I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error


5 years and PSA <0.1

Email this conversation Print this conversation
User
Posted 27 Apr 2020 at 11:21

I have finally taken the plunge and swapped to standard PSA testing. Bollinge thankyou for the inspiration for doing that and Covid19 for providing the opportunity (All routine appointments at my hospital cancelled).

I decided after 5 years of advocacy for supersensitive testing that the standard one will do now as I will not consider further treatment unless my PSA goes over 0.1 anyway. So why worry about 3 decimal places??

Anyway GP just rang and told me it's a "less than" so no PSA anxiety for a year 😀.

Keep fighting and keep contributing guys and gals.

User
Posted 27 Apr 2020 at 15:22

J

Great news and good to hear a reassuring positive story about surgery. Hope it continues for a very long time. 

Thanks Chris.

User
Posted 27 Apr 2020 at 15:50

That's great news.   

But a point for debate.  It's possible to imagine becoming less concerned as time goes on.   

It's a dare.  Could I put up with not knowing it was 0.09 and then finding out it's 0.16 with no history and tests 12 months apart.  I'd want to go onto more frequent tests if it went up to 0.09 or even 0.06.  It's <0.05.

All the best, Peter

User
Posted 27 Apr 2020 at 17:58
Fantastic news Francij
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 28 Apr 2020 at 06:47
Good news!

As I have said before, I asked two oncologists (one the top PCa doctor at the Royal Marsden) and my own surgeon about ‘super-sensitive assay”, i.e. PSA testing to lower than 0.1, and they all concurred that it’s more trouble than it’s worth except in a few rare cases.

My own hospital only tests to 0.1 anyway, so <0.1, ‘undetectable’ is a result.

Chill out for another year, that’s if you can in the middle of the plague pandemic.😷😷😷

Best of luck.

Cheers, John.

User
Posted 28 Apr 2020 at 09:23

Great news Francij1.

 

Ido4

User
Posted 28 Apr 2020 at 12:16
Great news
Show Most Thanked Posts
User
Posted 27 Apr 2020 at 15:22

J

Great news and good to hear a reassuring positive story about surgery. Hope it continues for a very long time. 

Thanks Chris.

User
Posted 27 Apr 2020 at 15:50

That's great news.   

But a point for debate.  It's possible to imagine becoming less concerned as time goes on.   

It's a dare.  Could I put up with not knowing it was 0.09 and then finding out it's 0.16 with no history and tests 12 months apart.  I'd want to go onto more frequent tests if it went up to 0.09 or even 0.06.  It's <0.05.

All the best, Peter

User
Posted 27 Apr 2020 at 17:58
Fantastic news Francij
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 27 Apr 2020 at 22:43

That’s fantastic news Jonathan, keep enjoying life and stay well.

Keith is waiting for a scan following his recent chemo treatment, so we are in limbo at the moment until hospitals start re-arranging appointments again. 

Ange

User
Posted 27 Apr 2020 at 23:03

My problem is I know I have residual PSA (thanks supersensitive!!) That has slowly risen over from 4 years from <0.008 to 0.030 12 months ago. 

Believe me I have researched it to death, had 2 separate second opinions, a second opinion on the pathology and in my case (T3a G6 clear margins) it  has all pointed to the same conclusion: Don't do anything until it gets to 0.1.  so if that is what I have decided the standard test will do.

So for now I will enjoy only having PSA anxiety once a year.

 

User
Posted 28 Apr 2020 at 06:47
Good news!

As I have said before, I asked two oncologists (one the top PCa doctor at the Royal Marsden) and my own surgeon about ‘super-sensitive assay”, i.e. PSA testing to lower than 0.1, and they all concurred that it’s more trouble than it’s worth except in a few rare cases.

My own hospital only tests to 0.1 anyway, so <0.1, ‘undetectable’ is a result.

Chill out for another year, that’s if you can in the middle of the plague pandemic.😷😷😷

Best of luck.

Cheers, John.

User
Posted 28 Apr 2020 at 09:23

Great news Francij1.

 

Ido4

User
Posted 28 Apr 2020 at 12:16
Great news
 
Forum Jump  
Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2025 Prostate Cancer UK