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Simon Story Chapter 2

User
Posted 28 Oct 2015 at 21:08

Excellent results...keep on showing them Si. I think this calls for a celebratory drink or three in a few weeks ;-)

Bri

User
Posted 28 Oct 2015 at 22:07
Si

Great news,long may it continue.

Thanks Chris

User
Posted 28 Oct 2015 at 23:55

Keep it going. Excellent!

Stay Calm And Carry On.
User
Posted 29 Oct 2015 at 01:29

I was just thinking the other day that you had been very quiet - very, very happy to see your update tonight xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 29 Oct 2015 at 07:21

Good news for you all Simon,

Long may it continue.

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 29 Oct 2015 at 07:48
Great to see your continued results Si. You give us all great hope, looking forward to seeing you in London .

Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 29 Oct 2015 at 08:54

Great news Si !

Fiona. x

User
Posted 29 Oct 2015 at 10:10
Brilliant news Si keep it up.

Roy

User
Posted 29 Oct 2015 at 11:57

Excellent news Si, you give us all hope.

Paul

User
Posted 29 Oct 2015 at 12:25

Si,

 

Those results are OUTSTANDING!http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

Your partnership with Onco Jamie is a real winning combination.

Just have to tell you that Lynn and I are delighted to see these incredible figures.

 

As someone said, you give hope to everybody.

Looking forward to seeing you, Bri and Kev at The Flyer soon.

And in 2016. 2017 and on and on!

 

All the very best,

 

 

George

User
Posted 29 Oct 2015 at 21:07

BLOODY FANTASTIC I haven't looked in for a while and as soon as I did I saw your update. WAY TO GO SI SUPERMAN what can I say except BOOM FOR BONFIRE NIGHT when you next visit Jamie give it with both barrels.

I suppose the stats are

FOSTERS 1

TURMERIC 0

This has made my day.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 30 Oct 2015 at 02:38

Just picked this up in Hong Kong and Another good day for you. These results are amazing considering your history. Long may it continue, maybe I'll follow the fosters diet too makes more sense than the Plant.

User
Posted 30 Oct 2015 at 09:16

Many thanks for your reply's i really appreciate them.

Paul & Julie, yes the fosters diet is going well http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif Jamie said he had had two patients with similar stats to me and with both of them it spread to the liver so i thought make the liver not very appealing hence the fosters.

Mo you know me to well, but Jamie bringing my appointment forward two weeks has made me rush a bit. The plan back in July was due to the Girls going up to secondary school and school holidays being the time we make memories what ever happens with  the cancer i would not do any hardcore treatment, touch wood nothing happened.

But i am a great believer in playing around with treatments and not letting the cancer get to familiar with them. After looking around the internet for studies on my sort of cancer a friend found one and it made interesting reading.

Records of 3800 men was checked to find men diagnosed with PSA <10 and more than 5 areas of spread, 44 was found, the average response to HT was 7 months, 5 had early chemo 3 responded well but two weeks after finishing the cancer progressed. 30% went to soft tissue and they all died within two years.

So i know Jamie's choice is go back on Abbi, mine is stop HT for six months, my PSA has been undetectable for over two years and i fancy a break and i would like to see what happens.

Another one of Jamie's is 6 cycles of chemo, big No from me i would only do chemo again if my cancer was wide awake and bright eyed and bushy tailed, so that would mean no HT and testosterone patches prior to starting, big big NO from Jamie.

So lets see what happens on Thursday, i am sure we will agree on something http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

Si xx       

Don't deny the diagnosis; try to defy the verdict
User
Posted 30 Oct 2015 at 23:11

Keep it up Simon, yes, Jamie knows best but it is your body so it is up to you to make whatever decision you think.

Chris.

User
Posted 31 Oct 2015 at 00:01

I think the only agreement will be that it's Thursday ;-)

Whatever decisions are made about yiur treatment on Thursday I've decided that I'm going to make sure we have plenty of your medicine in London

Keep at em Si...you keep proving them wrong

Bri

User
Posted 31 Oct 2015 at 22:24

Way back in the early days when you and T were first diagnosed would any of us have given a £50 bet that you would both be here 2 plus years on still standing still enjoying life and giving it ROCK ON TOMMY. None of us will ever know the answers to why or how some men continue to defy the odds. All I can say is whatever you 2 are doing long may it continue. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

Loads of love .

BFN

Julie

 

NEVER LAUGH AT A LIVE DRAGON
User
Posted 07 Nov 2015 at 15:08

Met Jamie thursday

Bone scan no progression

PET/CT no lymph or soft tissue, stable disease.

SPECT small activity in the pelvis area http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

So the plan for after Christmas is,........... not mine http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif the only benefit to stopping treatment and watching my PSA is that i would die a lot quicker but probably a lot happier http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

So January the 7th i start Enzalutamide for about 4 months then stopping for a couple of months then back on Abbi, the thought is to keep chopping and changing and confuse the cancer or was that me http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

It was a really good meeting, i got nothing i wanted and he got everything .......................again http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

Si

Don't deny the diagnosis; try to defy the verdict
User
Posted 07 Nov 2015 at 15:24
Si

Ha ha revenge of the cutest, fittest onco I have ever met!

All sounds like a very good plan he clearly wants to keep you with us a lot longer. Phew!!

I bet you had a few extra Fosters just because you could.

Back in UK late yesterday and travelling back via Elsie 's on Tuesday. Will you be in for a cuppa about 12 or so?

Xxx

Mo

User
Posted 07 Nov 2015 at 15:30

Great approach, great you can access both drugs. Hope the enzo causes you no unwanted side effects. Seems a good review to me!

User
Posted 07 Nov 2015 at 17:05

Si, I don't think it matters who wins the little battles at each of your appointments - there is a bigger war going on which you are nailing together - I can't think of a better build up to Christmas x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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