results today is it back..?

User

Posted 23 Mar 2020 at 11:25

Hi - just got 8 week psa results unfortunately they have jumped to 1.0

Husband said he had nippy pee /cloudy and smelly and frequency which stopped 3 days before bloods were taken could this be the reason it has spiked or are we looking at a return of the cancer.....?

Since RT he has been 0.1 0.1 0.2 0.2 0.4 and now 1.0

we are devastated to be honest......

Radiotherapy stopped November 2018 and HT September 2018

thanks

Gleason 3+4 T2c/T3a RT and HT route

User

Posted 03 Sep 2020 at 09:27

Results are in.....

5 months since the last one and almost 2 years with no treatment

Today the results were 0.2!

Just wanted to post some good news on a dreary dreich day!

4 years since we started the Journey, 2 years post RT no treatment (7 weeks of RT) and Hormones (8 months of hormones)

Its been a bit up and down results have been (post radiotherapy and on no treatment)

<0.1, 0.2 0.2 0.4 1.0 (UTI) 0.4 and 0.2

lots of love

Jen

Edited by member 03 Sep 2020 at 09:29 | Reason: Not specified

User

Posted 01 May 2020 at 15:10

Glad to see that fall

Ulsterman

User

Posted 01 May 2020 at 17:23

Brilliant

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 01 May 2020 at 18:08

Great result Jen👍

User

Posted 01 May 2020 at 18:31

Great Jen xx

If life gives you lemons , then make lemonade

User

Posted 01 May 2020 at 22:48

Hi Jen,

Great to hear your OH’s results.

Take care both,

Angex

User

Posted 06 May 2020 at 17:00

Great news Jen, long may it continue 👍

Phil

User

Posted 10 May 2020 at 20:15

Nice!

User

Posted 11 May 2020 at 11:49

Great news.

Ido4

User

Posted 03 Sep 2020 at 10:32

Great to hear good news Jen x

User

Posted 03 Sep 2020 at 10:58

Great news for you both Jenny

If life gives you lemons , then make lemonade

User

Posted 03 Sep 2020 at 11:06

That really is excellent but continue to have the PSA tests as prescribed.

Barry

User

Posted 03 Sep 2020 at 12:30

That is great news. Long may it continue.

Ido4

User

Posted 03 Sep 2020 at 13:02

Great news Jen, long may it continue.

I have my PSA test on 14th. Last one was 0.97 so hoping it hasn’t gone any higher. I’m 2 years now since RT finished and 11 months since last HT injection.

Phil

User

Posted 03 Sep 2020 at 13:51

Great news

Really pleased for you both

User

Posted 03 Sep 2020 at 13:59

That is such good news, well done .

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User

Posted 04 Mar 2021 at 11:43

Great news!!

User

Posted 04 Mar 2021 at 12:53

That is really great news Jen , long may it continue. Did they tell you the PSA may go up after the HT finished ? They told me mine would go back to around 2 so 0.2 is fantastic result.
My PSA has now gone back up to 2.75 in a similar timeframe for RT. Hormones finished just over a year ago.

Phil

User

Posted 04 Mar 2021 at 12:59

Hi Phil - yes they said it could go up after RT but they said everybody is different. The Consultant said when it bounced up he was within the "bounce timeframe" - 18ths-2 years however it turned out he had a mild UTI which caused the bounce to 1 and it came down again to 0.4 and then 0.2

Its amazing how worrying it is when it goes up even slightly and the wait for the next result is excruciating. I am wishing you all the best with your next result Phil.

Jen

User

Posted 04 Mar 2021 at 13:07

Great news Jenny x

If life gives you lemons , then make lemonade

User

Posted 04 Mar 2021 at 13:52

Great news for you both

User

Posted 04 Mar 2021 at 14:10

Good news, and a lesson for all of us that these figures can bounce around a bit and it does not mean the end of the world.

Dave

User

Posted 06 Mar 2021 at 17:39

That’s great news Jenny. Long may it continue xx

Debbie xxx

User

Posted 06 Mar 2021 at 19:30

Really good news. Delighted for you!

Chris

User

Posted 07 Mar 2021 at 00:38

Great to hear such good news!

Ange x

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User

Posted 23 Mar 2020 at 11:35

It could still be nothing - biochemical recurrence is defined as 2.0 + nadir (in your case, 0.1) so it might simply be his testosterone has recovered and the healthy prostate cells regenerating. And a UTI could push it up temporarily. However, 0.4 to 1.0 is quite a rise in 8 weeks so it is sensible to have scans if the oncologist suggests it.

Fingers crossed it was just the UTI.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 23 Mar 2020 at 11:42

Thanks Lyn

Much appreciated - we are pretty gutted and trying to hold onto any hope possible.

Jen

User

Posted 24 Mar 2020 at 13:39

Just an update after speaking to the Oncologist - Telephone Consultation.

He still believes Husband is in the realms of the "psa bounce" following RT (he is 16 months post RT)

He wants to retest in 6 weeks especially since there was a potential urine infection.

If it goes up them it will be MRI - he would like to do CT but in the current environment they will hold off for now.

So we are a bit less low today and will get on with life until the results in 6 weeks

Jen

User

Posted 01 May 2020 at 14:38

RESULTS IN!
Back to 0.4 - thrilled!

18 months post RT (they jumped to 1 and it looks likely the OH had had a UTI just before his bloods were taken but he didn't want to say anything (???!!!).

post RT psa: <0.1(July 2018 8 weeks after finished HT) then 4 monthly 0.1,0.2, 0.2, 0.4, 1.0 (Burger!) so 6 week test 0.4 today 18 months

Just wanted to share.

RT is definitely a rollercoaster but we are happy with the scores on the doors.

Stay well
Jen
x

Edited by member 01 May 2020 at 15:06 | Reason: Not specified

User

Posted 01 May 2020 at 15:10

Glad to see that fall

Ulsterman

User

Posted 01 May 2020 at 15:13

Gosh Ulsterman so are we! - it was absolute torture waiting on this one and the Surgery couldn't find the results so we rang the Hospital who were great and tracked it down.

Have a good weekend (as good as it can be in lockdown!)

Jen

User

Posted 01 May 2020 at 17:23

Brilliant

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 01 May 2020 at 18:08

Great result Jen👍

User

Posted 01 May 2020 at 18:31

Great Jen xx

If life gives you lemons , then make lemonade

User

Posted 01 May 2020 at 22:48

Hi Jen,

Great to hear your OH’s results.

Take care both,

Angex

User

Posted 06 May 2020 at 12:40

Just had telephone review with Oncology Consultant and she is delighted with 0.4.

Next due another psa and telephone review August.

All the best

Jen

User

Posted 06 May 2020 at 17:00

Great news Jen, long may it continue 👍

Phil

User

Posted 10 May 2020 at 20:15

Nice!

User

Posted 11 May 2020 at 11:49

Great news.

Ido4

User

Posted 03 Sep 2020 at 09:27

Results are in.....

5 months since the last one and almost 2 years with no treatment

Today the results were 0.2!

Just wanted to post some good news on a dreary dreich day!

4 years since we started the Journey, 2 years post RT no treatment (7 weeks of RT) and Hormones (8 months of hormones)

Its been a bit up and down results have been (post radiotherapy and on no treatment)

<0.1, 0.2 0.2 0.4 1.0 (UTI) 0.4 and 0.2

lots of love

Jen

Edited by member 03 Sep 2020 at 09:29 | Reason: Not specified

User

Posted 03 Sep 2020 at 10:32

Great to hear good news Jen x

User

Posted 03 Sep 2020 at 10:58

Great news for you both Jenny

If life gives you lemons , then make lemonade

User

Posted 03 Sep 2020 at 11:06

That really is excellent but continue to have the PSA tests as prescribed.

Barry

User

Posted 03 Sep 2020 at 11:11

Hi Barry - have no fear they will be booked into the Diary on a regular basis!

I am guessing he may move from 3 monthly (although it was 4 monthly) to 6 monthly but we are happy with what they suggest as long as its on a regular basis.

Jen

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