teaching you to suck eggs. Look forward as ever to hearing more from you as like others have said it gives you a chance to get it off your chest. Sleep well, Kevin

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 06 Jan 2015 at 00:09
Hi Steve

Don't beat yourself up for feeling this way it happens to many of us, especially if you are on hormones. During your years of marriage how many times have you wondered why your wife would burst into tears and think to yourself "what have I done" well welcome to her world. I Found that when I was being chemically castrated I turn into a person I didn't recognise and didn't particularly like, I couldn't socialise as I didn't trust myself not to cry, nothing helped until I came off the dreaded Decapytyl, even then it took months to return to some type of normality. Since then I have been back on hormones for 6 months (Casodex 150) and found this a lot easier as it doesn't castrate you, in fact my testosterone went sky high, but I developed man boobs, but these are reducing somewhat, I have just had my bloods taken today and i am dreading the outcome because a rise could signal going back on the dreaded hormones, but if so I will ask for Casodex again or similar. Unfortunately there is no free ride on hormones unless you are very lucky, they all seem to have their drawbacks. So given the hormones and all the extra C**P you have had to endure it's hardly surprising you feel this way mate.

All the best

Roy

User
Posted 06 Jan 2015 at 14:40

Hi Steve,

Sorry i'm late with this, I had to find an old post of mine to paste here.
I thoroughly understand how badly you've been feeling.I have been there, and (damn it all...still visit there sometimes!)

This was my reply to someone undergoing the same dark times a while back:



I am so glad you posted about your depression.
So many guys won't admit it, but it is very common amongst members here.

When I was diagnosed in 2005 I was told I had only two or three years left, yet it didn't bring me down at all.
In fact, quite the opposite. I had a fire in my belly and an absolute determination to get through everything and prove that one particular doctor was a sadistic tosser.

I became as pro-active as you could possibly be in my treatment and in my dealings with consultants.

Yet, four years later, when all my results were good, RT had been a doddle, I'd finished HT after just 2 years, and life was good......I suddenly slid down into a deep black hole of depression.

Being the stubborn git that I am, I did NOT want to see any doctor about it, figuring I would find my own way out of the darkness.
I was wrong.

I endured 14 months of very deep depression. I didn't want to socialise, didn't even want to answer the phone, became very withdrawn and quiet. I couldn't even arrange our Leicester 'do' in 2009.

Finally I spoke to my oncologist (who is a good friend) and he wasn't at all surprised. He said he had expected depression to hit me much earlier. He recommended I see a pyschologist who specialised in cancer patients & depression.

I met her a few times, and she did get me to talk a little, but I felt more sessions wouldn't help.

Finally, I took the meds route. I got my GP to let me try four different types of anti-depressants over about six months, and finally I found one which actually worked for me.

Within a month of starting those pills, I felt myself coming back into the light.
It was like a miracle.

I didn't stay on them too long, but I do return to them every 18 months or so, because I am still prone to bouts of that damn depression.
But at least now, I recognise the signs soon, and I don't let it bring me down for long.


I think it's like our reaction to our cancer and our treatments - each one of is is unique.

Some people are able to throw themselves into activities and get through depression, other do find counselling works, but when you find yourself so deep down a dark hole that you can't function properly any more, it's time to do something.

Don't be stubborn like I was, go and actively seek a cure.

But most important of all, please don't try and cope with it alone if you find the dark periods lasting too long.

Our life is far too short to waste in in gloom, innit?

Start smiling soon, kiddo!


George

User
Posted 06 Jan 2015 at 19:32

George, I thought I knew you but had no idea that you have had this struggle. What a wonderful post x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 06 Jan 2015 at 23:00

As George has openly admitted his own struggles I think you can see Steve it's far more common than people think. I don't believe anyone can go through a diagnosis of Cancer and not feel depressed lets face it that hardly make you feel good. You have had one blow after another and as Mo has said your feelings are completely normal. Trust me there are many days when I am so low it is hard to function and the same for Trevor. I think everyone on the forum deserves a WHY ME MOMENT.

The only person I can think of who never really  spoke of those feelings was TG but I am sure that he had them , in fact I know he did. I once sent him the song Moon River, it seems like a life time ago know. Any way before I get all maudlin here is my song to you.

The sun'll come out tomorrow

Bet your bottom dollar that tomorrow ther'll be sun

Just thinking about tomorrow, clears away the cobwebs and the sorrow till there's none

when I'm stuck with a day that's grey and lonely , I just stick up my chin and say OH

The sun'll come out tomorrow , so you gotta hang on till tomorrow, come what may!

Tomorrow, Tomorrow, I love ya your always a day away.

BFN

Julie X

 

 

 

NEVER LAUGH AT A LIVE DRAGON
User
Posted 07 Jan 2015 at 13:25

Hi Julie and Lyn,

It's funny Barry (TG) was mentioned there.

When I first posted about my trouble on here all those years ago, Barry sent me an email, the first time we'd had direct contact.
He fully understood depression and his words were so comforting.

And so began a great friendship which lasted all the way through, and I'm privileged to count his wife Karen and son James as good friends to this day,and so many here can say the same.

Barry, We miss you mate.

George

User
Posted 07 Jan 2015 at 19:16

Dear Steve

 

What lovely, thoughtful posts you have received from your friends on this forum. People obviously think so much of you, and know you only via this site.

You must mean so much to those who live with you, your family and others who know you in person!

I hope this will give you the strength and encouragement to pull through these dark moments.

Thinking of you.

Alison x

User
Posted 07 Jan 2015 at 19:28

Nah Alison, we just have to be nice to George on here because Lynn and Catrina find him really irritating.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 08 Jan 2015 at 00:06
Sorry Steve, only just seen your post.

Please accept a man hug mate.

I'm on citolopram, have been for 12 months. They are a serotonin enhancer rather than anti depressant (Prozac) I tried before which didn't help at all. Made me a wreck. These help iron things out & take the edge of life. I'd struggle to function without them.

I hope this year is a year of positive change & recovery for you mate. I'm going to a friends funeral tomorrow. He has been a great support to me through the cancer but he died the week before Xmas in a freak accident on his drive with his car. It's hit home how fragile we all are and how important it is to look out & care for each other. I feel bad too that I've outlived him, when only a month or two ago he was visiting me to see if I was ok.

I've struggled showing emotions all through my life. I think it's a bloke thing. I'm not like that anymore. I wear my heart on my sleeve. I'd be in bits at my grand child's christening too. It's a huge & fantastic occasion. You must be so proud.

It must be like walking through treacle at the moment Steve. I do hope the light grows brighter & warmer at the end of the Tunnel soon mate & they sort your health issues.

Life's a Marathon. Run in peace.

User
Posted 08 Jan 2015 at 07:44
Thank you everyone.

Steve

User
Posted 11 Jan 2015 at 03:48

Hi,

I'm really sorry I haven't posted much in the last week, I think you'll understand that there are times when you don't feel as if you want to. 

The last week hasn't been too easy but I made it through with just a little bit of uncertainty about what will happen next. 

I'm feeling really tired most of the time and my breathlessness has become far worse, and another medication I've just been given to help with this, makes me very dizzy whenever I do anything.  Even when I take this drug (that makes thirteen different medications I use each day), I am still breathless so I'm not sure it's of any benefit.  The cardiac team have told me if this doesn't work then I should go into hospital earlier than next week (my angioplasty is due to take place a week on Monday, the 19th).  It would mean that I may have the op sooner, but I don't want to end up staying in hospital for a week if they can't do that. 

I feel a little happier this weekend than I did last, not quite sure why but maybe it has been that I have been doing a lot of writing about how I feel about my life, what has happened in the past and what might happen in the future.  I don't know if anyone will ever get to read this, probably best if they don't but it's made me feel better than I have been.  I suppose it's a form of therapy. 

I'm not pleased with myself when I think about others on this site who have far worse situations than me and seem to be far more positive about things.  I expect, deep down, I'm worried about the heart op and just hope everything is sorted.  I look forward to getting that done and being able to return to a more normal life.  I feel as if I can't do anything just now.  I think that it doesn't make it any easier having all the time in the world to think about things, when I was working, there was usually wasn't that time.

Anyway, thanks once again for all the messages you've posted, I think you've really helped me when everything seemed so bleak.

Steve

User
Posted 11 Jan 2015 at 07:08
Hi Steve, I am sorry that PC has brought you to the emotional position you are in, I think everyone touched by the disease can expect to have alien emotions to any healthy person. Do not beat your self up ever about how you feel as they are your feelings and you have every right to have them. As for your writings, I and many others would love to read them, captain Scott went to the South Pole, he chose to do it for glory, it was tough and sadly the return trip was too hard for him but his writings have been read by most British adults , I can recite them, they are inspirational and emotional. You my friend did not chose your challenge but like Amudsen have the advantage of using more modern ideas ( he used dogs, we use drugs) so there is no reason why you won't make that return trip, get the glory and have your writings read. I bet you have taken some inspirational, jaw dropping pictures in your time, I would love to see some, I have now Ida how I can see any but would love to, you must remember what you have achieved and what you are achieving now by helping newbys like me on my challenge, preparing me for some of what may be to come. As you know, I run, and stupidly have not cancelled my entry into this years Brighton maeathon despite being T4 N1M1a and starting chemo in 2 days, I shared that with a few friends last week and that has inspired them in that time to give £1800 to my just giving site for PC uk, I will get more and that gives me strength and purpose to get through the next few months. Your inspirational writing must do the same for you, share what you can, I for one would have less strength without you and others on this forum. Thoughts always with you Steve

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 11 Jan 2015 at 09:13

QUOTE
"I'm not pleased with myself when I think about others on this site who have far worse situations than me and seem to be far more positive about things. I expect, deep down, I'm worried about the heart op and just hope everything is sorted. I look forward to getting that done and being able to return to a more normal life. I feel as if I can't do anything just now. I think that it doesn't make it any easier having all the time in the world to think about things, when I was working, there was usually wasn't that time.

Anyway, thanks once again for all the messages you've posted, I think you've really helped me when everything seemed so bleak.

Steve "

I am glad that the flurry of support for you has helped. It's what we do and what we are here for after all.
You would have/have done, the same for others when they've been down.

As for not feeling pleased with yourself, what makes you think that you in particular have to be superman.

No two people are alike or react to things in the same way. It doesn't make one of them weak - just different.

If you could stop beating yourself up about how you are behaving or reacting you might have more energy!!

I won't make a sweeping statement since I don't know the facts, but I am sure there are many men on here who are struggling with cancer and don't also have a debilitating heart condition to contend with. Remember, your problems in that respect are serious enough for your heart team to advise that you go in before the angioplasty.

Keep writing. It's very therapeutic.

All the best
Sandra

 

PS that's a lovely post by IRUN and so true. See more inspiration for you. Instead of laying/sitting there thinking what have you achieved in life start thinking about some of the amazing/funny/touching shots you must have taken in your time.

Capture the memory of those in your writing, ready for when you put your collection together for viewing!!

 

Edited by member 11 Jan 2015 at 09:18  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 11 Jan 2015 at 10:15
Steve

Please, please never beat yourself up for feeling down or try to compare yourself with others on the Cancer scale (if there is one). You are you and you are a heck of a good guy who has been laid low by a number of horrible things, not least the worry about work and money. I think it is very brave of you to be so open about things, and look what it has done. It has brought many others to your aid and in doing so, they have revealed their own depths of despair. You wouldn't be human if you didn't find all this hard going. I know from four years of living with this disease that I am not the same person I was when it started. I no longer feel anything regarding my job and wish to leave. I try hard not to be that person and to change myself back but how can I? The person I was four years ago hadn't been through this ordeal and it's not even me who's sick. So I would say, let's get your heart problem dealt with, it will make you feel a whole lot better once you have started on the road to recovery and if you still feel bad, don't be afraid to get support from your GP (and your friends here) and Macmillan can help too.

You come across as a really nice bloke, good luck for the op, I hope all goes well and you are feeling much, much better soon.

Lots of love

Allison

User
Posted 11 Jan 2015 at 13:34

Steve,

I can only echo the sentiments expressed so well by Kevin, Sandra and Allison.

What else can i say, except, get well, good luck, and remember that you have a host of real friends here who care and are always willing to listen and help.

Let's see a fit, well, and chirpy 'Snapper Steve' at the big B2Pca 'do' on June 20th, where you'll get to meet in person so many of the kind people you've met online here.

Very best wishes,


George

User
Posted 13 Jan 2015 at 02:04

Thanks Kevin, Sandra, Allison and George for your messages, they mean a lot to me.

Starting to feel a bit better now as my heart problems look as if they could be solved soon with my op next Monday.  Just hope that works ok.

My OH is really worried, especially when she read the high risks involved with the procedure in the British Heart Foundation info.  They put the chances of it causing another heart attack, a stroke or death, at one in every hundred procedures.  Perhaps I should say my "Goodbyes" now after my recent run of bad luck (only joking !).

Better try and sleep now, I have my next Zoladex injection at 9.10 this morning.

Thanks again.

Steve

Edited by member 13 Jan 2015 at 02:26  | Reason: Not specified

User
Posted 13 Jan 2015 at 06:26

You were up late Steve,

Hope you get back to natural sleeping times.

Don't feel bad that you are suffering less than some here or elsewhere. Your condition is still your problem that you are dealing with, so no less of a problem for you. You have a lot on your plate at the moment and I wish you well this morning and for Monday.

atb

Dave

PS the chance of a problem may be 1 in 100.

So, the chances of success are 99 in every 100. Sounds better when you look at it like that I think?

User
Posted 13 Jan 2015 at 07:06

Good luck next week steve and Dave is right 99% odds in favour are very good odds

Take care
Bri

User
Posted 14 Jan 2015 at 02:53
Hi,

Thanks guys.

Dave, very good point, lateral thinking puts things into a very different light. I much prefer the look of 99% chance of surviving the op rather than 1% chance of dying from it.

I'm actually looking forward to having it done and getting my heart sorted. It can be very distracting having to worry about another heart attack when you're trying to worry about cancer [img=http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif]

.

I had my Zoladex implant this morning, went pretty much to plan apart from the fact that it took a while to stop the bleeding afterwards. Never had the problem with the previous ones. Decided it was due the blood thinning treatment I'm on for my heart problem. They said my blood would be less likely to clot while I was on these drugs.

Anyway, only 5 days to go before I get my wrist slashed (as part of the operation), though I felt like a bit like doing that myself recently. Good job I didn't.

Steve

Edited by member 14 Jan 2015 at 02:59  | Reason: Not specified

 
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