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Advanced prostat cancer part 2

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User

Posted 23 Feb 2016 at 08:24

Will be thinking of you today Julie

Really hoping for good news

Si xxx

Don't deny the diagnosis; try to defy the verdict

User

Posted 23 Feb 2016 at 09:32

Fingers, toes, eyes, Is, Ts, the lot - all crossed in the hope that tomorrow's results are good. I don't half look odd and I can't see where I'm going !!!!!

I do understand about the DIY side of things.
I've always done them and John has only got involved if something was too physically heavy for me.
Those days have now arrived and he's been told (no discussion this time!) that we WILL be decorating this year and that I will need help as I know that this is going to be probably the last time I will manage it. He does at least accept that age isn't on our side, let alone physical limitations. We don't however have your problems and I know that once you get that list of jobs in your head it's not easy to let go of them, especially if you think they are time limited

Having said all that Julie, the house isn't likely to fall down round your ears just yet (I hope) so concentrate on the really important stuff (and by the way, nothing to stop you approaching the DIY SOS team and asking. You never know)

We can't control the winds - but we can adjust our sails

User

Posted 23 Feb 2016 at 09:35

Thinking of you, know the feeling about being too old to do stuff round the house! Love,

Fiona. xx

User

Posted 23 Feb 2016 at 19:12

Hi Julie

I popped on and just saw this, Eeek, the waiting around for results is rubbish isn't it? I often go into our appointments with bated breath as we don't get to know anything beforehand. Fingers, toes and everything north all crossed for you both. Hugs too.

Lots of love

Allison xxx

User

Posted 23 Feb 2016 at 23:21

Thinking about you and wondering how you got on x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 24 Feb 2016 at 09:13

So not good news but to be honest it was what I expected there is significant progression in the bones the Wiz showed me the scans (Trevor didn't want to look) . Trevor had a few tears and then quickly pulled himself back together. To say everybody's mood was somber would be an understatement.

All of his torso on the scan is affected, so numerous new sights and worsening of the original ones.

No plan B for the moment she wants to wait for the results of the CT scan (this Sunday) next visit is 21st March and she will decide what to do then. We carry on with Abbi until then , but we all agreed that it is not working .

She wouldn't comment on Raduim 223 she said she wants the results of Sunday's scan first.

Bugger this tishy disease I would like to say worse but I will probably be moderated.

That sick feeling in the pit of my stomach is back with a vengeance.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 24 Feb 2016 at 09:23

Hi julie

Cant say owt but sending a BIG HUG

good job i check my spelling as it was nearly a BUG HUG

Regards

Nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User

Posted 24 Feb 2016 at 09:24

So sorry to hear this Julie. It's still so hard even if it's what you expected. I beieve the Radium is for if there is no visceral spread so it might be a possibility if the MRI scan results are ok.

Big hugs to you both

Rosy

User

Posted 24 Feb 2016 at 09:25

Julie
I'm so so sorry for you both. That news is awful for you. I detest that sick tummy feeling and hope it clears sooner rather than later. Best luck with the scan.
Chris :-((

If life gives you lemons , then make lemonade

User

Posted 24 Feb 2016 at 10:16

Oh love, you are so brave, it's time for the cuddle blanket to come your way.

It must be so hard for you to just go home and not be able to talk about it. I'm happy to have a chat if you need me, I'll pm you on Facebook.

Lots of love and hugs

Allison xxx

User

Posted 24 Feb 2016 at 11:17

Thinking of you both .....dealing so bravely with this s**t disease...

Luther x

User

Posted 24 Feb 2016 at 11:27

XXXXXXXXX From me Julie XXXXXXXXX as I don't know what to say

We can't control the winds - but we can adjust our sails

User

Posted 24 Feb 2016 at 12:26

So sorry to hear this. Thinking of you both. My OH has just started Radium 223 so i hope this is an option for you.

Glen

User

Posted 24 Feb 2016 at 12:38

Oh b***er, as they say. I think an earlier post is correct about radium 223. Let's hope the ct scan is clear. My oncologist team in Sheffield did some of the trials and for active bone mets it is supposed to be effective. Thinking of you and Trevor at this worrying time!

User

Posted 24 Feb 2016 at 13:32

I'm so sorry to hear this news, Julie.

Like others here, I wish I could say something that would help but I know that would be difficult. We are all here for you both as you have been for many others here.

It's so unfair that the worst things always seem to happen to the nicest people.

Sending my love to you both at this difficult time.

Steve xx

User

Posted 24 Feb 2016 at 13:47

J&T

Probably like many not sure what to say, but we are thinking of you at such a tough time.

Thanks Chris

User

Posted 24 Feb 2016 at 17:50

Julie my SS

Oh FFS I remember that awful feeling in my stomach the nausea too. Rather than try to say something comforting here I will call you and chat. Of course I am coming there next Thursday so I can give you both the biggest hugs.

xxxxxxx

User

Posted 24 Feb 2016 at 17:53

Oh Julie. ..I'm not sure what to say but obviously everything crossed that the scan on Sunday is ok.

I am thinking of both of you...I hope you take up the offer to chat with others 9n here or fb

Bri xx

User

Posted 24 Feb 2016 at 21:56

Hi Julie

I am so sorry to read your latest post. I am so hoping radium could be an option for Trevor. Sending you a big hug.

Take care

Lesley xx

User

Posted 24 Feb 2016 at 23:54

Oh my - these are going to be a tough few days. It looks bad Julie but really this is a small setback when you compare it to the blue light times. You have done brilliantly so far and you have already survived bigger knocks than this so you will find the strength to do it again, for T and for the boys.

The only thing we can do is hold you up and keep reminding you how important it is that you get some respite sometimes - a break from the constant state of high alert.

As a starter, I have posted a picture on your FB - your T should have been a premier league footballer apparently!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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