My Retzius sparing RARP + NeuroSAFE journey

So had my first hiccup last night. Skin full in town with friends celebrating post op thus far. Don’t remember exiting the pub and kindly given a lift home by one of the group. Woke up 6am having wee’d myself. Thankfully the post op setup of mattress protector and tena bed mats worked a treat. I think I must have been in a coma so I don’t think being post op had much of a bearing as did this ages ago after a heavy night on cocktails and shots. Usual trick is to stick to wine for me. No harm done and a lesson learnt. Those tena mats are epic as only soiled one as it sorted the leak without much issue. Scooped the bedding into washing machine a job done. Took 15mins to find my glasses and remote...... More importantly no leaks in the pub at all. I fell very blessed with the outcome and the magic hands of the prof.

happy weekend everyone!

TG

Bollinge

obviously a bad pint. Historically I’d experience this pre-op if I went very silly on the sauce every 5-8years or so...I had nocturnal enuresis up to ~20...Uni seemed to make me sleep lighter as the issue appeared to be that I slept in a virtual coma. Last night was just unlucky but good data to build on. I wondered what the limits would be. Last weekend we had a couple of bottles of SB and no issues. I think game changer last night was quantity on empty stomach. don’t remember much after the pub...on the plus side I didn’t wake on the cold kitchen floor...although that would have been logistically simpler. 

certainly a journey isn’t it but yet to leak when out post 6 weeks after op whatever I throw at it....can’t complain I guess. Bed is triple armoured based on my old data as a kid plus learning on this wonderful site. Tena mats is like super slurpers 

Week 13 Update:

Nothing much to report. Things settling. Back improving after putting it out the other week. The gym was needed for this so went down yesterday fully armed with tena lvl 2. Spend 30mins doing usually pre-op routine for back of around 80-100 late pull downs (cable machines). Taking it easy for obvious reasons(25-40kg). Also crammed in 3x10dips with 35kg offset. All felt ok but when I got home evidence of a few minor drips in pad. Will work out what triggered .....dips/lats. Pretty minor so not big issue. I don’t do much pelvic floor other than Pilates as normal continence. Will try to tension pelvic floor when in the gym again later this week and see what effect that has. Tbh if it means a tena 1 or 2 when doing resistance for rest of my life then cool as all fine outside of that 😎🤓😀

Hope everyone else is doing well post/pre op 👍

Updated (28/2/20): gym visit two. No drips or leaks with lat pull down. Appears trigger last time was dips which makes sense as puts a bit of pressure on pelvic floor. Will gets this next time while engaging.

Edited by member 28 Feb 2020 at 14:57  | Reason: Not specified

Hi Dave

thanks mate. Stay positive as I had many moments of doubt until the drips ceased. Easy to forget it just takes quite a bit of time after effectively prostate/bowel/bladder surgery.

hope you have a great weekend.

TG

History: Diagnosed 2013, focal cryo 2014, focal HIFU 2019, RALRP 27th Feb UCLH

Recovering quite well.

Week 14 Update:

No problems at all and no leaks. Did the gym yesterday and forgot the precautionary pad but didn’t need it. All dry so very pleased. I can feel the healing progress on a week by week basis. Also slept right through last night without a visit to the loo.

Slight sore throat and head cold today. So taking it easy 🤓📺🤖🦾

Hope everybody else making good progress and have a fantastic weekend. 

TG

Thanks for posting. Interesting to me as my husband has also had 2 focal treatments - FLA in Florida in 2017 and focal HIFU in London earlier this year ( first post HIFU PSA due in April. 

Opting to extend QOL as a priority whilst controlling the PCa but met with surgeon before the focal HIFU who says removal is still on the table should things not go to plan

pleased ‘to meet’ some else who opted focal twice! 

Glad to hear the recovery is going quite well. Did you have any nerves saved? 

Cheers Lyn :-)

Thanks John, Thats my view. Don't panic until >0.1....less detail the better as ignorance is bliss at these levels. Sauvignon Blanc may be opened tonight...I have a reasonably valid excuse for a change :-o

I feel somewhat fortunate with post op functionality. It did feel odd taking a pic in my hotel the night before. The first thing I did post op when i got wheeled back to my room is check the sump. My female nurse walked in as completely the wrong time and I struggled to explain things. 'checking the oil' produced a confused face. The male nurse found it hilarious :-/

Cheers

S