I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error


Break from enzalutamide?

User
Posted 10 Feb 2021 at 13:53

My partner has been on enzalutamide for about 8 months. He had a spinal cord compression in October 2020 and has been unable to walk since - he was progressing in hospital, can move his legs but has little muscle strength. They discharged him in November because of a covid outbreak, since when his physiotherapy has gone from daily to once a week (if he's lucky). |He has some exercises to do, and is recommended to at least stand every day with the transfer aid, but a lot of the time he is too tired to even attempt it. His calcium has been reduced to a normal level after treatment. The oncology registrar today suggested they may recommend a break from (or dose reduction of) the enzalutamide, on the grounds of improving his QOL, that chemo would be an option if he were stronger. Does anyone have any experience of taking breaks from enzalutamide? We don't know if his inability to increase his mobility relates to the spinal cord damage itself, or the lack of physiotherapy, or the fatigue from the enzalutamide.

User
Posted 10 Feb 2021 at 15:45

His PSA has risen from 8 to 25 since November; does this indicate the enzalutamide is no longer working anyway?

User
Posted 11 Feb 2021 at 08:24
I think the rise means it's no longer working. I would ask these questions of the oncologist. You also need to make sure you are in touch with the palliative care team.

User
Posted 11 Feb 2021 at 08:52

Hi artyfriend 

Enzaltumide only lasted approx 8 months for me too.

Due to psa rising I was taken off it and given a choice of chemo or Radium223. Presently undergoing R223.

So yes unfortunately it looks like Enzaltumide has started to fail.

Best wishes.

Sandy.

 
Forum Jump  
©2025 Prostate Cancer UK