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Cryotherapy Treatment - UK

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User
Posted 24 Nov 2020 at 14:06

Hi All

Been diagnosed with PCa, joy of joys for us all on I here I guess!! Gleason 4+3, PSA 12.8, 2mm lesion anterior right hand side. I’ve researched to the Nth degree and have decided to go for cryotherapy - paying for it myself unfortunately - and was wondering if anyone else here in the UK has gone down that route and willing to to have a chat about it please before I press the ‘Go’ button?!! Thanks in advance.

User
Posted 24 Nov 2020 at 15:43

Hi

I seem to remember Andyprostate had cryo a few years back. Might be worth pinging him a message.

simon

User
Posted 06 Dec 2020 at 08:42
I had cryotherapy in May this year (gleason 3+4), PSA 5.1. Had few effects from the procedure other than having a catheter for a week. After 3 months my PSA remained unchanged but at 6 months has dropped to 1.9. Would recommend
User
Posted 06 Dec 2020 at 08:44
Thanks Rog, good to hear!! I’m in for it at 10.15 tomorrow morning!!
User
Posted 06 Dec 2020 at 08:56
Good Luck Dexy, let us know how you get on, presumably you'll be home tomorrow too, takes a couple of hours for the procedure then a further couple hours recovery was sufficient for me.

The only advice I would give is that nobody said it could take up to 12 months to see PSA reduction. Mine was actually unchanged at 3 months which worried me at the time. It has now started to reduce and I can't tell you how great that feels!

User
Posted 06 Dec 2020 at 09:00
Thx Rog. Consultant said he wanted to keep me in overnight - only had one general anaesthetic before and had no issues, so fingers crossed he lets me out tomorrow, particularly as we’ve a long way to travel and the missus will have a nice hotel room to herself tomorrow night if I’m still stuck in dock!!
User
Posted 06 Dec 2020 at 09:18
I had mine done on NHS as part of a large trial, an overnight stay was never on the cards! My partner drove us home four hours away the same afternoon.

Rog

User
Posted 06 Dec 2020 at 17:12

Originally Posted by: Online Community Member
I had mine done on NHS as part of a large trial, an overnight stay was never on the cards! My partner drove us home four hours away the same afternoon.
Rog

This quick recovery is one of the advantages of Focal Treatment, the same being true for HIIFU, both being niche treatments for suitable patients.

Barry
User
Posted 06 Dec 2020 at 19:45
No trials available at minute Rog, did ask, so took out a loan (£14k!!)- what price quality of life is my view, assuming a good outcome!! Likewise, 4 hour drive down to Southampton, and it’s bloody freezing down here!!
User
Posted 06 Dec 2020 at 19:53

Cheers Barry. I wanted HIFU, which is how I was put in touch with the consultant - who luckily does everything, including the robotic radical snatch it out treatment!! He recommended focal cryotherapy over HIFU because of where my lesion is. He explained it all to me, I wish I could remember all the details but can’t so can’t expand why. He’s a uk leader in both HIFU AND Cryotherapy and when he said cryotherapy was cheaper than HIFU it filled me with a bit more confidence as it showed his recommendation wasn’t financially driven, at least I hope not!! Anyway, hopefully this time tomorrow will be chilled out with a cuppa and a smoke with it all done!! Tony

User
Posted 06 Dec 2020 at 20:20

Originally Posted by: Online Community Member

Cheers Barry. I wanted HIFU, which is how I was put in touch with the consultant - who luckily does everything, including the robotic radical snatch it out treatment!! He recommended focal cryotherapy over HIFU because of where my lesion is. He explained it all to me, I wish I could remember all the details but can’t so can’t expand why. He’s a uk leader in both HIFU AND Cryotherapy and when he said cryotherapy was cheaper than HIFU it filled me with a bit more confidence as it showed his recommendation wasn’t financially driven, at least I hope not!! Anyway, hopefully this time tomorrow will be chilled out with a cuppa and a smoke with it all done!! Tony

I discussed this with the leading Focal experts at UCLH as treatments for failed RT and within a trial in which I participated.  The view was that they preferred to treat with HIFU where the cancer was located in a position that the HIFU could be focussed, as they were more familiar with it in the UK.  Where this was not reachable Cryotherapy was given.  So this positioning accords with what your consultant told you.

Hope all goes well and please keep us advised.

Barry
User
Posted 06 Dec 2020 at 23:24
Thanks Barry, that makes sense.
 
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