Sudden big rise in PSA after moving to Prostap

Thank you, I know it is a horrible feeling having to fight for basic humane treatment.. I know covid has made things harder but we can't take any comfort in that! Keep on fighting

Sending love and strength to you, your mum, dad and rest of the family!

Take comfort in the fact there are some very kind people out there that do their most to help, are we explained to the ambulance crew the situation they were appalled and they put on the blue lights and flagged him as possible sepsis even though they knew he hasn't got it just so he would get seen quicker. 

Edited by member 12 Oct 2020 at 20:30  | Reason: Not specified

Thank you Anne

I had to fight today to be able to see him at the hospital, they first said no but then allowed me to visit him for 30 minutes but nurses kept coming around asking who allowed me in. 

My grandad was so confused about where he was, I let him know I was there and he said where have you been I have been looking for you. I feel so broken having to leave him after 30 minutes knowing he has days or a week or two left. I tried to keep strong for him but when I had to leave I got a bit choked up and he told me to take care. 

Bollocks to COVID and Prostate cancer. 

This is a really crap situation and extra stress and sadness for your grandad and you - can they get him into a local hospice do you think?

I cannot begin to imagine not being allowed in to see my dad if he was in hospital. Each time my dad has an appointment at the oncology clinic or surgery for blood tests, my mum has to fight to go in with him... he can hardly walk now so they have to let my mum in too but not happily!

While Covid19 is a serious disease so is terminal cancer - NHS need to give priority patients and their families the treatment and backup they need.

I really hope they can arrange something more suitable and comfortable for your grandad and your family sorted ASAP so you can spend as much time with him as possible.

Anne

Xx

Dear joey

I will raise my glass for you dear grandad... so sorry ..it sounds like he had a peaceful passing, though probably I am sure you would have wanted him out of hospital. its a total crap disease...isn’t any terminal one? 

My dad is not doing good (maybe a similar age to your grandad 84?), he’s at home, but he spent his lifetime very fit and healthy, so now he’s becoming very weak to get up, eat etc ... he does not like to make any fuss but has mentioned the doctor twice in last 2 days but no answer back from Macmillan nurse ...it goes to answer machine.

Sorry dear Joey, sorry you have lost your beloved grandad to this disease and bless you for thinking of others.

best wishes

anne 

xx

Thank you Anne, I am sorry to hear that your dad isn't too good, if he doesn't make a fuss usually but he has mentioned the doctor in the past few days I'd maybe recommend calling out his GP to visit him at home or maybe even worse case scenario call an ambulance to get the ball rolling.. After all your father does have advanced prostate cancer so it isn't like you are wasting the ambulance crews time, for us it was like an endless loop when trying to call oncology/urology or even the GP but the only progress that was made was actually during my grandad being in hospital. 

I hope your dad is helped soon and all of you keep strong,

Joe 

Thank you Lyn, all of your advice and support has been very much appreciated. I realise it is rare in that short space of time, I do feel guilty because on initial diagnosis my grandad wanted to give up but the consultant said he is not going to pass away in a short space of time and estimated they could give him 2 more years which made him pick up.

All in all this forum and community gave me the strength to go on, albeit with the thought that we had more time but it none the less kept me going. 

Thanks for everything 

Sincere condolences Joey.  I will raise a glass to your lovely grandad.  Take care x