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15 years on (continued)

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User

Posted 25 May 2014 at 21:52

Welcome back Barry, it sounds a wonderful trip. You may have considered this but wondered whether you self catherise before bed? I was getting up about every hour or less a few months ago and sometimes not making it! I started to self catherise just before bed and also measured it. I was at that time drawing off between 450-500 mls. Suddenly I was getting through the night. I now routinely do it twice a day and get relief from constant peeing (except when I have a UTI of course) just a thought!

Edited by member 28 May 2014 at 11:53 | Reason: Not specified

User

Posted 28 May 2014 at 08:43

Hi all,
Thanks for the welcome home messages the break and wonderful Norwegian air and scenery did us both the world of good.
I thought though that I would give you an update on the free PSA testing regime which we, in conjunction with PCaSO Bournemouth, started here in South Dorset back in November 2013.
Although no longer running the Support Group it is something that I am proud of in that as chairman at the time it was my idea that got the programme running.
To date the group has run 4 events, testing 495 men of which 71 were advised to go to their GP to discuss things. There are already 2 more days planned in the next 2 months and that will now cater for another 300 men (the team are now finely tuned and can deal with an increased number)
I and the group have been very lucky that my successor is doing a great job and The South Dorset Prostate Cancer Support Group is in safe hands (albeit it could do with a shortened name)
I am of course still in touch with many of the members and still kept in the loop so to speak with email updates, newsletters etc. which is kind of them.
Four years since the group was formed.....one of my better ideas😎
Life is for living
Barry (alias Barrington )
PS if anybody wants to know how this PSA (finger prick, immediate result) test works please email me through this site.

User

Posted 28 May 2014 at 19:21

Barry I have just realised that I didn't welcome you home. I am so glad you and Karen had a such a lovely time . The fashion accessories were brilliant, (T shirts and waistcoat)

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 29 May 2014 at 11:06

Hi Barry

I didn't realise that you had been looking at that "darkside". I spoke to George this morning regarding Leicester and mentioned a few names when he told me. The trouble is I can't get my fekkin head around this new site - anyway George posted me a link to this thread...so here I am.

Anyway glad to hear you enjoyed the cruise. Have you booked the next hols? ... as they say "life is for living". That's all I do, book hols and work sometimes.

I'll see you in Leicester but if the beer is a bit too much for you then I'll have your pint.

[would have poste a smiley but can't find them. This bloody new site]

Best wishes
Gary

Edited by member 29 May 2014 at 11:07 | Reason: Not specified

User

Posted 30 May 2014 at 22:17

Hi Gary,
Welcome to the dark side I am also finding it hard to navigate but I intend to persevere, as for the beers I have to say I'm no longer a good drinking partner.
Not been the best of days today, having read two great posts from Bri & Bazza both with good news I am in a lot of pain. Mainly around my upper left back/rib cage extending round to the left chest. This is the worse I have been for sometime and a double dose of good old morphine hasn't for once done the trick. Some of the nodules in that area have become quite pronounced and can easily be felt. All a little worrying but hopefully the pain will have eased by tomorrow.
Sorry all, not my usual positive post but sometimes you are allowed to feel not so good.
Ah well,
Life is for living
Barry (alias Barrington )

User

Posted 30 May 2014 at 22:24

Wishing you well Barry and hoping the morphine eventually kicks in and your spirits raise in the next day or two.

Bazza (Barry)

User

Posted 30 May 2014 at 23:10

TG, so sorry to read that you are in discomfort. You won't want to think about this I suppose but can the Macmillan nurse jiggle the meds around a bit more - you are a stubborn old mule and might be tempted to try to 'manage' rather than allow yourself to be as comfortable as possible.

Thinking about you x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 30 May 2014 at 23:31

Your posts are always positive. I hope you can get the relief you need quickly to quell your discomfort.

Paul

Stay Calm And Carry On.

User

Posted 31 May 2014 at 00:28

Hi Lyn & Co,
I have an excellent pain control nurse from the Dorset equivalent of MacMillan, The Weldmar Trust, and I do actually listen to her. I am currently on twice daily 40mg of Zomorph and normally 5mg of Oramorph every 4 hours. I have upped that to every 2 hours for the moment. If still in pain tomorrow will up the Zomorph ( that is a continuous feed over 12 hours).
Strangely this afternoon Karen and I went to the local Weldmar Hospice for a guided tour, organised by my pain nurse. It is a lovely facility in extensive gardens a place that is so tranquil. You can go there for a couple of days if not too good for just a rest away from a normal hospital. Karen was just saying perhaps going there might be sooner than we thought....as she failed in pushing me overboard this might give her a good nights sleep.
Talking of which I've just moved into the spare bedroom so it's time to let the morphine kick in and get some shut eye😴
Life is for living
Barry ( alias Barrington )

User

Posted 31 May 2014 at 05:41

Sincerely hope you're feeling better today TG and that you got some sleep. Best Wishes. Sandra

We can't control the winds - but we can adjust our sails

User

Posted 31 May 2014 at 06:48

I hope that the Weldmar Hospice is in no need of plastic grass,seriously though hope the pain management is ok and a good sleep was had.

User

Posted 31 May 2014 at 06:53

Cheers Sandra,
The pain is a bit more under control but is still there in the background. Unlikely to go away over the weekend so I will contact my pain control nurse on Monday to see if there's anything else in the market (I bet that was surprised you Lyn) as I don't want to be taking morphine every 2 hours.
I note Sandra from your posting under " Bazza" that your OH isn't too good at the moment either so hope things improve. You and so many others are right, it is the likes of yourself and our partners who, in the majority of cases, seem to bear the burden of worrying far more than we do. Having run a Support Group for a while it is, more often than not, the ladies who are the driving force behind any participation by us men including going to the GP in the 1st place. I know that without the support of my wife things would be so much harder and I'm sure your OH feels exactly the same.
My very best wishes,
Life is for living
Barry (alias Barrington )

User

Posted 31 May 2014 at 08:21

I didn't men to mislead you TG, or anyone else. OH hasn't had his seed brachytherapy yet, that's on Tuesday. He isn't actually suffering (yet!) and assumes he won't. My real concern is that the wakeup call will be a rude awakening. He's normally a cheerful soul and unless I drop broad hints of the possibility of how he will feel he makes no enquiries.
Ah well, ,maybe he's right.
Another little cliché. Don't trouble trouble until trouble troubles you.
He may sail through the whole thing and I will have fretted for nothing.
Although I haven't a clue who else would have organised the incontinence pads and pants (just in case) ! http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-undecided.gif

Edited by member 31 May 2014 at 08:23 | Reason: Not specified

We can't control the winds - but we can adjust our sails

User

Posted 31 May 2014 at 09:52

Hi Johsan,
I have had your private message but don't know how the reply works? Still not got to grips with the site.
The pants you refer to are the ones, about 12 in a pack and really work.
Hopefully it will all be plain sailing but you are right to have a pack at hand just in case. They do get a bit uncomfortable after a while when sitting but what the heck.
Best of luck for Tuesday
Life is for living
Barry (alias Barrington )
PS I have tried to reply to your private message

User

Posted 31 May 2014 at 10:13

Ditto Lyns and others advice. Please make sure you get the support when YOU need it.
It's quite permissible to think of yourself now and again and perhaps you need to do that now

See you in Leicester old lad

Bri

User

Posted 31 May 2014 at 10:15

Hi Barry,

Sorry to hear your pain is playing you up . I know you don't want to make a fuss but sometimes it is better to press the buzzer to early. No one should be in pain in this day and age. If you need it shout for it even if it is before Monday. I have to agree with Lyn you are a stubborn old Mule, OK not perhaps old. That said this is one of the many reasons why we all love you.

I hope today is easier for you.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 31 May 2014 at 11:37

Thanks Barry. Got the private message so you've sussed it out OK.

We can't control the winds - but we can adjust our sails

User

Posted 31 May 2014 at 16:04

Hi all,
I have tried to post this message under "New Topics ...Social" but haven't seen it appear so thought I would add it here......

Hi all,
Within the new site I think this is a good as place as any to wish JANET (jIbatty) a very Happy Birthday. Very many members of this site who know Janet will recognise the wonderful support she quietly gives to those of us who suffer from this insidious disease.
For those of you who don't know Janice, she sadly lost her husband, Mike, to PCa 4 years ago. She was magnificent then but over the past 4 years she has travelled throughout the country and abroad at her own expense giving her support and help to those in need. She attends all of our gatherings and will of course be at Leicester.
We who know her have come to love her and if ever a lady deserves to have a very Happy Birthday it is OUR JANET
If tonight you are having a drink please raise your glass to a very special lady and wish her a Happy Birthday 🍸🎉
Life is for living
Barry (alias Barrington )

User

Posted 31 May 2014 at 16:06

Hi dad

Hope the pain relief cuts in soon, the cricket probably isn't helping either.

Of to wembley now to see the boxing. Hope Froch gets walloped tonight 👊👊

Take care

No 1 son. James.

See you soon.

User

Posted 31 May 2014 at 17:28

Originally Posted by: Online Community Member

Thanks for the heads up Barry.

Being new here I do not know Janet but if you are viewing this Janet VERY HAPPY BIRTHDAY to you. You are obviously held in great affection by the members.

Have just poured out a glass of home-made Orange and grape wine so here's to a Happy Birthday to Janet and anyone else who's a year older now or soon. Best Wishes all.

We can't control the winds - but we can adjust our sails

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