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Advanced prostat cancer part 2

User
Posted 30 Jan 2016 at 23:22

Hmmm, I saw the reply from no-one special as well.

In my experience, if the moderators delete a post they let you know what you did that was so naughty so I think it unlikely that this is the explanation.

I thought that Mark had radium223 from the Wiz without doing chemo but I could be wrong - will try to check back

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 30 Jan 2016 at 23:34
Thanks lyn glad that you also saw it and SS thanks also for confirming your post as well ( just to prove that I read it before it mysteriously dissapeared yes please send the cuddle blanket😍. The moderators wouldn't remove 2 posts for no reason and neither of them contained anything that was worthy of being removed. Of course know we have Rosmary and Thyme on the case I am sure it will get sorted .

I just read this today Lyn, apparently a new ruling from NICE from the 27th of this month.😝

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 30 Jan 2016 at 23:44

I just checked - Mark had chemo and then tried Cabz not radium :-( It has also dawned on me that your Wiz may not be the same person as his Wiz ... all these years I have just assumed you were under the same person!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 Jan 2016 at 00:29
Julie

Mystery over my fault pressed delete rather than save when edited

Sorry don't know what happened to Mo's post

User
Posted 31 Jan 2016 at 17:32
Ah

the plot doesn't thicken then and Rosemary and Thyme can stand down ....

Still not totally sure what happened to my post but it didn't cause any harm, and only two very observant people saw that for the first time in over 2 years it looked as though I had missed a post by my SS. Not a chance!

Anyway I am going to fess up that, on reflection, I did partake of a few glasses of wine that evening and may have returned to the post and may possibly, just by a completely outside chance under the influence of 2 glasses (which was 2 more than I had drunk all year) have pressed the delete button in error.

Noonespecial, I think a few of us who remain close are just a bit concerned with your new forum name. You are special and you are someone , in both instances very much so to all of us. Have no fears we all respect your right to remain anonymous. So if anyone else out there thinks they know then just keep that intuitive guess as is.

xxx

Mo

User
Posted 31 Jan 2016 at 17:51
OK detective Mo

What gave it away

Carol

Was it the bad grammar

Edited by member 31 Jan 2016 at 18:01  | Reason: Not specified

User
Posted 31 Jan 2016 at 18:37
someone special

not at all the perceptive one is my SS. I'm the clumsy one that says all the most inappropriate things. My epitaph will read "she meant well"

xx

Mo

User
Posted 31 Jan 2016 at 20:01

http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif i was right http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

Don't deny the diagnosis; try to defy the verdict
User
Posted 31 Jan 2016 at 20:03
Si

remind me never to play you at poker!

xx

Mo

User
Posted 31 Jan 2016 at 22:23

Carol! Why did you choose such a name???? You are one of the kindest and most empathetic posters on here.

Please change your name back, it makes me feel sad :-(

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 Feb 2016 at 00:39
Ah Ha so mystery solved and I didn't even have to phone Hercule Poirot🤓, still strange they both dissapeared on the same night though and within an hour of each other. Carol I have to agree with Lyn you are certainly not noonespecial, it is lovely to hear from you I hope that you are OK?

Lyn 2 Wizards that can't be so, I think that one of them is an IMPOSTER. 🤔

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 23 Feb 2016 at 00:20
So here we go Wiz visit tomorrow, bone scan completed last week we are just hoping that the results will be back ready for our appointment in the morning. MRI is on the 28th so we wil have to wait for those results.

So ABbi to continue ? or ABbi to stop it is like the sword of Damocles hanging over our heads.

I say we on this ,Trevor remains non comital , non talkative, and honestly still can't cope with any discussion about his disease. I get it I so totally understand , although it took a long time for me to accept where he is coming from. We are all differnt beings and how we cope is unique.

It is his disease and he owns it , where does that leave me well that is a whole different story. That is where you guys come in. 😥

Wish us luck and keep fingers crossed, who knows the bone scans may show no progression and we will hang on in there by a wing and a prayer, we have skidded around so many corners before. It is just another corner right?.

Life with PCa it sure is a roller coaster at the moment we are on a dip (for those that remember the rocky road) I feel we have a few boulders coming up. It would seem that radium 223 is not going to be on offer but I will update on that.

I

Our DIY goes on abated, Trevor is too ill and I am too old but we are trying the best we can, to be honest we both know that there is a sense of urgency to get things sorted . Where is DIY SOS when you need them .

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 23 Feb 2016 at 02:12
Hi Julie,

I really hope things go well at your appointment. You both deserve some better news.

I think I share your anxiety tonight as I have my cardiac review in the morning. I've been having niggling chest pains all this evening which I'm sure reflect my concerns about everything rather than anything too serious. My GTN spray has been well used.

I hope things settle down for you both in the coming weeks and you can enjoy life. Don't worry about the DIY, in the scheme of things, it's not that important.

Thanks for being an inspiration to many, myself included.

Steve x

User
Posted 23 Feb 2016 at 02:41

Wishing you all the very best for tomorrow. We too are on abi with rising psa levels and my OH doesn't communicate about his illness or how he feels so I really do empathise with you.

I will be thinking of you

Rosy

User
Posted 23 Feb 2016 at 04:20
SS you know I am thinking of you. I will be there to give you a great big hug next Thursday.

I hope that everything goes well later today, fingers crossed.

I will call you later

Xxxxxx

Mo

User
Posted 23 Feb 2016 at 06:49

Julie/Trevor....I hope everything goes well at your appointment today.
You are right about us all being different but we are all here for you both

Bri xx

User
Posted 23 Feb 2016 at 06:58

We are both thinking of you today and mostly that the scan shows no development. Fingers crossed
Chris xx

If life gives you lemons , then make lemonade

User
Posted 23 Feb 2016 at 07:13

Good luck Julie/Trevor for today.
i wish you the best results.

Paul

User
Posted 23 Feb 2016 at 07:59
To you both,

I really hope all goes well for you.

Shall be thinking of you.

John

User
Posted 23 Feb 2016 at 08:12

add my twopenneth also hope the results are what you wish for, made me laugh with the DIY SOS bit

regards
nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

 
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