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Can't understand why anyone would choose surgery over Brachytherapy? I must be missing something?

User
Posted 13 Jan 2021 at 20:25

diagnosed last week ! 

Anterior abnormal area, 10 out of 13 cores Gleason 3+4=7 (10% pattern 4).      

Perineural invasion present, maximum cancer length 13mms, maximum percentage core involvement 80%.

MR scan show possibility of T3a N0M0.

Benign feeling prostate.

PSA 8.

(Above cut and pasted directly from biopsy constants letter)

I’m 51 generally fit and healthy with absolutely no symptoms at all, and never had any problems with my water works or ED. 

Would still be none the wiser had it not been for a very efficient GP calling for a check up scan following a bad bout of prostatitis (told it’s not linked at all) 

Biopsy consultant has told me active surveillance isn’t an option and like many on here I now have the difficult decision surgery or brachytherapy - no mention of any HT

My initial thoughts with no “official “ information to hand other than from here and google was surgery, being an engineer my thoughts where why waste time treating it with a radioactive seed😳 when you can just cut it out and be done with it. 

 

Having now had consultations with the surgeon and oncologist I am now more confused than ever

 

If what the oncologist says and the info in the Brachytherapy booklet he gave me is all fact? 

Why on earth would anyone put themselves through the surgery???? Apart from the very obvious reason “it’s cancer😳 just cut it out and get rid of it in one go” I’m struggling to find another reason why people would choose surgery. Plus there seems to be quite alot of people on here that have had surgery then have needed to have RT and HT anyway as it wasn’t all removed first time round.

Or am I missing something vital? 

Success rates appear to be similar for both. 

Days off work and recovery appears much shorter with Brachytherapy - 2 separate days in hospital with a few days feeling rubbish and back to work the week after, with the surgery it’s a major operation(with its associated risks) much longer in hospital, catheter in for 10 days + and weeks of work. 

Both appear to have similar risk of ED and long term water works problems.

And going down one route seems to preclude the use of the other if it isn’t 100% successful with both ending up needing hormone or external radiotherapy. 

Surgery seems really popular for men in their 40’s and 50’s and less so above 70 

The above 70 bit I totally get (recovery) but can’t understand why it is so popular for the younger chaps , please help as I must be missing something 

Thankfully I’m covered by my wife’s work health insurance so either treatment hopefully shouldn’t  be affected by COVID.

 

Thanks

x

Edited by member 13 Jan 2021 at 23:05  | Reason: Spelling

User
Posted 24 Jan 2021 at 14:27

Hi all, we seem to be getting off topic can we keep phil's thread to comparing surgery to brachy. Rikki's comments about side effects of surgery are very relevant to this, but issues about consent probably belong on another thread. 

Dave

User
Posted 13 Jan 2021 at 20:25

diagnosed last week ! 

Anterior abnormal area, 10 out of 13 cores Gleason 3+4=7 (10% pattern 4).      

Perineural invasion present, maximum cancer length 13mms, maximum percentage core involvement 80%.

MR scan show possibility of T3a N0M0.

Benign feeling prostate.

PSA 8.

(Above cut and pasted directly from biopsy constants letter)

I’m 51 generally fit and healthy with absolutely no symptoms at all, and never had any problems with my water works or ED. 

Would still be none the wiser had it not been for a very efficient GP calling for a check up scan following a bad bout of prostatitis (told it’s not linked at all) 

Biopsy consultant has told me active surveillance isn’t an option and like many on here I now have the difficult decision surgery or brachytherapy - no mention of any HT

My initial thoughts with no “official “ information to hand other than from here and google was surgery, being an engineer my thoughts where why waste time treating it with a radioactive seed😳 when you can just cut it out and be done with it. 

 

Having now had consultations with the surgeon and oncologist I am now more confused than ever

 

If what the oncologist says and the info in the Brachytherapy booklet he gave me is all fact? 

Why on earth would anyone put themselves through the surgery???? Apart from the very obvious reason “it’s cancer😳 just cut it out and get rid of it in one go” I’m struggling to find another reason why people would choose surgery. Plus there seems to be quite alot of people on here that have had surgery then have needed to have RT and HT anyway as it wasn’t all removed first time round.

Or am I missing something vital? 

Success rates appear to be similar for both. 

Days off work and recovery appears much shorter with Brachytherapy - 2 separate days in hospital with a few days feeling rubbish and back to work the week after, with the surgery it’s a major operation(with its associated risks) much longer in hospital, catheter in for 10 days + and weeks of work. 

Both appear to have similar risk of ED and long term water works problems.

And going down one route seems to preclude the use of the other if it isn’t 100% successful with both ending up needing hormone or external radiotherapy. 

Surgery seems really popular for men in their 40’s and 50’s and less so above 70 

The above 70 bit I totally get (recovery) but can’t understand why it is so popular for the younger chaps , please help as I must be missing something 

Thankfully I’m covered by my wife’s work health insurance so either treatment hopefully shouldn’t  be affected by COVID.

 

Thanks

x

Edited by member 13 Jan 2021 at 23:05  | Reason: Spelling

User
Posted 16 Jan 2021 at 20:54

"that increased risk of worse side effects meant that they wouldn’t do a prostatectomy as salvaging treatment if radiotherapy / brachy didn’t succeed. Is that right? No idea where I read that - is that ever true in the UK?"

It is true - an irradiated prostate becomes gloopy or sticky so it is more difficult to remove cleanly - and nerve sparing is not possible so ED is more or less guaranteed and incontinence is more likely. There are just a few urologists that will attempt the op in the right cases and we have a couple of members who have gone down this route.

However, there is a whole myth that has been built around the idea that 'at least you can have RT after surgery but not surgery after RT'. In fact, if the first treatment fails, the statistical likelihood of salvage treatment being successful is quite low, whichever order you do them. It makes sense to choose the treatment that is most likely to be successful rather than the one that can be followed up if it fails.

Edited by member 16 Jan 2021 at 20:56  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Jan 2021 at 15:20

Hi Phillip,

It's a difficult choice, but if you have been given options that's good some men don't have the diagnosis to choose.

There are no easy options which one you choose, there are no right or wrong decisions, the decision you make is right for you only time will tell.

I was on Active surveillance for 3years but in November 2020 I had a prostatectomy during the course of my active surveillance I studied all the different treatments in great depth and sought advice from others, my surgery went fantastic a full nerve sparing was possible, I am now fully continent had very little problems after catheter removal, ED will take a little longer spoke with my surgeon this morning and he has referred me to a ED Clinc even though I'm not that far off.

I had no problem with recovery I'm retired but after 2 weeks I could easily have returned to work I could drive no problem everything now healed.

I have no regrets whatsoever and I know if further treatment was ever required then I could have radiotherapy, but if that is the first choice then surgery becomes less of an option due to the changes after radiotherapy alters the tissues.

Good luck it's a personal choice go with what you think is best for you don't rush it.

User
Posted 25 Jan 2021 at 00:37

Study results for treatment can be represented in the form of an elipse, shown here fot Low, Intermediate and High risk so a generalization can be made that the results are better or worse than others for a particular treatment. However, these treatment results tend to overlap in part, so an individual may benefit more by having a treatment that is generally less successful. Also, side effects don't seem to have been taken into account and these could be a very important aspect for some men when decision making. https://prostatecancerfree.org/compare-prostate-cancer-treatments/

 

Edited by member 25 Jan 2021 at 00:38  | Reason: to highlight link

Barry
User
Posted 14 Jan 2021 at 01:38

You can make a case for or against any form of treatment. There are many factors that should be taken into account when deciding which of the treatment options a man is offered to plump for. In some cases the situation is make easier when you are told your individual situation means you are more suited to one form of treatment over another but this is not always the case. Sometimes both your urologist and oncologist (who tend to favour their own area of expertise) will say surgery or radiation would be suitable. You need to fully understand what is involved both in the treatment and potential side effects both short and long term although these can vary.

I suggest you download or obtain a copy of the 'Tool Kit' which is informative and gives an impartial view on Prostate Cancer (PCa) and effects of treatments. Consider this and then make your choice. https://prostatecanceruk.org/prostate-information/our-publications/publications/tool-kit?_ga=2.206109653.795867346.1564408880-1013787081.1564408880

 

Barry
User
Posted 19 Jan 2021 at 03:37

Rikki,

                                                                                                                                                                                       "So if it was going to be like this than why did they force me to have a surgery".

I am very sorry surgery has not worked better for you and has brought about other unwanted situations.  You are bound to wonder whether you followed the best course.  

The potential downsides should have been explained to you or you should have been given a leaflet explaining these prior to the operation and you should have signed a consent form also.  I am sure you were not 'forced' to have surgery for PCa but freely decided to do so.

Barry
User
Posted 23 Jan 2021 at 13:45

Hi Philip. I can't advice you about your choice of treatment but I can say I've spent to good part of a year making my decision. You can see from my profile that I have a similar set of diagnostics as you and I waited for 15 months on active surveillance before biting the bullet. I'm 100% pleased I opted for Brachytherapy. It's only been just over a week since my op but I've had no side effects nor pain (a little burning when peeing for a couple of days). I'm 69 and my take is that even if I get 5 years PC free, hopefully by that time there will be many more salvage treatment choices available. But at the moment I'm holding on to the data which argues convincingly that long term success of BT is slightly better that RT.

User
Posted 24 Jan 2021 at 11:53
Wow. Rikki! There are so many things you didn't know. Why didn't you do tons of research beforehand, which would have created a lot of questions for you to ask, including the above, and get answers? There is a wealth of information out there, including useful sites like this one.

I can't imagine why anybody would want to "frame you up". And did somebody really "force you" to have surgery? Did they frogmarch you? (:

Your post suggests a lot of anger which may have been spared if you had done your homework before being "forced". However, I sincerely hope you are coming to terms with your situation and seeking counselling if you are suffering anger symptoms.

User
Posted 24 Jan 2021 at 20:34

When I was first diagnosed Jan 2018 (age 62) it was with a "low risk" Gleason 6, and I was put on AS.  When they found a new "high risk" Gleason 8 tumour in Oct 2019 (age 64) and clinical intervention became necessary my first thought was go for surgery.  I think it's a pretty classic response, get rid of prostate get rid of PCa!  Then the MDT advised me against it.  They wanted to remove lymph nodes too and they thought, given my physical state and lifestyle, that the potentially five hour op under GA would carry too high a morbidity risk.

So I settled for EBRT, which finished last August.  Had some pretty unpleasant side effects since, some of which have cleared up now but some such as,nocturia (average four times a night which leaves me wasted the next day), radiation cystitis and piles, are still giving me a lot of pain and grief.

Part of me still wishes I'd had the thing whipped out, especially as I have a non-secreting tumour so the regular follow up PSA tests are not a reliable indicator as to whether the cancer is still there and growing.  That said, I met a guy in the waiting room while having my EBRT.  He'd had his prostate surgically removed four years previous.  Told me he thought he was "cured".  Then four years on a routine blood test showed his PSA had rocketed.  So he was back in for EBRT.

Not sure what point I'm making here to be honest, other than no option offers a 100% certain outcome, and all options can and will have a knock-on effect on your life.

Edited by member 24 Jan 2021 at 20:38  | Reason: Not specified

User
Posted 30 Jan 2021 at 16:48
Really glad you're settled on your way forward Philip. Hope it goes perfectly.
User
Posted 30 Jan 2021 at 17:04

Hi Philip,

Sending best wishes for your upcoming surgery, I mentioned in an early post that I had surgery on the 25th November 2020.

I have made great progress no problems with the continence, but still do the kegel exercises which I started as soon has I made the decision to have surgery and like you had no problems prior but realised you need to strengthen the muscles there pre and post op for life.

I can honestly say it was not a bigger deal as I thought it would be, a bit of advice stop the pain medication ASAP it causes constipation along with the anathesectic, the only discomfort I had and I stopped them after 2 days paracetamol are fine, take the laxatives they prescribe whatever you do. 

The only other bugbear is the Foley catheter, but it is a necessary nuisance, just keep everything clean sleeping is awkward but you get use to it, change to a night bag surprising how much you pass.

Regards

Daily

User
Posted 30 Jan 2021 at 18:54

Hi Philip, 

Glad you have made a choice. You started a really good thread with that question and we got some well balanced arguments.

Dave

User
Posted 08 Feb 2021 at 00:28

T2c is sometimes on the intermediate risk side, and sometimes on the high risk side, depending which paper you read. The "risk" is that of there being micromets outside the prostate which don't show up on a scan, and later cause recurrence.

I might guess that if you've had it long enough to be on both sides, it's also more likely to be outside. However, prostate cancer is often multi-focal (starting in several places separately), so this may not always be the reason it's on both sides.

User
Posted 08 Feb 2021 at 12:19

Was his upgraded as a result of a scan?

Good luck with the op!

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User
Posted 13 Jan 2021 at 23:18

Hi Philip,

The main reason why people of your age might not consider radiotherapy if there's another option is the risk of it causing another cancer in later life. For someone in their 60's or 70's, they probably won't live long enough for that to be an issue, but someone in their early 50's might. I don't know the risk off-hand, but that's something you might want to look at (I think it's quite low).

Having said that, I did have HDR brachytherapy and external beam radiotherapy (called HDR Boost) at age 57, but in my case, prostatectomy stood a good chance of failing, and would not have been nerve sparing, whereas so far the HDR Boost hasn't impacted erectile function (it still could, as a late onset side effect).

User
Posted 14 Jan 2021 at 00:19
I was told that any form of radiotherapy was risky for me because I have (albeit mild) colitis. Given that side effects tend to hit the bowel region, I was told there was a considerable risk of life changing side effects. So there's a good reason for surgery.

TBH I would probably have chosen surgery anyway - I am more of a let's just get rid of it person and I already had surgery for a melanoma including lymph node removal 2 years before; I knew I recovered well.

Surgery was last March when I was 68. 1 day in hospital. Catheter in for 10 days. Started doing some work as soon as the catheter was out, but I can work from home, so possibly not typical. Was working full time by 4 weeks, possibly overdid it a bit. Physical recovery not a problem, but I could only have nerve-sparing one side and still have ED.

I'm not sure that those on here are typical of post-surgery chances; those with longer journeys probably stick around longer in general.

User
Posted 14 Jan 2021 at 00:30

Hi Phillip,

A very well thought out and reasoned post. Choice of treatment can be difficult. I was lucky in that the MDT gave me no choice; my cancer was T3, surgery would probably not have got all of it so I had the same treatment as ANDY62. At my hospital they didn't give it the fancy name "HDR boost", they just called it HDR Brachy followed by ebrt, plus HT. I was 53 at diagnosis so like you relatively young.

I don't know if you are aware that brachy comes in two varieties HDR and LDR, if not then a little research on the Web will show you the differences.

Like you and most people my first inclination was surgery, but I do think this is usually an irrational, emotional first reaction. If you take a step back and look at all the options in a rational way then it may be that surgery is the best option but it may be that another treatment is better. Personally I think cutting people open with a knife and expecting to do much good is a long shot. Having said that if the cancer is T2 then surgery will probably remove all of it and you will be cured, but once you are talking T3 you need to be trying to get those cancer cells which may be just beyond the prostate.

I know HT has not been mentioned to you yet, but I suspect if you start talking with the medics about the brachy options then HT and EBRT will get mentioned as combining all these together seems to have the best chance of success. 

Surgery will take a while to recover from, but HDR boost, will involve about four weeks of going to the hospital for EBRT, and may involve two years of HT which is not dreadful, but isn't great. So the surgery begins to sound like the quicker option.

There is the risk of the radiation causing cancer years down the line and if your in your 50s you have more years ahead of you than if you're in your 60s. 

My life expectancy before I was diagnosed with PC was 85, now if you put my details in to nomogram, even though I think my treatment is successful my life expectancy is 70. I'm hoping to beat that, but I do know I will die one day. So I now live a more hedonistic and adventurous life to try and increase my chances of not dying from cancer. 

As far as treatment is concerned I like to think that I would have made the rational choice rather than the emotional choice, but I don't know whether I would have, fortunately the medics made the decision for me. 

 

Edited by moderator 18 Jan 2021 at 11:46  | Reason: Not specified

Dave

User
Posted 14 Jan 2021 at 01:38

You can make a case for or against any form of treatment. There are many factors that should be taken into account when deciding which of the treatment options a man is offered to plump for. In some cases the situation is make easier when you are told your individual situation means you are more suited to one form of treatment over another but this is not always the case. Sometimes both your urologist and oncologist (who tend to favour their own area of expertise) will say surgery or radiation would be suitable. You need to fully understand what is involved both in the treatment and potential side effects both short and long term although these can vary.

I suggest you download or obtain a copy of the 'Tool Kit' which is informative and gives an impartial view on Prostate Cancer (PCa) and effects of treatments. Consider this and then make your choice. https://prostatecanceruk.org/prostate-information/our-publications/publications/tool-kit?_ga=2.206109653.795867346.1564408880-1013787081.1564408880

 

Barry
User
Posted 14 Jan 2021 at 01:38
Good sensible answers above. In our case, brachy was first choice but at that time, in our area, brachy wasn't available to young men (John was 50 at diagnosis) so he had surgery instead. And yes, it failed so he ended up with salvage RT / HT a couple of years later. Now I understand that our NHS Trust does offer brachy to young men.

The increased risk of bowel cancer is quite small - something like 8% rather than the 6% risk to the general male population. I believe that when J was diagnosed, they thought the bowel cancer risk was a lot higher.

Why do some men go for surgery rather than brachy ... well as stated above, most men are recommended to have hormone treatment with the brachy. You might be right that you are being offered brachy as a mono-therapy but with a T3 I would check that as the research suggests it is less likely to be successful. HT is not to be embarked upon lightly - but then nor are any of the other treatments. Some men can't have brachy because they already have urinary flow issues - or they have to have a small op to resolve that before they start.

Just a word of warning about the private health route - clarify first what support you will and won't have access to afterwards. We self-financed private care so that John could have the surgeon who was already caring for my dad, father-in-law and mother-in-law - what we didn't realise was that this meant we had no access to the specialist urology nurse, no support from district nursing team, we had to fight for a referral to the NHS ED clinic and also for ED treatment on the NHS. We also had to pay for every follow up PSA test for a few years until the GP could be persuaded to take over responsibility.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 Jan 2021 at 10:53

Hi Philip,

Good to see your post and it reminded me of the confusion I went through about a year deciding which route to take. You've come to the right place as there's some very helpful people here. I've just posted a 6 week update on my EBRT/LDR experiences. 

One research item helped me a lot was the following link for a study which compared life expectancy outcomes of 12 types of treatment for Low, Intermediate and High risk patients. It seemed to be pretty thorough and mirrored another study that I paid for. EBRT/Seeds seemed to have the edge over surgery. Of course there's also the Quality of Life issues to consider which give another dimension to the data.

https://www.prostatebrachytherapy.org.uk/2016-presentations/A-Law-170516.pdf

After reviewing this document I then asked the exact question that you posted. 

Hope that helps...

Vince

 

User
Posted 14 Jan 2021 at 18:53

Cynical answer: suspected prostate cancer is usually referred to urology departments to assess and arrange diagnostic tests. Urologists are the surgeons, so at the point of deciding treatment their approach gets top billing.

(I hope they aren't necessarily psychopaths as suggested above though!)

But other issues might rule out brachytherapy. I thought it looked an attractive way forward, but was deterred because I would have to travel 40 miles to the nearest centre offering it, and there was a high chance I would be found unsuitable because of the size my prostate had reached.

User
Posted 14 Jan 2021 at 19:12

In some cases , surgery is the only option, I was offered either surgery or RT, I chose surgery, on the understanding that after RT surgery was a bit more of an issue, turns out that my final results were it was my only option, had I not had surgery I would probably not make old age, which I would quite like to (other health issues excepted). But I do appreciate it' snot for everyone!

User
Posted 15 Jan 2021 at 00:55

Bill, I'm curious what cases you're thinking of where surgery is the only option?

The only one I can think of is when you've already had pelvic radiotherapy for another cancer. Even then,  brachytherapy might be usable in some cases.

User
Posted 16 Jan 2021 at 00:12

Very smart Post!

Since I had a RP surgery operation I asked my self why did I have to go ahead with surgery options?

 

I was perfectly fine with toilet visits sometimes day time I was ok not to visit toilets 4-5 hours.

Relationship were great in that department. 

No pains.

Nothing all I said to my GP was sometimes when i go to bathroom i feel i dont fully empty my bladder...yes i had the operation over a year ago and still i get same feelings for not to empty bladder. 

 

So if it was going to be like this than why did they force me to have a surgery?

After all those times I can't even lift up for 4 -5minutes  a little child.

Bedroom life is over 

Pains all over my tummy, abdominal area

Kidney

Liver 

Gallstones 

Left testicle pains always there 

Partner left ,became unemployed 

My life has changed because of the surgery operation but if I did not go ahead with it than life would have been great.

 

User
Posted 16 Jan 2021 at 11:44

Because it's 'horses for courses'. All treatments have their pros and cons - there is no magic bullet. To me, it's about selecting the lesser of a number of evils in relation one's own particular circumstances. This can be affected by various factors such as attitude to incontinence, ED, one's age, lifestyle, marriage status, logistical issues etc etc.

You have to understand that if you are happy with the choice after researching the options thoroughly, then that's all that matters - for you (although I am dubious that you have made your decision after such a short time - it took me three weeks!). And even when you have decided on a particular course of treatment, you don't have a crystal ball, do you?, as to how things will go for you. There are good stories and bad stories for all treatments.

Everybody's different, thank God!

Edited by member 16 Jan 2021 at 16:45  | Reason: Not specified

User
Posted 16 Jan 2021 at 20:04
It took me 20 seconds, but then I'd researched a lot beforehand and the choice was fairly stark.

I think how long it takes is as variable as everything else; some of us have little choice.

User
Posted 16 Jan 2021 at 20:16
I took the prostatectomy option myself after being told that it gave the best chance to knock localised cancer caught early on the head, and be done with it. If the cancer's just at the point of breaking out of the prostate it must seem like a bit of a coin toss to a lot of people.

As my mother had bladder cancer around my age now (54) I was keen to avoid anything involving radioactivity, and trusted the RP side effects would be fine for me. It’s all a question of tiny, unknowable probabilities though...

My wife's a bigger worrier even than me, so we thought the PSA tests would be less stressful for us if my risk of recurrence is decreasing a little year by year, rather than possibly rising (howsoever slightly) when I'm 70 +

Partly it's a personality thing, I guess, all things being equal. Reducing our reasoning to complete generalisations:-

> Prostatectomy - suffer a bit more now maybe, feel pretty confident that you're in the clear if you make it to 5 and 10 years of clear PSA tests

> Brachy - suffer less now maybe, have a bit more of a risk of secondary cancers many years later perhaps

Btw I had the impression that I would be burning my bridges if I went for brachytherapy (as you somewhat suggest, and vice versa) - that increased risk of worse side effects meant that they wouldn’t do a prostatectomy as salvaging treatment if radiotherapy / brachy didn’t succeed. Is that right? No idea where I read that - is that ever true in the UK?

It's a big choice, isn't it? All you can do is learn as much as you can about your options, discuss the pros and cons with your family and never regret your decision. I doubt you're missing any obvious points! Good luck

RP 07.03.20, PSA 4.1, Gleason 3+4=7 

User
Posted 16 Jan 2021 at 20:40

"> Prostatectomy - suffer a bit more now maybe, feel pretty confident that you're in the clear if you make it to 5 and 10 years of clear PSA tests

> Brachy - suffer less now maybe, have a bit more of a risk of secondary cancers many years later perhaps"

Just to give that some balance, my dad had undetectable PSA for 13 years - he even got a letter from the NHS at the 10 year mark telling him that he was in full remission - but it still came back.

The risk of RT or brachy causing a new cancer further down the line is tiny

Edited by member 16 Jan 2021 at 20:57  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Jan 2021 at 20:54

"that increased risk of worse side effects meant that they wouldn’t do a prostatectomy as salvaging treatment if radiotherapy / brachy didn’t succeed. Is that right? No idea where I read that - is that ever true in the UK?"

It is true - an irradiated prostate becomes gloopy or sticky so it is more difficult to remove cleanly - and nerve sparing is not possible so ED is more or less guaranteed and incontinence is more likely. There are just a few urologists that will attempt the op in the right cases and we have a couple of members who have gone down this route.

However, there is a whole myth that has been built around the idea that 'at least you can have RT after surgery but not surgery after RT'. In fact, if the first treatment fails, the statistical likelihood of salvage treatment being successful is quite low, whichever order you do them. It makes sense to choose the treatment that is most likely to be successful rather than the one that can be followed up if it fails.

Edited by member 16 Jan 2021 at 20:56  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 18 Jan 2021 at 14:33

Originally Posted by: Online Community Member
Why on earth would anyone put themselves through the surgery????

Hi,

That's a great challenging post that brought out a good response.  Most people just ask which is best.  The question you pose above is could be answered by saying:

With surgery you go to the hospital are put to sleep and wake up two hours later job done and in only 2 months you know if it's done the job.   Then you join those who hope their psa test comes in good every few months.  Whereas with RT of any kind you don't know for a year or more and have had months of hormones and with full RT 30 daily sessions at the hospital. 

Brachytherapy sounds the most attractive of the treatments if taken with minimal hormone treatment.  I might be wrong but it also seems the weakest and most likely to need further work unless chosen for the lowest risk cases.

I might also be wrong in saying that a T3 is taking a chance having Brachytherapy.  Full RT will cover a wide area beyond the prostate.

It's always a tough call and some reflect if it was the right one.   Although I never had any doubt about choosing surgery.

Hope all goes well, Peter

User
Posted 19 Jan 2021 at 03:37

Rikki,

                                                                                                                                                                                       "So if it was going to be like this than why did they force me to have a surgery".

I am very sorry surgery has not worked better for you and has brought about other unwanted situations.  You are bound to wonder whether you followed the best course.  

The potential downsides should have been explained to you or you should have been given a leaflet explaining these prior to the operation and you should have signed a consent form also.  I am sure you were not 'forced' to have surgery for PCa but freely decided to do so.

Barry
User
Posted 22 Jan 2021 at 15:20

Hi Phillip,

It's a difficult choice, but if you have been given options that's good some men don't have the diagnosis to choose.

There are no easy options which one you choose, there are no right or wrong decisions, the decision you make is right for you only time will tell.

I was on Active surveillance for 3years but in November 2020 I had a prostatectomy during the course of my active surveillance I studied all the different treatments in great depth and sought advice from others, my surgery went fantastic a full nerve sparing was possible, I am now fully continent had very little problems after catheter removal, ED will take a little longer spoke with my surgeon this morning and he has referred me to a ED Clinc even though I'm not that far off.

I had no problem with recovery I'm retired but after 2 weeks I could easily have returned to work I could drive no problem everything now healed.

I have no regrets whatsoever and I know if further treatment was ever required then I could have radiotherapy, but if that is the first choice then surgery becomes less of an option due to the changes after radiotherapy alters the tissues.

Good luck it's a personal choice go with what you think is best for you don't rush it.

User
Posted 23 Jan 2021 at 13:45

Hi Philip. I can't advice you about your choice of treatment but I can say I've spent to good part of a year making my decision. You can see from my profile that I have a similar set of diagnostics as you and I waited for 15 months on active surveillance before biting the bullet. I'm 100% pleased I opted for Brachytherapy. It's only been just over a week since my op but I've had no side effects nor pain (a little burning when peeing for a couple of days). I'm 69 and my take is that even if I get 5 years PC free, hopefully by that time there will be many more salvage treatment choices available. But at the moment I'm holding on to the data which argues convincingly that long term success of BT is slightly better that RT.

 
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