PSA 0.6 after Radical Prostectomy

Are you still on the hormones?

I and two friends were diagnosed around the same time about two years ago, and had prostatectomies. I and another friend had top-rated expensive surgeons and the other a bog standard NHS surgeon.

Both my friends had recurrence shortly afterwards and both had to have adjuvant therapies, but we are all fine now, with undetectable PSA. One friend has one of the most senior jobs in English football, and you’ll see him on the telly when the Premier League (clue?) starts up, looking good.

My pre-op biopsy staging was T2 something, but was upgraded (not to First Class!) post-operative biopsy to T3aN1M0, with two lymph nodes out of fourteen removed proving cancerous. My PSA has been undetectable since the op.

You might enquire about a PET-PSMA scan with a Choline tracer (although the Gallium-68 tracer is more accurate - and more expensive) to try to locate precisely the source of the recurrence, so Dan Dare has more idea where to point his ray-gun, rather than using a scatter-gun approach.

I hope your adjuvant treatment is successful.

Best of luck.

Cheers, John.

Edited by member 31 May 2020 at 03:41  | Reason: Not specified

Pashes

Did you have any of the "better" tracer type scans prior to your surgery ?

Thanks Chris

I have to say that joining the community was one of my better decisions, although my wife would like to think that it was her idea. I feel a sense of relief that I can communicate with people who are fighting the same battle and, from what I've been reading here, I am better placed to ask the right questions when the time comes. Knowing that I can ask a question on something I don't understand and get answers from people who are going through or have been through the same journey gives me great reassurance.

Hi Pashes, Lyn is absolutely bang on. You need to see oncology soon and get some scanning done. Then they can present you with a treatment path which will be guided by the scans. Best wishes,

I am 70yrs old and have had problems with my prostate for years having endured 3 opps for a bladder neck restriction and 2 turps the last one hardly 2 years ago then went back with peeing problems in January to be told in April I have an aggressive T3 tumour Gleason 8 and my local nhs hospital would not remove it. I went down the private route with a excellent high volume surgeon who removed it on the 6th June am convinced I went down the right course of treatment for me when told clear margins and nothing in the lymph nodes and no further treatment  just PSA tests seen improvements in the peeing department and feeling very lucky.

Pashes

Do you know what your current PSA is , I saw it was 0.6 some time ago. Just wondering if you had another PSA test. 

Thanks Chris

It's been a while since my last post. Frustratingly, nothing much has happened apart from my 3 monthly Prostrap injection and a PSA test, the results show a drop from 0.6 to 0.4 (great news).

I'm still waiting for an appointment to see the Oncologist despite several calls requesting an update. I can only assume that they feel my PSA is low enough not to warrant an appointment yet. Although the PSA results are going the right way I read somewhere that hormone treatment can skew PSA readings. So, it would be nice to know what my treatment plan is (if any).

I am told that prostrate cancer treatment is now back to normal, I'm not so sure it is as my experience shows that appointments are few and far between and calls are not being returned.

Is anyone having the same experience?

Is anyone with the same PSA having treatment?

Your views on what I should do or expect would be welcome.