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Mile stone,

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User
Posted 05 Dec 2020 at 00:58

Just thought I’d bring you all up to date as I don’t post on here much nowadays, but it’s NOW 15 years since I was told I had PCa, 13.6 last year it shot up to 80.8 as Onco would not restart HT and allowed Mets to happen, now thanks to ongoing Zoladex every 12 weeks and daily Enzalutamide it’s stabilised at 0.56, next Bloods in two weeks, I’ve posted this in “end of life” as that’s how I feel ! Yes I know it could be years to go but I haven’t much energy for doing anything and this lockdown and Vulnerable status don’t help either.

Chris.

BUT I’m still ere!

User
Posted 05 Dec 2020 at 00:58

Just thought I’d bring you all up to date as I don’t post on here much nowadays, but it’s NOW 15 years since I was told I had PCa, 13.6 last year it shot up to 80.8 as Onco would not restart HT and allowed Mets to happen, now thanks to ongoing Zoladex every 12 weeks and daily Enzalutamide it’s stabilised at 0.56, next Bloods in two weeks, I’ve posted this in “end of life” as that’s how I feel ! Yes I know it could be years to go but I haven’t much energy for doing anything and this lockdown and Vulnerable status don’t help either.

Chris.

BUT I’m still ere!

User
Posted 18 Dec 2020 at 05:05
Latest Blood result, it’s gone up again, now 0.66 from 0.56 where it was for 16weeks.

New meds soon of Ibandronic Acid monthly tablet I think Onco said, waiting for letter to GP to prescribe.

Hope you all have as reasonable and Peaceful Christmas as you can, best wishes, thoughts and prayers to you all.

Chris.

User
Posted 29 Jan 2021 at 13:17
Chris, I'd say calendar month, as you say "same date each month".

Best wishes.

Roger
User
Posted 04 Feb 2021 at 16:19
Just had my bimonthly chat with Oncologist, he’s happy. Result of yesterday’s Blood Test stays the same at 0.66.but keep an eye on side effects of the Ibandronic acid.

Stay on the meds, Enzalutamide daily, Dexamethasone every other day, Ibandronic Acid Monthly, not 4 weeks, and Zoladex every 12 weeks.

So 15 years and counting, but it is a struggle, still I can start planning 2022 holidays now!

Chris.

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User
Posted 05 Dec 2020 at 10:15

Way to go Chris 👍👍

Edited by member 05 Dec 2020 at 10:16  | Reason: Not specified

Good luck to everyone coping with the insidious big C

User
Posted 05 Dec 2020 at 13:41

Glad to see PSA has stabilised and good luck for the future.

 

 

regards Barbara x

User
Posted 05 Dec 2020 at 14:19
That's a great response to the HT Exbus - loads of mileage still in the tank, I think.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 05 Dec 2020 at 16:51

Inspiring......keep doing what you’re doing. Best wishes.

User
Posted 05 Dec 2020 at 17:16
That's good news Chris. Your pre-select box is still far from worn out.
Roger
User
Posted 05 Dec 2020 at 18:30

Great response Exbus. 

Ido4

User
Posted 05 Dec 2020 at 22:35

Good to hear from you again and so glad that drugs are doing what they should. Long may that continue 

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 07 Dec 2020 at 02:41

Wishing you all the luck in the world, Chris.

I hope the Meds keep working for you. 

Steve 

User
Posted 07 Dec 2020 at 17:43

Live for today .
Good luck 
Barry

User
Posted 07 Dec 2020 at 20:29
Best wishes from me too Chris
Barry
User
Posted 18 Dec 2020 at 05:05
Latest Blood result, it’s gone up again, now 0.66 from 0.56 where it was for 16weeks.

New meds soon of Ibandronic Acid monthly tablet I think Onco said, waiting for letter to GP to prescribe.

Hope you all have as reasonable and Peaceful Christmas as you can, best wishes, thoughts and prayers to you all.

Chris.

User
Posted 29 Jan 2021 at 11:27
I have at long last got the letter about being Prescribed IBANDRONIC ACID Tablets, it says 1 a month.

So, friends, is that every 4 weeks, 28days, or the same date each month?

Chris.

User
Posted 29 Jan 2021 at 13:17
Chris, I'd say calendar month, as you say "same date each month".

Best wishes.

Roger
User
Posted 02 Feb 2021 at 08:52
Collected IBANDRONIC ACID PILL yesterday, Pharmacist said to Shirley next one in 28 days, then every 4 weeks!

Leaflet says in many places, Monthly!

So I’ve decided on the 1st Tuesday of every month. (Unless Onco says otherwise)

So I will ask Onco on Thursday when he next phones with Tomorrows Blood Test result.

User
Posted 02 Feb 2021 at 09:16
In medical terms , it means every 28 days.

Good luck

If life gives you lemons , then make lemonade

User
Posted 04 Feb 2021 at 16:19
Just had my bimonthly chat with Oncologist, he’s happy. Result of yesterday’s Blood Test stays the same at 0.66.but keep an eye on side effects of the Ibandronic acid.

Stay on the meds, Enzalutamide daily, Dexamethasone every other day, Ibandronic Acid Monthly, not 4 weeks, and Zoladex every 12 weeks.

So 15 years and counting, but it is a struggle, still I can start planning 2022 holidays now!

Chris.

User
Posted 04 Feb 2021 at 20:30

Good results Exbus. Sorry you’re struggling a bit, take care.

Ido4

User
Posted 05 Feb 2021 at 00:50
Planning next year's holidays is a great idea. My dad has just booked a cruise for this October!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 05 Feb 2021 at 06:25

Morning Chris 
Thats a lot of meds , I am on three monthly Prostap , bloods 00.4 for the last three years 
But I know that will change , so I must ask Onco about what will come next 
Good Luck , Holiday a good idea
Regards Barry

 
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