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Simon Story Chapter 2

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User
Posted 10 Jul 2015 at 10:12

May the sun shine on you all day as you enjoy another birthday! Well done Si.

User
Posted 10 Jul 2015 at 10:16

Many happy returns of the day Mr Si.

Hope it's a very enjoyable day.

Best Wishes

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 10 Jul 2015 at 10:51
Happy birthday mate, hope you have a great day.

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 10 Jul 2015 at 11:13

HAPPY BIRTHDAY

nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 10 Jul 2015 at 11:30

Si,

Have a very Happy Birthday!

Steve

User
Posted 10 Jul 2015 at 11:46

Happy Birthday Si have a great day. X

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 10 Jul 2015 at 12:28

Thank you so much for all your birthday wishes.

Met with Jamie last night, all good news http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif PSA <0.01 (that's two years now) ALP 38 Bone scan, no progression, CT scan, no soft tissue involvement.

For those that went to MOS, the question about why he put me on early chemo, that he couldn't answer because of patient confidentiality.

He has had only a couple of patients with very low secreting PSA and with extensive mets, both of them was hormone resistant from the start and both went to soft tissue, he also found similar patterns with other patients be treated by other doctors with similar diagnosis. 

So rather than start me on HT and wait to see if i was resistant he chose to go straight to Chemo especially as i had mets at the base of my skull.

As this was two and a half years ago before any trial data was available,he still rates it as one of the best decisions he has made. and me too http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

Best wishes to all

Si x

   

Don't deny the diagnosis; try to defy the verdict
User
Posted 10 Jul 2015 at 12:50

Originally Posted by: Online Community Member

Thank you so much for all your birthday wishes.

As this was two and a half years ago before any trial data was available,he still rates it as one of the best decisions he has made. and me too http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

Best wishes to all

Si x

 

Excellent news for you both.  What a cracking result.

And a happy birthday to you old chap!

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 10 Jul 2015 at 15:20

Brilliant news Si just what I wanted to hear. I have got a good feeling that the next 2 and half years will be just as good. Keep drinking that Lager that's what I say.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

BFN

Julie X

 

NEVER LAUGH AT A LIVE DRAGON
User
Posted 10 Jul 2015 at 17:37
Hi Si,

Brilliant news. A great birthday present.

Enjoy.

Steve

User
Posted 10 Jul 2015 at 17:56
Si

it has been a great birthday for good news in your household.

I am so happy for you and all the family, Karen will be well chuffed when she gets here and I tell her all your news.

big hugs

xx

Mo

User
Posted 10 Jul 2015 at 19:27

Quote "All your news"?

Is there something we are not aware of Simon?

;-)

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 27 Jul 2015 at 12:22

Hi Si, I haven't logged in for a while and don't get updates any more for some reason (even though I have the 'follow this conversation and get email notifications' box ticked) but just wanted to say hi and that I'm so happy to read the latest news. Just brilliant. Belated happy birthday too! x

User
Posted 28 Oct 2015 at 18:15

A long overdue update, firstly my bloods
August PSA <0.01 ALP 40 Testosterone 0.04
September PSA<0.01 ALP 39 Testosterone 0.04
October PSA< 0.01 ALP 40 Testosterone 0.04,
Bone scan today and no progression http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif, SPECT scan today no result yet and CT PET scan Monday then on the 5th of November I see Jamie. (bonfire night )

So happy boy tonight

Si

Don't deny the diagnosis; try to defy the verdict
User
Posted 28 Oct 2015 at 18:22

Well Done, Si,

Great News for you all.

Steve

Edited by member 28 Oct 2015 at 18:23  | Reason: Not specified

User
Posted 28 Oct 2015 at 18:46

Good news Si.

Well done and long may it continue

We can't control the winds - but we can adjust our sails
User
Posted 28 Oct 2015 at 19:26
Si

it such a fantastic pleasure being mates with Superman ...Ness and the girls plus the outlaws must all be really over the moon too.

Would I ever love to be a fly on the wall in Jamie's office next week, I can half predict what the conversation will go like.

Seriously though you continue to amaze me, I would love to hear Jamies thoughts and theories on why your cancer is acting the way it is. You are such a rarity but thank goodness you are.

Very much looking forward to seeing you all when I get back to UK

Love you all loads

xxx

Mo

User
Posted 28 Oct 2015 at 19:30

Excellent result!  Good on yeh!

User
Posted 28 Oct 2015 at 20:30
How wonderful, this is the best news ever.
User
Posted 28 Oct 2015 at 20:46
Great to hear such encouraging results for you

Arthur

 
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